Author & Dementia Activist - Speaker - Stronger than LBD-DZNE/Patient Council -WHO/Brain Health Unit
München / Germany
Joined January 2014
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Genial und so wichtig dieses Projekt 👏WIR sind / wollen / müssen eine „ Kümmerer Gesellschaft „sein - BITTE mitmachen 🙏
An- und Zugehörige von Menschen mit #Demenz gesucht, die an einer online-Befragung teilnehmen wollen, bitte RT, jede/r hilft! Gemeinsam versuchen #DAlzG #DZNE umfassendere Info der Situation zu Hause zu erlangen. Ein Beitrag zur #NationaleDemenzstrategie dzne.de/PreBeDem
ALT Aufruf Befragung Angehörige von Menschen mit Demenz; link: www.dzne.de/PreBeDem
Helga Rohra retweeted
Our Dementia in Europe Yearbook 2022 is now out! This edition examines #employment and #SocialProtection for people living with dementia and their #carers.
You can download it here: bit.ly/AE2022Yearbook
My deepest condolences to you Isoko🤗- I will keep Geert in Memory as always smiling and a Touch of heart warming humour .
R.I.P 😢
We were very sad to learn of the passing of Geert Van Laer, former member of the European Working Group of People with Dementia. We offer our deepest condolences to his wife Ikuko and their two sons
alzheimer-europe.org/news/me…
Challenging topic !Well done with passion and responsability by the authors 👏Appreciation for the AE team / Lead :Dr.Dianne Grove👏
Honored to be a Co- author and give a strong voice 👍
Today, we launch a new guide on sex #gender and #sexuality in the context of dementia.
@DianneGove & colleagues stress importance of people with dementia feeling accepted, respected & safe to be open about their gender identities & sexual orientations.
bit.ly/AEGuide_SexGenderSexu…
Amazing and remarkable the work WITH and for pwd all the Years 👏🎤Congrats DAI with its founding pioneer Kate Swaffer ❤️Congrats to all who HAVE and Will support the Rights of us 👍
It’s remarkable we made it this far, with such minimal funding. 3 co-founders have passed, 5 left. They had a huge vision for improving the future for people with #dementia and increasing the numbers of #advocates globally which we continue to do via #advocacy & #P2P #support
Der Patientenbeirat trauert um Bruno - Deine Expertise und sogar Leichtigkeit - dein MUTmachen - YES - WE CAN 👍- DU hast Pionierarbeit geleistet - WIR und das DZNE führen diese weiter!
R.I.P🙏
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I remember Sue well - her gentle wisdom 🙏R.i.P Dear friend !
You - as all the others who left - your Legacy Never forgotten ❤️
Members pay tribute to co-founder Sue Stephens dementiaallianceinternationa… RIP Sue, your contribution to setting up #DAI will always be missed. @KateSwaffer @AlisterRoberts4 @AmyShives @chrissythelker @AgnesHouston14 @ContactHelga @jball49 @AlzDisInt
Helga Rohra retweeted
#DAI Observes the International Day of People with Disability #IDPWD2022 @AlisterRoberts4 @KateSwaffer @IDA_CRPD_Forum @chrissythelker @ContactHelga @emilyong67 @JacquelineWMW @AlzDisInt dementiaallianceinternationa…
Helga Rohra retweeted
The early impacts of COVID-19 on people living with dementia: part I of a mixed-methods systematic review
@KatarzynaLion @CatherineTalb @DZNE_Thyrian @LorenzKH @Aida_Suarez_ @HilaryTetlow @jc_cannon13 @EmilyhmWharton
tandfonline.com/doi/full/10.…
Helga Rohra retweeted
This kind of thing never gets old for me
The German edition of my book is published by @GoldmannVerlag today
#brainfog
#brainhealth
#LongCovid
Helga Rohra retweeted
Second day of @eufingers project meeting. @Ana_M_Diaz is presenting the Public Involvement work with the Advisory Board @CindyBirck
High appreciation for DZNE - with Dr.Saskia Kuliga 👏New ways : pwd as co - readearcher in projects 👍-🎤Mutual benefit and pioneering work on different Levels 👏👏
(continued)
INCLUDE research project: dzne.de/en/research/studies/… with project partners and dementia advocates @JimMannBC and @ContactHelga
Congrats to my Friends - the pioneers in raising Awareness 👏Congrats to AE with its amazing team for giving us a Voice 👏
Today, current & past members of the European Working Group of People with Dementia #EWGPWD will meet, to mark the group's 10th anniversary. Congratulations & thanks to each and every one of you for your vital work!
Read our celebratory publication, here bit.ly/Celebrating10YearsOfT…
Dieser Slogan inspiriert mich als Aktivistin- einfach genial 👏
Challenge #08: #Demenz besiegen.
@DZNE_de
👉 helmholtz.de/forschung/helmh… (hk)
ALT Symbolbild mit Text: Demenz besiegen.
Helga Rohra retweeted
How can policy makers, health & social care students and service providers improve the lived experience of people with dementia? ⤵️
alzheimer-europe.org/resourc…
Great Event 👍I Love the title : Reimagining Ageing 👏
The GSA 2022 Annual Scientific Meeting starts today! We are excited to be back together in person. The theme is Embracing Our Diversity. Enriching Our Discovery. Reimagining Aging. Watch for more posts on various #GSA2022 activities. Visit gsa2022.org
Beachtlich und wichtig: WAS und WIE geht post diagnostic support?!Danke für diese top SPECIAL Edition 👏
Alzheimer Europe Konferenz 2022: Hier geht's zur ersten Ausgabe unserer kleinen, aber feinen SPECIAL EDITION-Reihe unseres digiDEM Bayern Science Watch Newsletters mit Beiträgen von Anne Keefer und Florian Weidinger. digidem-bayern.de/?mailpoet_…
@UniFAU @AlzheimerEurope
Ricordo l‘inizio👏Congratulazione 👍
Secondi all’Anti-stigma Award di @AlzheimerEurope!
Il nostro sito dementiafriendly.it/ e la campagna #nontiscordaredivolermibene riconosciuti come iniziative che puntano all’abbattimento dello stigma e alla promozione di un’immagine positiva delle persone con demenza.
#32AEC
Helga Rohra retweeted
Want to improve your clinical practice? Access 100s of hours of expert data insights in 8 therapy areas and 150+ specialities. Learn from anywhere, for free (forever) . Register for @touchNEUROLOGY medical education platform
alzheimer-europe.org/news/to…