CJD Foundation

Kelly crossed the NYC Marathon finish line yesterday, running every mile in honor of his brother Jeremy. Over 1M spectators were there to see the CJD Foundation on his chest or Jeremy's photo on his back. This journey is about more than a race—it’s about making a difference.

Join one of three virtual support groups in November. All families affected by prion disease are welcome to attend on November 2 or 17. If you are currently caring for a loved one with CJD/Prion Disease, please join us on November 10. To register, ✉️[email protected].

Families affected by prion disease, join us on Nov. 4 for a webinar with @Regeneron as they prepare for the launch of their clinical trial. To register, 📧[email protected] 📞 800-659-1991. This is a live session only and will not be recorded.

Want to learn more about prion disease? Join us for a Q&A webinar on October 22 via Zoom led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center. To register, please email [email protected].

Thanks to the researchers, experts and families who convened in Chicago for the CJD Foundation Family Conference! #CureCJD #CurePrionDisease #CJDFoundation

The CJD Foundation’s strong financial health and commitment to accountability and transparency have earned it a 5th 4-star rating from @CharityNav, America’s largest independent charity evaluator. cjdfoundation.org/charity-na…

The drug development panel at the @CJDFoundation Family Conference will share the status of drug development pipelines from Nobelpharma, Regeneron, Sangamo Therapeutics, Broad Institute of MIT and Harvard, Gate Bioscience, and Ionis Pharmaceuticals. secure.qgiv.com/event/2026cj…

Don't miss these upcoming deadlines for the Family Conference! > Friday, May 22nd at 11:59pm ET: Early Bird Registration Deadline > Monday, June 15th: Hotel Reservation Deadline Register now: secure.qgiv.com/event/2026cj…

The Family Conference Early Bird Registration Deadline is Friday, May 22nd at 11:59pm ET. Registration costs will increase to $250 on Saturday, May 23. Register today at: secure.qgiv.com/event/2026cj…

Jeremy Flowers was just 49 years old when CJD took his life—only 43 days after his diagnosis. Behind every diagnosis is a family forever changed. Read Jenny’s story and learn how the CJD Foundation supported them during their most difficult days: cjdfoundation.org/flowers-fa…

There are 2 more virtual support groups this month: May 12 @ 7pm ET: Current Caregiver Virtual Support Group May 19 @ 6pm PT: Western Region Virtual Support Group To register, email [email protected] or call our Helpline at 1-800-659-1991.

The CJD Foundation is proud to announce our 2026-27 Research Grant and Fellowship Applications are now open! 💰 Research Grants: Up to $100,000 🎓Fellowships: Specialized training for the next generation of prion disease experts. 🗓️ LOI Deadline: July 16, 2026

Get the latest updates from leading CJD experts and researchers 📷at the CJD Foundation Family Conference. Knowledge empowers. Join us in July in Chicago. #CJDResearch #CJDFoundation 📷 Register now: secure.qgiv.com/event/2026cj…

Please see the @broadinstitute's Community Statement on their first-in-human clinical trial to evaluate an investigational drug called PrP-siRNA in patients diagnosed with prion disease. cjdfoundation.org/wp-content…

This has been a year of promising progress and deep engagement by our prion disease/CJD community. Please keep the momentum going! You can help us continue this work in 2026 by donating to the CJD Foundation Annual Fund. secure.qgiv.com/event/2025an…

On 11/10 Rep David Valadao (R-CA-22) introduced a bipartisan resolution supporting the goals and ideals of Creutzfeldt-Jakob Disease Awareness Day in the House. On 11/12, Sen Jon Husted (R-OH) introduced a resolution in the Senate. congress.gov/.../senate-reso… congress.gov/.../house-resol…

Kicking off day 2 of the family conference with the Keynote Address in Honor of Dr. Pierluigi Gambetti by Glenn Telling, PhD, Director, Prion Research Center @ColoradoStateU #CJDFoundation

Join us today, Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email [email protected] or call (800) 659-1991.

Join us tomorrow, Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email [email protected] or call (800) 659-1991.

Join us Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email [email protected] or call (800) 659-1991.