Meet the faces of the #chronicallychill #Podcast ποΈ!
@alove_1980 @LingMendoza00 @LordBeeBrain @jazmen829 @bigjazz_724
Check out their bios on the official site (link in bio)
Chronically Ch(ill)ποΈ retweeted
What people donβt realize is that even prolonged use of mobility aids can disable you further (not the way the Ableds think).
Like Iβve been displaying signs of arthritis in my hands and shoulders since I was 25 because I started using crutches at 5.
Chronically Ch(ill)ποΈ retweeted
If you canβt even spell my illness or give me a quick summary of what it is you DEFINITELY shouldnβt be giving me advice about it.
Chronically Ch(ill)ποΈ retweeted
Things you shouldnβt say to someone who has chronic illness.
"People your age don't get that sickβ
"It can't really be that badβ
βYou are just being dramaticβ
βIf you just stopped thinking about it, it would go awayβ
What else do you hate hearing?
Chronically Ch(ill)ποΈ retweeted
One can still be disabled but not qualify for disability benefits. #EpilepsyAwarenessMonth #NEAM
Chronically Ch(ill)ποΈ retweeted
Proud of myself for not letting this drag me into a depressive state. I'm too antsy to go back to bed, though.
Chronically Ch(ill)ποΈ retweeted
Just a reminder that disabled people need rides to go grocery shopping, doctorβs offices, to the bar, to the cafeβnot just to cast a ballot that impacts you.
Due to recent events, the members of the Chronically Ch(ill) Podcast will be taking an undisclosed sabbatical to regroup.
We promise we won't be gone for too long!
Until then, everyone be safe and be blessed! π
Chronically Ch(ill)ποΈ retweeted
Today is International LGS Awareness Dayβ’! π
Join us as we shine a light on #LennoxGastautSyndrome (LGS), a rare and severe form of #Epilepsy. By spreading awareness, we can support families affected by LGS and work towards better treatments and understanding.
#NeuroTwitter
From our very own, Jeanie πππ
#EpilepsyAwarenessMonth
#EpilepsyAwareness
#ChronicIllness
#Seizures
#Epilepsy
#ChronicallyChill #Podcast
It has now been 16 yrs since being diagnosed with #epilepsy. Being diagnosed later in life was a shock and also a challenge I wasnβt ready for. I love being able to help others learn more about epilepsy because Iβm still learning as well. #EpilepsyAwarenessMonth πβ¨πͺπΎ#letsdothis
youtu.be/8bCG8vfc-EE?si=B4PHβ¦
Episode 3 of The Chronically Ch(ill) Podcast is here!
βMe, My(self-advocacy), and Iβ can be watched now on YouTube!
Hope you enjoy! ππ£οΈποΈ
10 more minutes to go! π
Hey, everyone!
Chronically Ch(ill) Episode 2 drops Friday, 12am EST!
Catch the premiere here: youtu.be/9yao2BeM7-E?si=i80Fβ¦ππ£οΈποΈ
Hey, everyone!
Chronically Ch(ill) Episode 2 drops Friday, 12am EST!
Catch the premiere here: youtu.be/9yao2BeM7-E?si=i80Fβ¦ππ£οΈποΈ
WE'RE LIVE!!!
youtu.be/oHctycTAoQs?si=YIfoβ¦
Chronically Ch(ill)ποΈ retweeted
βI think the most frustrating part of living with fatigue, is that people donβt get it..But my body doesnβt work like that, sleeping does not give me energy back, I donβt wake up with full energy again": buff.ly/3TnIh6z by @bloomingmindxx #ChronicFatigue #InvisibleIllness
Chronically Ch(ill)ποΈ retweeted
.Our volunteer Dave, recently had a video telemetry stay at the Clinical Neurophysiology Department, Royal Infirmary in Edinburgh. He kept a diary of his experiences.
You can read part one of his diary on our website: buff.ly/3Yqi8r7
#VideoTelemetry #EEG #Epilepsy
Chronically Ch(ill)ποΈ retweeted
A number of HCWs responded to my post about masking and said they WOULD mask but have been instructed not to because it scares the patients.
This is why we need good public health information. We need people to understand that someone in a mask is NOT a threat.
Chronically Ch(ill)ποΈ retweeted
βΌοΈβΌοΈβΌοΈβΌοΈ
This is so important to know! Please do not assume we are OK just because we appear so. Until we are fully coherent and responding to you, WE ARE NOT! #epilepsyawareness

















