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ActiveHD

@Active_HD

ACTIVE-HD is a source for information about all things pertaining to exercise, physical activity and physiotherapy in Huntington’s disease (HD).

 Cardiff University, UK
activehd.co.uk/
Joined April 2013
  • Tweets174
  • Following234
  • Followers455
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Photo by ActiveHD (@Active_HD)Photo by ActiveHD (@Active_HD)Photo by ActiveHD (@Active_HD)Photo by ActiveHD (@Active_HD)Photo by ActiveHD (@Active_HD)Photo by ActiveHD (@Active_HD)Photo by ActiveHD (@Active_HD)Photo by ActiveHD (@Active_HD)
'We need to work together for better places to live, play and work' #TuesdayThoughts #ActiveDesign huffingtonpost.ca/evidencene…
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Great to see :) I can't say enough for the valuable insights people have given from their personal experiences to make sure research & engagement projects are relevant & accessible. Another perspective can make all the difference!
Advanced Neurotherapies Centre (@advancedNTC) profile pictureAdvanced Neurotherapies Centre@advancedNTC24 Aug 2018
We're excited to announce that we'll be hosting our first BRAIN Involve Community Day on Sept 24! We're inviting existing BRAIN Involve members & members of the public with an active interest in helping us with the design of neurodegenerative research: bit.ly/2MtG6yo
Image from Advanced Neurotherapies Centre (@advancedNTC)
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#WorldMentalHealthDay + mental health is such a key part of life for Huntington's Disease families. pls RT to support @jcarroll42 @DrEdWild
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Great walk this morning #HDonthemove at EHA conference Sofia...let's get moving! @EuroHuntington
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Rudi and Jessie of the EHDN physio WG leading 'HD on the move' walk at the 'Stronger together' @EuroHuntington Association Conference Sofia
Image from ActiveHD (@Active_HD)
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Great PTJ podcast with @busse_monica - trial of a theoretically grounded physical activity intervention: ENGAGE-HD academic.oup.com/ptj/pages/p…
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Introducing Prof Monica Busse's talk on wearable technologies in #HD, Dr Laura Bunting explains how #BRAIN Unit benefits from patient input.
Image from Advanced Neurotherapies Centre (@advancedNTC)
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ENGAGE-HD study academic.oup.com/ptj/article… nitter.cf/Active_HD/status/87930…
ActiveHD (@Active_HD) profile pictureActiveHD@Active_HD26 Jun 2017
A key part of intervention development was acknowledging complexities of (motor, cog, behavioral)symptoms that can lead 2 sedentary behavior
A key part of intervention development was acknowledging complexities of (motor, cog, behavioral)symptoms that can lead 2 sedentary behavior
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In the study(previous tweet)people with HD were allocated to a physical activity coaching intervention or a social interaction intervention.
Follow this link for the latest results from ENGAGE-HD; academic.oup.com/ptj/article…
Around 28,480 people live with a high genetic risk of inheriting HD in England in Wales #HDAwarenessWeek
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ActiveHD retweeted
HDSA (@HDSA) profile picture
HDSA@HDSA18 May 2017
#LetsTalkAboutHD with #PopeFrancis In the battle vs #HuntingtonsDisease, no one fights alone. At HDSA, FAMILY IS EVERYTHING! #HDSAFamily
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One by one, pope hugs over 100 patients suffering from rare disease: #Huntington's Syndrome romereports.com/2017/05/18/o…
Image from ROME REPORTS (@romereports)
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Last Stage of Huntington's Disease - Stages of HD #huntingtonsdisease #huntingtonsdiseaseawarenessmonth #hdstages
Image from Fight To Cure HD (@fight2curehd)
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Replying to @Active_HD
@Active_HD Have you heard about @HDdennomore Set to be the world's largest global gathering for #HuntingtonsDisease
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Hey @HDAI_ie @EmmaYhnell @BRAIN @EuroHuntington have you seen this? -Experiences of a walking group in South Wales? youtu.be/nyRJhwkvnvE
People with Huntington's Disease Experiences of a Walking Group

People with Huntington's Disease Experiences of a Walking Group

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

youtube.com
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Looking forward to seeing @UoLEngineering take part in #LightItUp4HD tonight for #HDAwarenessWeek. Thank you for your support
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So it's #hdawareness week! Physical activity in HD? Check this out! youtu.be/nyRJhwkvnvE @HDAwareness @HDA_tweeting @HDdennomore
People with Huntington's Disease Experiences of a Walking Group

People with Huntington's Disease Experiences of a Walking Group

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

youtube.com
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ActiveHD retweeted
HDBuzz (@HDBuzzFeed) profile picture
HDBuzz@HDBuzzFeed3 Apr 2017
Please RT this survey widely and spread by email, snapchat, snail-mail and carrier pigeon to all HD contacts especially those off the grid! nitter.cf/HDBuzzFeed/status/8489…
HDBuzz (@HDBuzzFeed) profile pictureHDBuzz@HDBuzzFeed3 Apr 2017
IMPORTANT for all #HuntingtonsDisease family members: @HuntingtonSG / @HDSA survey aiming to improve access to care goo.gl/k9W0Rx
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