Asociación Puertorriqueña de Ayuda al Paciente de Psoriasis, miembro de LATINAPSO e IFPA
Puerto Rico
Joined August 2010
- Tweets5.9K
- Following675
- Followers1.4K
- Likes4.7K
APAPPsoriasis retweeted
Hoy es el Día Mundial de la Psoriasis. La Dra. María Victoria Suárez Restrepo, presidenta de SOLAPSO: con los tratamientos de hoy, una piel limpia o casi limpia está a nuestro alcance. Si usted o un ser querido vive con psoriasis, consulte a un dermatólogo.
#LookBeyondMySkin
APAPPsoriasis retweeted
Meet Nansad, a young doctor from Nigeria living with psoriasis.
She shares the loneliness of her diagnosis, limited access to treatment, and how becoming a mother changed the way she thinks about the future.
🎥 Her story premieres Oct 19.
#LookBeyondMySkin #WorldPsoriasisDay
ALT World Psoriasis Day 2026 graphic with a purple background and bold white and orange text. Nansad, born in 1996, is pictured smiling in a bright pink blazer, surrounded by orange and white geometric shapes. An orange banner features her quote: “There are lots of people who live with psoriasis, who are lonely and not part of a community. I want to be a symbol of hope and a source of encouragement.”
APAPPsoriasis retweeted
“Los abrazos son contagiosos, la psoriasis no”: la nueva campaña en solidaridad con los jóvenes que la padecen | Haz clic aquí ⬇️ trib.al/zydyoCO
APAPPsoriasis retweeted
We are honored to welcome Amb. James Waweru, Kenya’s Deputy Permanent Representative to the UN in Geneva, who has confirmed participation in the IFPA Forum Africa in Nairobi on 7–9 May. The Forum aims to tackle psoriasis and develop a roadmap for action across Africa.
#IFPAForum
APAPPsoriasis retweeted
Big news for Africa’s first-ever psoriasis summit in Nairobi 7–9 May. 🌍
Janet Mbugua, Kenyan media professional and advocate for social change, will host the Forum. She said: “Psoriasis affects millions of people, yet it’s not spoken about enough.”
#IFPAForum #psoriasis #NCDs
APAPPsoriasis retweeted
Every medical breakthrough begins with clinical trials. But there is a challenge – many people never heard of clinical trials or find the scientific language confusing. That's why we develop a Glossary of Clinical Research.
👉 Read more: eu1.hubs.ly/H0slmY-0
APAPPsoriasis retweeted
🤿✈️ En cualquier rincón y en cualquier situación: muestra tu #psoriasis y disfruta del verano. ¡¡Empieza el #Destapate2025!! 🤸♀️
✅ Sube una foto a instagram etiquetando a @accionpsoriasis_es y #Destapate2025 o bien
✅ Envíala por DM o a rrss(@)accionpsoriasis(.)org y la subimos nosotros
Tienes las bases completas en accionpsoriasis.org/destapat…
APAPPsoriasis retweeted
🟡 La Asociación Puertorriqueña de Consejería Profesional (APCP) pidió que no se convierta en ley el Proyecto del Senado 350. @APCPteinforma
wp.me/pfUlr3-59K
APAPPsoriasis retweeted
The conversation has started at the IFPA Forum!
🔐 Juan Arturo Sabines Torres delivered the keynote address on behalf of PAHO/WHO, emphasising the need to reduce NCDs to improve life expectancy and increase healthy life years.
#PsoriaticDisease #PatientAdvocacy #IFPAForum
APAPPsoriasis retweeted
The theme of 2025, and the #WPD2025 campaign is: "Psoriatic Disease and Comorbidities – Understanding the Domino Effect".
It is a serious disease that can lead to multiple health complications.
👉 eu1.hubs.ly/H0ht6-10
#StopTheDominoEffect #PsoriaticDiseaseComorbidities
APAPPsoriasis retweeted
#psoriasis o #artritis psoriasica? Tenemos un estudio y tratamiento que te puede ayudar. Comunícate por WhatsApp y conversemos 9️⃣3️⃣9️⃣-3️⃣7️⃣9️⃣-0️⃣8️⃣0️⃣1️⃣
APAPPsoriasis retweeted
👏 👏 👏 👏 @NPF, @ApapsoPeru, @APAPPsoriasis and the Taiwan Psoriasis Association were all recipients of Amgen's UPLIFT Innovation Program and have been hard at work this past year!
See how they are transforming #psoriaticdisease care globally 🌍
APAPPsoriasis retweeted
Number of people who go bankrupt every year because of medical bills or illness-related work loss:
Australia 0
Canada 0
Denmark 0
Finland 0
France 0
Germany 0
Iceland 0
Ireland 0
Italy 0
Japan 0
Netherlands 0
Norway 0
Portugal 0
Spain 0
Sweden 0
UK 0
United States 530,000
There’s a lesson there.
APAPPsoriasis retweeted
The 7th IFPA Conference WPPAC 2024 peer-reviewed conference publication is available. Latest research on Psoriatic Disease
🟣Mental health
🟣Genetics advances
🟣Pain management
🟣Psoriatic Arthritis
In collaboration with @MedicomMedical publishers. bit.ly/4fO1KHl
APAPPsoriasis retweeted
Psoriatic disease goes beyond skin symptoms—treatment should improve quality of life too. In a recent study, almost 50% of participants receiving treatment reported that the disease had no longer an impact on their quality of life.
Learn more: eu1.hubs.ly/H0dB19C0
APAPPsoriasis retweeted
Results from the POSITIVE study show that treatment improves the Quality of Life of people with psoriatic disease, similar to the Quality of Life of the general population (without psoriatic disease).
Learn more about the POSITIVE Study: eu1.hubs.ly/H0dB2Jr0
#psoriaticdisease
APAPPsoriasis retweeted
Share your story and inspire others! 🌍 Join IFPA’s Psoriatic Disease Ambassador Program to raise awareness and make a difference for those affected by psoriatic disease. Apply today: ifpa-pso.com/projects/ambass…
#PsoriaticDisease #PsoriaticArthritis #PsoriasisWarrior
APAPPsoriasis retweeted
#AgendaBeHealth En conmemoración del Día Mundial de la Psoriasis, @APAPPsoriasis invita a un evento educativo y dermatológico el sábado, 26 de octubre💚 La actividad es gratuita y abierta a pacientes, familiares y al público general #Psoriasis
behealthpr.com/jornada-educa…
APAPPsoriasis retweeted
Get involved and amplify awareness for World Psoriasis Day 2024! 🌍✨ Download our campaign materials from eu1.hubs.ly/H0cGKq50 and join the movement to educate and advocate. Together, let's make a difference!
#WorldPsoriasisDay2024 #psoriaticfamily #WPD2024
APAPPsoriasis retweeted
Psoriatic disease affects not just individuals but their loved ones too. By understanding it, we can break misconceptions and improve lives. Let’s end the stigma! 💪💜
Learn more: eu1.hubs.ly/H0ctNv_0
#psoriaticfamily