Susan Schaeffer (@BiotechSusan) header
Susan Schaeffer (@BiotechSusan) profile picture

Susan Schaeffer

@BiotechSusan

President & CEO @AcadForPatients, former Editor @BioCentury. Preparing patients to contribute their expertise to drug development, regulation, access. She/her.

patients-academy.org
Joined September 2015
  • Tweets1.7K
  • Following905
  • Followers1.3K
330Media
Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)Photo by Susan Schaeffer (@BiotechSusan)
Exciting news from @AcadForPatients: The Patients' Academy for Research Advocacy is now a 501(c)(3) nonprofit!
The Patients' Academy for Research Advocacy (@AcadForPatients) profile pictureThe Patients' Academy for Research Advocacy@AcadForPatients3 Mar 2019
Thrilled to announce that The Patients' Academy for Research Advocacy has been granted 501(c)(3) status. We are so excited to get to work for patients and care partners. Learn about our mission and approach at patients-academy.org.
Image from The Patients' Academy for Research Advocacy (@AcadForPatients)
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Attention # nonprofit health leaders! Apply to @fastercures' LeadersLink mentor program for nonprofit leaders involved in biomed R&D. Learn more and apply here: bit.ly/2MUH2u5
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The algorithm is glitching
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I have three invite codes to bsky. DM me if I follow you here and you would like one.
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Good evening Patient Advocacy Twitter! What role do you all think research advocates should have in helping to improve diversity/representation in clinical trials? I’m interested in your thoughts about how individual advocates as well as PAOs can help.
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Cat-apult (sound on)
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Susan Schaeffer retweeted
Katie Pennick (@KatiePennick) profile picture
Katie Pennick@KatiePennick19 Jul 2023
barbie’s wheelchair vs my actual wheelchair: a critical comparison aka the best twitter thread i will ever post strap in #Barbie
a barbie doll with light skin and blonde hair sitting in her barbie wheelchair which is a pink manual wheelchair.

ALT a barbie doll with light skin and blonde hair sitting in her barbie wheelchair which is a pink manual wheelchair.

katie, a white woman with blondish hair, sitting in her pink manual wheelchair in the exact same pose as the barbie in the previous photo.

ALT katie, a white woman with blondish hair, sitting in her pink manual wheelchair in the exact same pose as the barbie in the previous photo.

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I have no words
Image from Susan Schaeffer (@BiotechSusan)
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NGL—Ms. Diana Ross was thrilling
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If there’s a cure for this
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I don’t want it
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Got a delivery today from one of the major carriers, and the driver was so wonderful I wanted to leave feedback online. After the first question, the system displayed a prompt to double check that I really meant to give a 5 out of 5. Mustn’t happen very often 🤣
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What’s so funny
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This cannot be right. My Vocabulary Size is about: 【30652】! What about you? arealme.com/vocabulary-size-… #EnglishVocabularySizeTest
English Vocabulary Size Test - How Many Words Do You Know?

English Vocabulary Size Test - How Many Words Do You Know?

Find out how many English words you know. A free 10-minute test that starts easy, adapts to your level and gives a scientific estimate, a 95% range and a certificate.

arealme.com
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Always the best
Image from Susan Schaeffer (@BiotechSusan)
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Attn @jeff_cranmer
Dr Isabella Rosner (@IsabellaRosner) profile pictureDr Isabella Rosner@IsabellaRosner16 May 2023
I've come across A LOT of good 17th- and 18th-century Quaker names over the past 3.5 years, as I've worked on my thesis. Now that my thesis is done and submission is near, it's time to share the more than 90 wildest early Quaker names I've found (in alphabetical order):
Image from Dr Isabella Rosner (@IsabellaRosner)
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I’ve missed this!
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“If courts can overturn drug approvals without regard for science or evidence,” the letter said, “or for the complexity required to fully vet the safety and efficacy of new drugs, any medicine is at risk for the same outcome as mifepristone.”
The New York Times (@nytimes) profile pictureThe New York Times
@nytimes10 Apr 2023
Breaking News: Executives from over 250 drug companies called for the reversal of a judge’s abortion drug ruling, warning it could disrupt the entire industry. nyti.ms/41ilSJW
Drug Company Leaders Condemn Ruling Invalidating F.D.A.’s Approval of Abortion Pill (Published 2023)

Drug Company Leaders Condemn Ruling Invalidating F.D.A.’s Approval of Abortion Pill (Published 2023)

More than 400 executives said that the decision ignored both scientific and legal precedent and that, if the ruling stood, it would create uncertainty for the pharmaceutical and biotech industries.

nytimes.com
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