ENDO1000 (@ENDO1000project) header
ENDO1000 (@ENDO1000project) profile picture

UK-wide project that will gather data from apps, smartwatches, healthcare records & biospecimens from 1000 people with endometriosis #TALKEndo💭

Edinburgh, UK
Joined September 2022
Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)Photo by ENDO1000 (@ENDO1000project)
We’re taking a step back from posting on X and our account will no longer be monitored. You can keep up to date with us by subscribing to our newsletter, keeping an eye on our website, or following us on other platforms - take a look at the link in our bio for details! ❤️
133
We're out of office for the festive period 🎄 We hope you have a great end to this year and start of the next. We're so grateful for the support we have received this year - none of this would be possible without you ❤️ We'll be back 5th January!
2
183
We are looking for @thekiltwalk participants to support #MyalgicEncephalomyelitis research @EdinUni_IGC, #MND research @EuansCentre, #MultipleSclerosis research @AnneRowlClinic, #endometriosis research @ENDO1000project, #dementia research, #FND research and #LGSOC research.
Here are five good reasons to Kiltwalk in 2026… ✨ Make Santa proud, sign up now! 😉🎅 👉 thekiltwalk.co.uk/events #FestiveFun #Kiltwalk
2
4
420
It's all about progress! On Friday, we presented how far ENDO1000 has come at the @eumetriosis consortium meeting in Brussels Through @eumetriosis we have also partnered with a team in Croatia who will be recruiting participants outside of the UK too.🙌
3
164
WOMEN | HEALTH Endometriosis Last year saw the launch of #TalkEndo @ENDO1000project where a £1Million fund raising target was set. This week the half way mark was achieved. Huge congratulations to all @ENDO1000project and Thank You to all who have donated. Very proud to be a founding ambassador @TALKEndo 💛 More ⬇️ mariemacklin.co.uk/latest-pr…
We have reached our half way goal after a very generous donation of £131,000. Thanks our community fundraisers, the support provided through philanthropic contributions and research grants, including funding from the EU, we have reached this incredible milestone!
4
9
771
We have reached our half way goal after a very generous donation of £131,000. Thanks our community fundraisers, the support provided through philanthropic contributions and research grants, including funding from the EU, we have reached this incredible milestone!
1
1
2
4
1,495
Our ambassador Candice and her team took part in the Kiltwalk for ENDO1000. 👟 She spoke to the fundraising team about her advocacy work, fundraising journey and the hope she still has for the future of endometriosis care. You can read her story here: giving.ed.ac.uk/fundraise-yo…
2
3
8
306
It's the one-year anniversary of our #TALKendo campaign! @MarieMacklin has shared her reflections on her website: mariemacklin.co.uk/1266-2/ 💭 We want to say thank you to Marie, our ambassadors, and everyone who has supported ENDO1000 so far! 🎉
2
6
1,571
#MondayMotivation The beauty of Kiltwalk is that you can fundraise for ANY charity close to your heart!❤️Which charity will you be walking for in 2026? 👉 Tag them in the comments to let them know!
1
3
230
It can hold you back. 💼 Thank you to ambassadors Elizabeth, Lyndsey and Catherine for sharing their experience with us #TALKEndo 🩸
1
5
183
We loved last weeks UK Endometriosis Network event 👏 Taking place at the University of Edinburgh we heard so many speakers sharing the work they do to help those living with #endometriosis, and about the life-changing research taking place in labs across the UK.
1
5
259
Researchers from the University of Oxford have seemed to uncover why people with #endometriosis are more likely to develop other autoimmune disorders. Our co-director Andrew Horne offered comment in the @newscientist article! You can read more at the link in our bio 🔬
1
7
11
1,646
We’re at the UK Endometriosis Network today, with a number of partners, clinicians and researchers discussing what the future of endometriosis could be #TALKendo #EndoNet25
9
298
When did you last have to plan months ahead for work? ☝️ More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
1
6
1,128
Massive thanks to the awesome @endowestlothian for raising £1,400 in aid of endometriosis research @ENDO1000project Check out their Team JustGiving page justgiving.com/team/ewwl
Kiltwalk ☑️ What a fantastic day with these amazing ladies! 💛 I’m so proud of us and our wee team. A huge thank you to everyone who has donated to our JustGiving page – your support means the world. 💛 @ENDO1000project @exppect with Dionne, Tracy, Robyn, Holly & me!
3
5
331
#Endometriosis doesn't just affect personal life. Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
1
9
18
1,505
Kiltwalk ☑️ What a fantastic day with these amazing ladies! 💛 I’m so proud of us and our wee team. A huge thank you to everyone who has donated to our JustGiving page – your support means the world. 💛 @ENDO1000project @exppect with Dionne, Tracy, Robyn, Holly & me!
2
4
1
9
664
Retrograde menstruation - what's it got to do with #endometriosis? ⬇️
1
2
519