I rarely ask for repost but if you could share this….heartbreaking they are asking for help and can’t even get a response @SarahHuckabee Governor Sarah Huckabee Sanders, I am sitting at Arkansas Children’s Hospital with my 2-year-old son, Turner, and I can literally see the State Capitol from his hospital window. We will be here until Sunday at the earliest, and possibly longer if things do not go the way we hope. His doctors are telling us that even when Turner is stable enough to leave the hospital, he needs significant support to keep him safe at home. That support is available through Arkansas’s CES Waiver, but Turner cannot access it because he is sitting on the waiting list. I have tried countless times to set up a meeting with you and have been turned down every time. So this time, I am asking you to come to us. Please come visit Turner and me at Arkansas Children’s Hospital. Come see for yourself how sick he is. Let me tell you what it is like to have a 2-year-old with a rare, progressive neurodegenerative disease and severe epilepsy, and what it is like to be told that your child needs more support to safely live at home while also being told that the state support meant for children like him is unavailable because of a waiting list. Let me tell you what this is doing to our family too. I am missing work right now because my child is hospitalized. I miss work for appointments, hospital stays, seizures, therapies, illnesses, and all of the things that come with raising a medically complex child. I am exactly where I need to be, beside my son, but families cannot keep being expected to absorb lost income while also being denied the very supports that could help keep their children safe at home. Governor Sanders, I am not asking you to read another report about the CES Waiver waitlist. I am asking you to come meet one of the children sitting on it. Turner is an Arkansas child, and he needs help now, not years from now. Please come see him, sit with us for a few minutes, and let me tell you what his doctors are saying he needs when he goes home. I want you to see for yourself what this waiting list actually looks like for a family living it. For…Paige Kordsmeier McCammon