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BUR-EB

@BUREBproject

Changes in the Socio-economic Burden of Epidermolysis Bullosa in Europe 🇪🇺 Funded @EU_H2020 project under the EJP RD COFUND-EJP N° 825575

bur-eb.com/
Joined April 2022
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Introducing the consortium...
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Starting soon! #raredisease @hopital_necker #WCRSD #Paris #dermatology #dermtwitter 👉🏻wcrsd2022.com/en/program
Image from FIMARAD (@filierefimarad)
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📰𝗡𝗲𝘄𝘀 📰 A new literature review highlights the importance of studying the 𝗯𝘂𝗿𝗱𝗲𝗻 𝗼𝗳 𝗘𝗕: 👇👇 hcplive.com/view/epidermolys… #BUREBproject #dermatology #H2020 #EJPRD #research
Epidermolysis Bullosa Causes Significant Burden for Patients, Families, and HCPs | HCPLive

Epidermolysis Bullosa Causes Significant Burden for Patients, Families, and HCPs | HCPLive

Most research into the rare condition is focused on therapies and diagnostics, but investigators say it is important to better understand the disease’s impact on those around the patient.

hcplive.com
Welcome! 🙌 The BUR-EB project aims to analyse the changes in the socio-economic burden of Epidermolysis Bullosa in Europe. Check our website on our bio to know more about the project! 🦋 #raredisease #EJPRD #H2020 #research
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