CureGRIN is a parent-run foundation committed to improving the lives of people living with GRI disorder. #RareAsOne #GRIdisorder #raredisease
Joined June 2019
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World Brain Day 2024
This year’s theme of Brain Health and Prevention emphasizes the importance of early detection and effective management in neurological disorders, like GRI disorders.
Join us in spreading awareness for GRI disorders.
#worldbrainday #brainhealth #awareness
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CureGRIN retweeted
Our teams Neurvati and @GRIN_tx look forward to engaging with families and sharing how we are advancing our research efforts in pediatric neurodevelopmental disorders including GRIN-related disorders during @CureGRIN’s #MeetandGRI in London tomorrow.
During @CureGRIN’s #MeetandGRI, our CMO Michael A. Panzara will deliver a presentation at 1:40pm on March 2 to explore our targeted approach to the treatment of GRIN-related disorders and other types of pediatric neurodevelopmental disorders. Learn more: curegrinfoundation.salsalabs…
Take your mind off fb and insta outage with a cool podcast! curegrin.org/unlocking-bryso…
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Austin's Purpose is matching up to $12,000 over the next 12 hours left in Giving Tuesday. There's still time to double your impact.
Donate at bit.ly/2ZOqvhm
Double your IMPACT! 'Tis the season for goodwill and gift giving. Give to CureGRIN Foundation today and unlock a matching gift of up to $10,000 from the Coleman Family!
Give our kids the gift of a CURE! #givingtuesday
The most common cause of permanent visual impairment in children is Cortical Vision Impairment or #CVI. Did you know that CVI is also a leading symptom in #GRIdisoder patients? #WorldSightDay
Check out this resource from #littlebearsees to learn more!
bit.ly/3CR4brz
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#GRIcon2023 was AMAZING!
Check out one of our Keynote Presentations, The Path to Drug Approval, with speakers Dr. Michelle Campbell (FDA), Dr. Michael Panzara (Neurvati Neurosciences) and Dr. Michael Tranfaglia (FRAXA).
bit.ly/3MECXJx
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You can help fund research into cures and therapies for GRI Disorders by donating to CureGRIN! Donate today at bit.ly/3tuTuVI
#GRIN1 #GRIN2A #GRIN2B #GRIN2D #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2
#GRIawareness #GRIDisorder
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Meet Sofia!
Read about Sofia at curegrin.org/sofia
#GRIN1, #GRIN2A, #GRIN2B, #GRIN2D #GRIawareness #GRIdisorder #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2
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On this #FeelgoodFriday, check out James Welton and his new wheels! Simple things like riding a bike did not seem like a reality for James Welton but guess what?? It is now! #welovesomeonerare #griawareness #gridisorder
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Meet Ben!
Read about Ben at curegrin.org/ben
#GRIN1, #GRIN2A, #GRIN2B, #GRIN2D #GRIawareness #GRIdisorder #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2
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Patients with GRIK2 variants have symptoms including intellectual disability, developmental delay, seizures, visual, or sensory abnormalities.
#GRIK2 #GRIawareness #GRIdisorder
Meet Oliver!
Read about Oliver at curegrin.org/oliver
#GRIN1, #GRIN2A, #GRIN2B, #GRIN2D #GRIawareness #GRIdisorder #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2
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Thanks to YOU, our donors and supporters, CureGRIN is excited to announce that we are funding 5 research projects for a total investment of $652,500. The announcement was made by CureGRIN CEO Keith McArthur last week at GRI Conference 2023.
curegrin.org/curegrin-awards…
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GRIA4 is expressed at high levels in several brain regions including the cerebellum and hypothalamus. #GRIA4 #GRIawareness #GRIdisorder
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Meet Elio!
Read about Elio at curegrin.org/elio
#GRIN1, #GRIN2A, #GRIN2B, #GRIN2D #GRIawareness #GRIdisorder #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2
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The GRIA3 A653T mouse was found to show changes in sleep patterns.
#GRIA3 #GRIawareness #GRIdisorder
Meet Jersey!
Read about Jersey at curegrin.org/jersey
#GRIN1, #GRIN2A, #GRIN2B, #GRIN2D #GRIawareness #GRIdisorder #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2
An integrated patient registry is critical to finding a cure. CureGRIN is investing in registries and natural history studies. Donate at bit.ly/3tuTuVI
#GRIN1 #GRIN2A #GRIN2B #GRIN2D #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2
#GRIawareness #GRIDisorder
