Developing a decision aid to support individuals with MND to decide whether to have a gastrostomy feeding tube|@mariecurieuk & @mndassoc funded|@unisouthampton
Southampton, England
Joined January 2019
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Here's the link to the decision aid for professionals mndassociation.org/professio…
And this is the one to share with patients mndassociation.org/support-a…
Or just google 'gastrostomy tube is it for me'
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We are currently making a short film to promote 'Gastrostomy tube - Is it for me?' If you have MND, have used the decision aid and might be interested in taking part, please get in touch asap. We would come to you to film @mndassoc
Excited to announce the launch of the 'Gastrostomy tube - Is it for me?' decision aid on the MND Association website. This decision aid was developed as part of the DiAMoND study.
mndassociation.org/diamond-p….
Excited to announce the launch of the 'Gastrostomy tube - Is it for me?' decision aid on the MND Association website. This decision aid was developed as part of the DiAMoND study.
mndassociation.org/diamond-p….
DiAMoND Study retweeted
A new tool has been launched to support people with #MND to make decisions about tube feeding. ‘Gastrostomy tube – is it for me?’ helps people explore whether they want the intervention now, and allows them to revisit their decision at a later time.
gastrostomychoice.co.uk
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We are looking for #HCPs to share your thoughts on how the #MND decision aid (gastrostomychoice.co.uk) can be integrated into clinical practice. Online focus groups will be held on 18th, 19th and 20th May. Please get in touch: [email protected] if interested.
We’re looking for people with #MND (plwMND) to take part in our @unisouthampton study to evaluate a decision aid designed to support plwMND making the decision on whether to have a gastrostomy tube. View the decision aid & find out more here: gastrostomychoice.co.uk – at Southampton, England
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We are looking for #HCPs to share your thoughts on how the #MND decision aid (gastrostomychoice.co.uk) can be integrated into clinical practice. Online focus groups will be taking place towards the end of May. Please get in touch: [email protected] if interested.
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We are looking for #HCPs to share your thoughts on how the #MND decision aid (gastrostomychoice.co.uk) can be integrated into clinical practice. Online focus groups will be taking place towards the end of May. Please get in touch: [email protected] if interested.
If you have #MND and are considering a feeding tube, please take a look at our decision aid at gastrostomychoice.co.uk & let us know what you think of it. Carers' and health professionals' views also wanted
@mndassoc
@mariecurieuk
Please retweet @westsurreymnda @MNDA_Leics @MNDA_Chiltern @mndawss @WL_MND @MNDA_WestYorks @MNDAWIRRAL
@MNDA_WSxS
@MNDAPortsmouth @MNDANorWave
@MNDANWK
@MNDA_NI
@MNDA_RWB
@MNDA_SWSurrey @MNDA_Exeter
@MNDAEastBerks @MNDAEastSussex
@MNDAShropBranch
@MNDASWSurrey
@MNDsessex
Please retweet @mndNIandGroup
@mndassocWALES
@MNDACheshire
@MNDACARDIFFVALE
@MNDCornwall @RCNWales @RCNScot @theABN_Info @PCRScommittee
If you have #MND and are considering a feeding tube, please take a look at our decision aid at gastrostomychoice.co.uk & let us know what you think of it. Carers' and health professionals' views also wanted @mndassoc @mariecurieuk
We’re looking for HCPs working with people with #MND (plwMND) to help evaluate a decision aid designed to support plwMND making the decision on whether to have a gastrostomy tube. View the decision aid & find out about the @unisouthampton study here: gastrostomychoice.co.uk
We’re looking for people caring for someone with #MND to provide feedback on a decision aid designed to support people with MND. View the decision aid & find out more about the @unisouthampton study here: gastrostomychoice.co.uk
We’re looking for people with #MND (plwMND) to take part in our @unisouthampton study to evaluate a decision aid designed to support plwMND making the decision on whether to have a gastrostomy tube. View the decision aid & find out more here: gastrostomychoice.co.uk
Phase 3 of the @DiAMoNDstudy_ is ready to go! Look out for further tweets to find out more #MND #MNDresearch #decisionmaking
Can you help with the important research below? – at Winchester, England
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Do you provide care to adults with a life-limiting illness or support people affected by domestic abuse? Please complete our survey on existing service provision as part of the @arc_wessex @DalliStudy
Go to forms.office.com/r/akJhD8Rpq… to access the survey.
Thank you.
We’re still looking for #carers & #HCPs for phase 2 of the study. An exciting opportunity to share your feedback on a decision aid to support #plwMND. Please get in touch: [email protected] 🤞🏼 – at Winchester, England
Researchers from @unisouthampton are looking for carers of people with #MND & healthcare professionals to provide their thoughts on the development of a web-based decision aid for people considering a feeding tube.
Take part in the @DiAMoNDstudy_ ⬇️
mndassociation.org/take-part…
