Pinned Tweet
This new clinical statement is definitely worth checking out, alongside one about aspiration pneumonia. Really useful evidence based guidance. I'm proud to have been involved in the process. @TheAPPMuk #pedpc
BTS Clinical Statement on the prevention and management of community-acquired pneumonia in people with learning disability thorax.bmj.com/content/78/Su…
@BTSrespiratory
Kate Renton retweeted
HCP insights emphasize the need for a standardised tool to assess breakthrough pain in paediatric palliative care, to enhance patients’ pain related diagnosis, management, and quality of life mdpi.com/2756408 #mdpichildren via @MDPIOpenAccess
Proud to have contributed to this.
BTS clinical statement on aspiration pneumonia
@BTSrespiratory thorax.bmj.com/content/78/Su…
1
287
Kate Renton retweeted
My interview with the Guardian on conflict, difficult decisions and the Archie Battersbee case amp.theguardian.com/world/20…
Kate Renton retweeted
Now @TimWarlow is updating on the GI Dystonia guideline development.
First, a RAND process has agreed a definition.
@TheAPPMuk guideline coming soon
Totally awesome to hear the incredibly hard work put in by the @TheAPPMuk guidelines groups... Though the evidence base in #pedpc is growing, their literature searches highlights that sparsity remains.
Replying to @HeardOrg
@OnRoadMedia present on their role in changing the story for #pedpc at the @TheAPPMuk study day. Importance of framing the story:
centring the child, teamwork, all-encompassing care
1
1
Kate Renton retweeted
Are you a health professional in a Neonatal Unit?
*WE NEED YOUR HELP*
...on study design, outcome measures + recruitment for our end-of-life care research
Join us for an online meeting on Wednesday 22 June, 1-3pm (via Zoom)
Contact: [email protected]
@BAPM_Official
Dr Lynda Brook and @AlderHey team talking @TheAPPMuk study day about palliation in patients with darling Fontan's. #pedpc
Replying to @IsobelMB
@IsobelMB talks @TheAPPMuk study day about the importance of full MDT discussion when thinking about initiating non-invasive ventilation in children with LLC. Really thinking about benefits/burdens and discussing this with patients/parents/carers #pedpc
Kate Renton retweeted
The latest version of Basic Symptom Control in #pedpc is now out. Please do download (but be mindful of printing this gardgantuan volume!):
togetherforshortlives.org.uk…
Kate Renton retweeted
All the awesome things we do... Do take a look at our website and sign up to support us. appm.org.uk/about-appm/join-… #pedpc
Really powerful data from @lornafraser10 in the @TheAPPMuk research day regarding the health of mothers of CYP with LLC: associated with poorer physical health outcomes (eg. cardiovascular disease) as well as worse mental health compared to mothers of well children. #pedpc
We must acknowledge this and work towards better provision to support the mothers (and fathers/carers) of children we care for. Support in coordinating their child's care would be a start...
1
1
I understand that nurse coordinators have been effective in Ireland. It would be great to know how this has improved the parent/carer experience. @FionaMcElligott
2
1
Feeling inspired @TheAPPMuk research day by variety of research coming out in #pedpc . From 'place bonding' to 'chaplaincy and spiritual care' so far...
Kate Renton retweeted
'Grief is a normal response to loss of any kind.'
Yet we are unfamiliar with it. We don't know how to help.
Here's a helpful animation from @Shapesofgrief
Take a look, and pass it on. You never know who might find this is the very insight they need.
youtube.com/watch?v=Wyj1sV3z…
Great to be @TheAPPMuk research study and see people face to face again! @ChristinaLiossi now talking about the PARAMOUNT study and the importance of pain management. #pedpc
















