IMI_SISAQOL

👏 Another #SISAQOL contribution at #ISOQOL 2026: turning recommendations into practice. A key lesson from our symposium: recommendations are only the first step. Better PRO analysis in cancer #ClinicalTrials also requires practical tools, training and implementation support.

🔍 How do we turn complex PRO data into meaningful patient insights? At #ISOQOL 2026, @lisa_wintner shared the #SISAQOL recommendations for communicating trial results. To truly empower patients in shared decision-making, data must be clear and meaningful for everyone. @ISOQOL

📸 A look back at the #SISAQOL pilot in-person training in Zagreb! Thank you to all participants & the faculty, who came together to exchange knowledge and share best practices for the implementation of PROs & #HRQoL in cancer #ClinicalTrials. See you in 2027! #SISAQOLtraining

🤝The #SISAQOL pilot in-person training starts today in Zagreb! Bringing together experts & participants to explore the implementation of SISAQOL recommendations for PROs & HRQoL in cancer #ClinicalTrials. Looking forward to two days of learning & collaboration. #SISAQOLtraining

🔍 #SISAQOL featured in new @IHIEurope project factsheet The factsheet highlights our recommendations, tools and resources to improve how HRQoL and PRO data are analysed and reported in cancer clinical trials. 🔗 Read more: sisaqol.org/2026/06/17/sisaq… #QualityofLife #CancerResearch

📰 New article from @IHIEurope highlighting the work of #SISAQOL on making quality of life measures in cancer clinical trials more meaningful & comparable. A key step towards better use of PROs in research & decision‑making. 🔗 ihi.europa.eu/news-events/ne… #ClinicalTrialsDay @EORTC

⏰ Final reminder – deadline extended! Applications for the SISAQOL 2026 pilot in‑person training are now open until Friday 29 May. Don't miss the opportunity to learn from key SISAQOL experts! 👉 Read more & apply here: sisaqol.org/sisaqol-training… #SISAQOLtraining @EORTC @EORTC_QLG

⏰ Last chance to apply! Applications for SISAQOL 2026 pilot in‑person training close 15 May. 📍 Zagreb | 🗓 22–23 Sept Hands‑on training on implementing SISAQOL recommendations. ✅ Free (2026 pilot only) | Selection applies 👉 Apply now: sisaqol-imi.org/sisaqol-trai… #SISAQOLtraining

📢 Registration open! SISAQOL pilot in‑person training on 22–23 Sept 2026 | Zagreb 🇭🇷 Hands‑on training on PRO & HRQoL endpoints – from design to reporting, led by SISAQOL experts. ✔️Limited places – selection applies 👉Apply by 15 May 🔗sisaqol-imi.org/sisaqol-trai… #SISAQOLtraining

📍 Poster 1: MSR128 Implementing SISAQOL Recommendations: Insights From Cancer Clinical Trials 🔸️ Ahu Alanya from the @EORTC @eortc

We’re thrilled to announce that our consortium will be presenting the SISAQOL-IMI recommendations at the @RoyalStatSoc Conference 2025 in Edinburgh this September! We can't wait to share our insights and engage in thought-provoking discussions. Stay tuned for more details 📊📢

🚨 New Publication Alert! 🚨 Our latest publication in BMC Medical Research Methodology explores handling missing patient-reported outcome data in the presence of intercurrent events. Aligning analysis with the estimand framework is key! 📊 Read more: bmcmedresmethodol.biomedcent…

Early this month, we presented key highlights from the final SISAQOL-IMI recommendations. We invite you to explore the executive summary about the public launch and the collaborative efforts that underpin this initiative lnkd.in/eQqWB2Pv

📢 Yesterday, SISAQOL-IMI officially launched its final recommendations for standardising patient-reported outcomes in cancer clinical trials! 🎉 A huge step toward better, more reliable data for patient-centered care. Learn more: sisaqol-imi.org/2025/02/05/s…