DSRF_UK

Families matter – from pregnancy and diagnosis, across life, until end of life. Key Messages: “Families often feel confused and discouraged when care is poorly coordinated or when families & health professionals do not work together. Health care can be done better by listening

The transition into adult care – what can go wrong, and solutions. “Failure to implement high-quality, timely, structured transition planning results in gaps in continuity, contributing to poorer health outcomes, including the development of multimorbidity & increased rates of

Care does not always meet needs – why this happens. “…people with Down syndrome face wide-ranging barriers in accessing or receiving quality health care, including poor coordination of care, insufficient clinician knowledge of Down syndrome-specific health needs, and financial

Health needs are higher – health conditions that are more common among people with Down syndrome. “Historical data show that people with Down syndrome die approximately 28 years earlier than the general population, most commonly from congenital heart anomalies and respiratory