ERN-Skin

Join us today from 4:00- 5:00 PM CET for a Scientific Webinar on: RCT: Rituximab versus Cyclophosphamide in Severe Types of MMP Learn more: ern-skin.eu/webinars/ #MMP #AutoimmuneBlisteringDiseases #ERNSkin #IPPF #Dermatology #RareDiseases

📢 ERN-Skin AIBD + ToxiTEN e-training course for residents 📅 Join us on 22 October 2026, from 5:00 to 7:00 pm CET, for two hours of expert teaching focusing on bullous diseases, DRESS syndrome and toxic epidermal necrolysis (TEN). 👉 Register: ern-skin.eu/ern-skin-meeting…

The ERN-Skin network is delighted to celebrate Professor Christine Bodemer, ERN-Skin Coordinator, who has received the EADV Scientific Achievement Award 🏆 This recognition from the EADV celebrates scientific excellence and outstanding contributions to dermatology. #EADV2026

🏆 And we have a winner! Congratulations to Alessandra Gelmetti, winner of yesterday’s quiz during the ERN-Skin session at #EADV! Thank you to everyone who joined in! #RareSkinDiseases #Dermatology

📢 Save the date! The 2026 ERN-Skin Board Meeting will take place on 19–20 November 2026 in Paris 📍 Hôpital Necker–Enfants Malades & Institut Imagine 📄 The preliminary programme is now available: ern-skin.eu/wp-content/uploa… #ERNSkin #RareDiseases #Dermatology

📢 Little reminder: the deadline is TODAY! We’re sharing this opportunity with you one last time: the ERDERA Clinical Trial Call 2026 (ECTC) closes today, 10 September 2026. 👉 erdera.org/call/ctc2026/ #ERDERA #RareDiseases #ClinicalTrials #ClinicalResearch @ERDERA_org

The ERN-Skin Symposium at the 2026 EADV Congress is just around the corner! 📅 30 September 2026 🕣 8:30–10:00 CEST A chance to connect, exchange knowledge and shine a light on advances in rare skin diseases. We can’t wait to see you there! #ERNSkin #EADVCongress

Information matters especially when you are navigating a rare condition @CMTCOVM offers useful information folders in multiple languages for patients, families, caregivers, teachers & healthcare professionals. Explore & share: cmtc.nl/en/activities/inform… #RareDiseases

💻 ERN-Skin AIBD Webinar! 📆 30th of July 2026 - 5:00 – 6:00 pm CET 👉 If you haven't registered yet, make sure to register now: ern-skin.eu/webinars/ #ernskin #webinar #dermatology #rarediseases #patients #bullouspemphigoid

✨ A wrap-up of Day 1 at #WCRSD2026! Today was filled with inspiring talks, the latest research, engaging discussions, and plenty of opportunities to connect with colleagues working across the rare skin disease community. See you tomorrow! 👋 #RareSkinDiseases #Dermatology

Looking forward to combining science, networking, and a bit of movement during the 3rd World Congress on Rare Skin Diseases! Join the Strava club: strava.com/clubs/2082219?sha… See you in Versailles! #Congress #Wellness #Versailles #Strava #Networking

💙 @CMTCOVM Family Day 2026 📅 4 July 2026 📍 Efteling, the Netherlands Registration is open: cmtc.nl/en/members/events/fa… #RareDisease #PatientSupport #VascularAnomalies

📖 Publication spotlight: European Reference Networks – A flagship activity of the EU in the field of rare and complex diseases (2017–2025) Read more: link.springer.com/article/10… #RareDiseases #ERNs #EUHealth

Our IPPK Webinar is starting in a few minutes! You can still register and join us: ern-skin.eu/webinars/

💻 IPPK webinar next week! 📆 26th May 2026, 1:00 pm – 2:00 pm CET The ERN-Skin IPPK thematic group will organize a webinar titled: "When EDD Remains Undiagnosed: How to Move Forward". 👉 Register here: ern-skin.eu/webinars/ #ernskin #webinar #dermatology #Rare #Skin #EDD

💡 Did you know? 3 scholarships are available for French dermatology residents to attend the 2026 World Congress on Rare Skin Diseases 🇫🇷🧬 ⏳ Deadline extended to 29 May Apply: ec.europa.eu/eusurvey/runner… #Dermatology #RareDiseases #WCRS

We are attending the 13th European Conference on Rare Diseases and Orphan Products (ECRD) on 3 & 4 June 2026, in Prague and on a highly interactive virtual platform! Will you join us? 👉 Register now: invt.io/1lxb7xgtj4k #ECRD2026 @eurordis #rarediseases #dermatology #patient

💻 Register to our next ERN-Skin webinar 📆 The DNA+ thematic group will organize a webinar titled "From DNA damage to skin cancer: insights from photosensitivity disorderson" tomorrow from 1:00 – 2:00 pm CET. 👉 Register: ern-skin.eu/webinars/ #Webinar #photosensitivity #dna

💫 CONTEST EXTENDED 💫 Good news for artists everywhere, the Fondation Rene Touraine is giving you more time to share your voice! 🎨 📩 Submit your work via email (JPEG preferred) or by post. ⏳ Don’t miss your chance and submit before May 31! #ArtContest #MySkinMyStory

Applications are now open for the ITINERARE Rare Disease Summer School 📅 June 23–26 | 📍 Kartause Ittingen 📝 Apply by April 26 and share with colleagues who might be interested! 🔗 itinerare.uzh.ch/en/Events/R… #RareDiseases #SummerSchool #Research #PhD #Postdoc #MedicalResearch