MND Association

This is us, the MND Association. Renewed, united and driven every day to make change happen. Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

When @ToyotaUK National Marketing Manager, Rachel, was diagnosed with motor neurone disease (MND), her colleagues were determined to make a difference. That determination has now reached an incredible milestone: £1 million raised for the MND Association! 🎉 Toyota GB is now the first corporate fundraising partner in our history to reach this milestone. What began as a three-year partnership has grown into something extraordinary, powered by the generosity of colleagues, retailers, partners and boosted by company donations and match funding. From marathons and cycling challenges to cake sales, auctions, and even sponging the directors, every effort has helped support people living with and affected by MND. Over the years, Toyota UK’s fundraising has helped fund vital support services, specialist equipment and research — improving lives today and creating hope for the future. To everyone at Toyota UK: thank you, congratulations and very well done. 🎉

What connects a conversation about swallowing, an assessment of someone’s home and a discussion about emotional wellbeing? Each draws on different professional expertise. Yet all have the same, shared goal - providing support which is centred on the person with MND. Read our latest blog from Jennifer Bedford, Head of Information and Professional Development. 🔗 mndassociation.org/media/lat…

Today, Secretary of State for Health and Social Care @YvetteCooperMP spoke about our ongoing work with the Department of Health and Social Care (@DHSCgovuk) to develop a fast-track care and support pathway for people living with MND. People with MND often face long waits for the care and support they need, so it's encouraging to hear this commitment reaffirmed today. We will continue to push for these changes to be introduced as quickly as possible, so people affected by MND can access the support they need without delay.

For some people, baking is their happy place. Motor neurone disease can take away the ability to keep doing the things you love. Help us stop it. #GBBO

When Lindsay was diagnosed she felt overwhelmed. Thanks to support from people like you, her family was able to receive support and guidance from the MND Association. 🧡 With your help, we can make sure no one faces motor neurone disease alone this Christmas. 🎄Donate to our winter appeal here. 🔗mndassociation.org/thischris…

Gardening, grandchildren and family. These are the things that matter most to Tahira. Meet the incredible people behind our national campaign.

Before MND, George spent 80-hour weeks working on the dairy farm he helped grow from a small family business to a thriving enterprise. 🐄 After his diagnosis in 2020, he had to step back from the work he loved, but with support from the MND Association, including equipment, grants and practical help, he's focused on making the most of every moment with his family. 🧡 Read George's story and how support from our community has helped him adapt to life with MND. 🔗mndassociation.org/our-impac…

Despite huge strides in our understanding of MND in recent years, what causes the disease in most people remains one of the biggest unanswered questions. We’re determined to change this. If we can work out what causes the disease, we’ll have the best chance of working out how to prevent it. That’s why we’re joining forces with @MNDoddie5 to increase investment in research into the causes of MND. Read more here.🔗mndassociation.org/media/lat…

Bake it. Decorate it. Make a difference. 🧡 This Halloween, pick up a pack of Renshaw Tiger Orange Icing, sign up to Bake It at the link in our bio and get creative in the kitchen. For every pack sold, 10p is donated to the MND Association, helping to support people affected by MND. 🔗mndassociation.org/bakeit

Our Understanding My Needs form is now online, helping you record your care needs and preferences in one place and making it easier to share important information with everyone involved in your care. 🔗mndassociation.org/umn Our Care Information Manager, Kaye, explains why having this information organised and accessible can make such a difference for people living with MND.

Last night, the Kevin Sinfield documentary aired on BBC, "Thank You, Sir Kev", celebrating the incredible impact he’s had on the MND community through the money he’s raised and the awareness he’s brought to Motor Neurone Disease. He knows like we do, that the fight against MND doesn’t stop at the finish line. This is a behind the scenes look at our campaign, 'Life stripped Away'. It tells the stories of Jaki, Steve, Tahira and Lorraine, who are all living with MND, and who all generously shared their stories with us. They are a powerful reminder of why this work matters - and why there’s still so much more to do. Help us stop MND.

More than 200 health and social care professionals came together in Birmingham for Inspire 2026, the MND Association's annual networking event for members of the Community of Practice. Read more. 🔗 mndassociation.org/media/lat…

As the clocks go back, take an hour to think ahead. 🕒 We sat down with MND Connect Advisor Ellie to discuss preparing for winter with MND. From making sure prescriptions are up to date to planning for seasonal challenges, a little preparation now could help make the months ahead easier to manage. 🧡

Dancing, friends and family. These are the things that matter most to Lorraine. Meet the incredible people behind our national campaign. #Strictly

As we head into winter, it's worth checking the latest guidance on flu and COVID-19 vaccinations if you're affected by MND. Find out more. 🔗mndassociation.org/support-a…

Through their Swag Bags with Purpose campaign, @ScampandDude & @katelawler have raised over £8,000 for people affected by MND🧡 £10 from every Scamp & Dude X Kate Lawler bag supports our vital work. Thank you, Kate! Get yours: 🔗 scampanddude.com/products/sc…

At yesterday's meeting with the National Institute for Health and Care Excellence (NICE), Sean Davies, who has SOD1 MND, spoke about the difference tofersen has made to his life. As we wait for NICE’s interim decision on whether the treatment will be available on the NHS, Sean shares his thoughts on the day.