Sexual dysfunction and POTS - A study by Dr. Blitshteyn shows POTS impacts men and women with reduced desire, satisfaction, and Erectile function in men. This was a study partially funded by DINET. mdpi.com/2077-0383/13/8/2274
DINET retweeted
Happy to see our paper on neuropsychiatric manifestations of #MCAS published today.
🧠 Depression, anxiety and panic disorder were highly prevalent
🫀 #Dysautonomia/#POTS and #EDS were common comorbidities
‼️ Neuropsychiatric manifestations improved or resolved with mast-cell-directed therapies.
#NeuroTwitter #MedTwitter #Psychiatry #Neurology
mdpi.com/2075-4426/13/11/156…
DINET retweeted
WE NEED YOUR HELP!
As a part of this year's DINET Dyscussion series, DINET is asking you to share a video about living with dysautonomia.
Sharing is EASY with our step-by-step tutorial!
youtu.be/1eBNsav2sLA?feature…
#dysautonomia #pots #ehlersdanlos #chronicillness #invisibleillness
Meet Tina, Licensed Clinical Mental Health Counselor (LCMHC) and caregiver, the third speaker in this year's DINET Dyscussions!
dinet.org/.../dys.../dysauto…
#dinet #dysautonomia #DysautonomiaAwareness #chronicillness #invisibleillness #pots #potssyndrome #ehlersdanlossyndrome
Meet Lori, Master’s level clinician and caregiver to someone with chronic illness, the second speaker in this year's DINET Dyscussions!
dinet.org/info/dysautonomia-…
#dinet #dysautonomia #dysautonomiawarrior #DysautonomiaAwareness #chronicillness #chronicpain #chronic #pots
Meet Lori, Master’s level clinician and caregiver to someone with chronic illness, the second speaker in this year's DINET Dyscussions!
dinet.org/.../dys.../dysauto…
#dinet #dysautonomia #DysautonomiaAwareness #chronicillness #invisibleillness #pots #potssyndrome #ehlersdanlossyndrome
WE NEED YOUR HELP!
As a part of this year's DINET Dyscussion series, DINET is asking you to share a video about living with dysautonomia.
Sharing is EASY with our step-by-step tutorial!
youtu.be/1eBNsav2sLA?feature…
#dysautonomia #pots #ehlersdanlos #chronicillness #invisibleillness
Meet Susanne, retired RN living with POTS and DINET forum moderator, the first speaker in this year's DINET Dyscussions!
dinet.org/.../dys.../dysauto…
#dinet #dysautonomia #dysautonomiawarrior #DysautonomiaAwareness #chronicillness #chronicpain #invisibleillness #pots #potssyndrome
We are SO excited to share with you that DINET Dyscussions is BACK this October for Dysautonomia Awareness Month!
dinet.org/info/dysautonomia-…
#dinet #dysautonomia #DysautonomiaAwareness #pots #potssyndrome #ehlersdanlossyndrome #chronicpain #chronicillness #chronicfatigue
DINET retweeted
Excited to have the first paper published today in our @JPM_MDPI special issue on #Neurology and #autonomic disorders that I am guest editing. This is a nice study demonstrating that at home measurements of supine and standing blood pressure is more sensitive than in-office BP measurement to identify orthostatic hypotension in patients with #Parkinsons disease.
#NeuroTwitter @RuhoyMD @JenniferRobblee
mdpi.com/2075-4426/13/9/1324
The more data collected the better we understand what can help or what can hurt
If exercise is proven to be ineffective or harmful, it'll be demonstrated by data in the trial so while many people are worried/upset, #Science will tell us if and what type of exercise is beneficial or harmful to patients. Read my article on #POTS here:
brainandlife.org/articles/wh…
Things to think about when preparing to apply for disability
#POTS #Dysautonomia #chronicillness
youtu.be/Fn-B1Dz7F78
DINET retweeted
We share Diana’s concerns about RECOVER, but are hopeful that the autonomic trial will lead to some progress in clinical care, not because of RECOVER, but despite RECOVER. The autonomic experts involved have had their ideas watered down by people who no nothing about autonomics.
DINET retweeted
Have you developed new or worsening #POTS/#dysautonomia after a COVID vaccine? The National Academies is holding a public hearing on COVID-19 vax adverse events on March 30, 12pm EDT. Share your stories & ask them to review the literature on POTS/dys. nationalacademies.org/event/…
DINET retweeted
We are just ONE week away from our virtual EDS ECHO Summit Series: #HypermobilitySpectrumDisorders (HSD) conference, taking place on April 1.
Up to 5.5 CME/CEU/CE Credits available for health professionals to claim for sessions that are viewed LIVE. ehlers-danlos.com/events/eds…
Today is Long COVID Alliance awareness day. If you or a family member has lingering symptoms after a COVID-19 infection - visit longcovidalliance.org
DINET is a proud member of the Long COVID Alliance organization. #POTS #LONGCOVID #dysautonomia #chronicillness
Compass Points the Way by Alexis Kline is the story of a young life interrupted by POTS, as told by a young woman living with POTS. This is a worthwhile read for patients and caregivers of any age. Read a preview bit.ly/3LBK9q3 #POTS #dysautonomia
Receiving a new diagnosis can come with many mixed emotions. This video shares the struggle many of us go through during and after finding out the name of a new illness.
youtu.be/ttegjLe8Iyw
#dysautonomia #pots #potssyndrome #chronicillness #chronicpain #invisibleillness
A Gentle Reminder: Just because you don’t have an official diagnosis, doesn’t make your symptoms or journey any less valid. It can take months to years to figure out what is going on. Trust yourself!
#dinet #dysautonomia #chronicillness #chronic #pots #longcovid
DINET retweeted
Just had this patient who yet again was misdiagnosed with #FND. Patient did not have FND: she had #POTS, #EhlersDanlosSyndrome, large fiber peripheral #neuropathy and #MCAS. Misdiagnosis with FND is a problem in our field that needs to be addressed.
#NeuroTwitter #MedTwitter
