Beth

And a lot of it is misogyny- they use words like hysterical and histrionic. Basically they don’t want a women’s disease, but a big macho EMERGENCY. Every disability is a personal emergency. I responded saying my friend had died in hospice a week ago and his response was to abuse.

It’s sad the angry white men insist on abusing a community which saw LC coming, warned against it, shared our resources/expertise, volunteered our time for trials and studies. Mass infxn means there is no studying any viral triggered illness without studying covid, or vice versa.

It’s just true. Long Covid is everything from myocarditis to PEM to diabetes. Both deserve vast amount of research because we don’t know what is behind the trigger. Utilising existing knowledge, (eg pacing, radical rest and LDN) is also wise, for those who have the PEM phenotype