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Joined March 2014
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Happy Halloween from Answer ALS! answerals.org/donate #Halloween
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Living with ALS, Advisory Board Chair Ed Rapp donated his blood and data. He believes ALS breakthroughs fall like dominoes and big data is the missing domino. Your donation keeps this dataset open for researchers in 35 countries. answerals.org/donate #AnswerALS
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Getting started on Neuromine costs researchers nothing. Build cohorts by genetic status or onset site, download specific data layers, and request matched biosamples and stem cell lines to validate findings. dataportal.answerals.org #AnswerALS #Neuromine
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Answer ALS and ALS TDI merged data on Neuromine, expanding to 2,500+ harmonized profiles. This scale helps scientists study rare gene carriers. Harmonizing new data costs up to $1M a year. Donations keep it free for global research. answerals.org/donate #AnswerALS #ALSTDI
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Advancing research requires building collaborative frameworks. Join Answer ALS at the 2026 NEALS Meeting in Clearwater from Oct 27 to 30. Terri Thompson presents our data integration approach and Neuromine expansion on Oct 29 at Poster 227. answerals.org.
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Answer ALS banked blood and spinal fluid from 1,000+ participants. Each sample connects to clinical data in Neuromine. Researchers can find a pattern in the data and test it directly on matched biological material. answerals.org/research/resea… #AnswerALS
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Scientists used Answer ALS proteomics data to find markers linked to ALS progression and published their findings in an open-access journal. Both the data and the paper are free for anyone to read, check, and build upon. answerals.org/research #OpenAccessWeek #AnswerALS
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Answer ALS is seeking researchers to mentor students. Young scientists are analyzing Neuromine data in a secure workspace. We pair them with experts to guide their projects. Help a student get started. answerals.org/guiding-the-ne… #AnswerALS
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The @NFL has committed $500K to Champion Insights, a study asking why athletes, veterans & first responders face up to 2x the risk of ALS. Grateful. 💙 Pictured: @SteveGleason & @nflcommish Roger Goodell at Domecoming. championinsights.org @ALSTDI @augiesquest
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For #OAWeek, the theme is "The Cost of Knowledge". Neuromine charges researchers nothing to access 250 terabytes of harmonized ALS data. Keeping it free costs up to $1M a year. Donations pay that cost so researchers never have to. answerals.org/donate #AnswerALS
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Shared Answer ALS data helped identify the KIF5A gene. Discovering new ALS genes requires pooling whole-genome sequences across many groups. Neuromine keeps these genomes open to qualified researchers to advance the search. dataportal.answerals.org #AnswerALS #Genomics
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As the Navy marks 251 years, retired Lt. Cmdr. Matt Bellina has joined Champion Insights. The remote study investigates why veterans, athletes, and first responders face higher ALS rates via at-home blood samples and surveys. ChampionInsights.org #NavyBirthday #AnswerALS
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ALS studies take months to set up. Patients do not have that time. Neuromine provides access to clinical data and stem cells from 1,100+ participants. Researchers can test drug targets immediately. Maintaining this head start costs $800k a year answerals.org/donate #AnswerALS
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Answer ALS and Cedars-Sinai are turning patient blood into motor neurons. Scientists test every stem cell line for purity and a true genetic match. You can access the largest carefully checked collection ever created via Neuromine. dataportal.answerals.org #AnswerALS #iPSC
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A Communications Biology study applied machine learning to Answer ALS motor neurons, identifying 110 protein biomarkers and a consistent drop in RPS29. This open data traces back to blood donations and remains free to use. answerals.org/research #ALSResearch
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Tonight the Saints host the Falcons to celebrate 20 years since the Superdome reopened. New Orleans' own Steve Gleason founded Answer ALS and built Neuromine, offering free data to 700+ global research projects. Help keep it open and growing: answerals.org/donate #AnswerALS
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High school students interested in STEM: join our virtual after-school program. You will work with real ALS research data, receive expert mentorship, and build valuable bioinformatics skills before you graduate. Email [email protected] to learn more.
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Neuromine provides 250TB of free, harmonized multi-omics data to researchers in 35 countries. Since 2021, it has fueled 720+ projects and nearly 100 peer-reviewed papers. In the coming weeks, we will look at the research built on this open portal. answerals.org
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ALS starting later in life is more common than assumed, yet older populations are often excluded from clinical trials. Neuromine provides free data for researchers to study ALS progression at every age. Learn more: answerals.org/research/under… #InternationalDayOfOlderPersons
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High school students interested in STEM: join our virtual after-school program. You will work with real ALS research data, receive expert mentorship, and build valuable bioinformatics skills before you graduate. Email [email protected] to learn more.
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