MitoAction is a 501(c)3 charity, tax id 55-0899427, that provides support, advocacy & educational resources FREE for all those affected by mitochondrial disease
Boston, MA
Joined June 2009
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Explore the 2026 UCB Mito Global Art Show from anywhere! 🎨💙
Experience the creativity and powerful stories of the mitochondrial disease community through a virtual art exhibition, now available on MitoAction’s website.
View the exhibition here: mitoaction.org/2026-ucb-mito…
Wondering what to expect at the POLG EL-PFDD Meeting? November 17 will center the experiences, needs, and perspectives of the POLG community.
Register here: mitoaction-org.zoom.us/webin…
#POLG #POLGCommunity #ELPFDD #PatientVoice
More than an art show, this is a chance to experience the mito community through the eyes of those who live it. Join us for an evening of creativity, meaningful stories, and connection on November 15.
Register today using this link: mitoaction-org.zoom.us/meeti…
New episode drop! In today’s episode of Energy in Action, Chris Freeman shares his family's journey navigating his son's POLG-related mitochondrial disease diagnosis and the importance of community support and advocacy. 💚
🎧 Tune in to hear his story! mitoaction.org/resources/ene…
A special thank you to UCB for generously sponsoring our Perris, CA Energy Walk! 💚
Your support helps us bring the mitochondrial disease community together and continue making a difference for patients and families. We are grateful for your partnership!
Join us on November 9 for our next Genetic Counselor CEU Series session!
Eligible for 0.1 CEU credit. Register today to secure your spot! events.ringcentral.com/event…
We are excited to share that the MHRA in the UK has authorized Pretzel to conduct a clinical trial study in POLG, in adults in the UK. Previously, we also announced clearance by the FDA to conduct a similar study in the USA.
Full press release: pretzeltx.com/pretzel-therap…
The creativity is coming together, and now we want YOU to experience it! Join us November 15 for MitoAction’s Open Mito Mic & Art Show as we celebrate the voices, stories, and creativity of the mito community.
Register today using this link: mitoaction-org.zoom.us/meeti…
Join us on January 15, 2027 for the Town Hall Meeting!
Kick off the new year with updates from organizations and companies around the world as they share exciting opportunities, programs, and projects for the mitochondrial disease community.
More details coming soon!
Join us on November 5 at 7 AM ET for the UCB Art Show! 🎨
Register today to attend and celebrate the incredible talent within our community! mitoaction.org/mitoaction-ev…
The POLG survey has closed, but the conversation isn’t over. 💙
Register here: buff.ly/AKguGpY
#POLG #POLGCommunity #ELPFDD #PatientVoice
Join us TODAY for our next Genetic Counselor CEU Series session! 🧬
This session is eligible for 0.1 CEU credit.
Register here: events.ringcentral.com/event…
Have questions about PX578 and its potential for treating POLG-related mitochondrial disorders?
Bring your questions and join us on November 12th! mitoaction.org/resources/exp…
Check out this week’s support schedule! 💙
Whether you're looking for connection, guidance, or a community that understands, we're here for you. Register for any of this week's events by visiting our website: mitoaction.org/calendar/mont…
Happy Halloween from all of us at MitoAction! 🎃💙 Hoping you all stay safe and enjoy the festivities! 👻💚
Today is the final day to complete the POLG survey! 💚 Thank you to everyone who has already shared their experiences. If you haven’t yet, there is still time to add your voice before the survey closes tonight.
Fill out survey here: survey.alchemer.com/s3/89508…
#POLG #POLGCommunity
Today is the final day to submit your work for the Open Mito Mic & Art Show! Don’t miss the opportunity to share your creativity and your interpretation of “Holding Beauty and Pain” with the mito community.
Submit here: mitoaction.org/mitoaction-ev…
⏰ Join us today at 12 PM EST for our Weekly Support Call!
Connect with others in the mito community, share experiences, and find support in a welcoming space. Register and join us to learn more and sign up on our website today! mitoaction.org/mitoaction-ev…
Just 2 days left! ⏰ The POLG survey closes October 31. If you haven’t participated yet, there is still time to share your experiences, perspectives, and priorities. Make your voice heard today.
Take survey here: survey.alchemer.com/s3/89508…
#POLG #PatientVoice #ELPFDD
Join us on November 13 at 12 PM EST for our Monthly MitoExpert Series featuring Juli Jones, Ph.D., as she discusses PX578, an investigational POLG activator, and its potential for addressing mitochondrial DNA depletion.
🔗 Register here: mitoaction.org/resources/exp…
