A 501c3 dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.
Joined September 2012
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Halloween is just around the corner. Be sure you're ready with your teal pumpkin- and watch for houses welcoming you with a teal pumpkin!
Teal Pumpkin Season is here, which means it’s time to make Halloween safer for every trick-or-treater!
FARE’s Teal Pumpkin Project is a worldwide movement that helps make Halloween more inclusive for kids with food allergies and other conditions by encouraging families to offer non-food treats alongside candy. A teal pumpkin on your doorstep lets families know you have options like glow sticks, stickers, small toys, and other non-food goodies available.
And this year, we’re taking the movement even further.
We’re calling on advocates across the country to become Teal Pumpkin Project Captains and help bring the movement to their own communities. Captains can spread the word, rally neighbors, schools, and local organizations, and help turn more neighborhoods teal this Halloween.
One teal pumpkin can make a difference. A whole community of them can transform Halloween! Learn more and add your home to the map here: foodallergy.org/tealpumpkinp…
Did you know our Web Resources page has a forms and documents library? All the forms and documents, filed and ready for your needs.
Find it in the Resources tab of our website:
fpiesfoundation.org/resource…
A great video to share with friends and family to both raise awareness for FPIES and help others understand this diagnosis a little bit more. An overview of FPIES for Pediatric professionals, family members and caregivers/teachers given by Dr. Nasir.
youtu.be/slpi50hwVWM?si=Jp2t…
FPIES Myths explained by a Dietitian and FPIES mom, Heather, for Global FPIES Day 9 years ago and still very helpful today. Spread continued awareness to some of what it looks like to have FPIES and share the video and/or flyer for this Global FPIES Day! youtu.be/JitPvOMjHlY?si=wjV3…
Join us in sharing print resources, educational videos, and inspirational family stories to promote FPIES awareness in your local communities and beyond! fpiesfoundation.org/global-f…
FPIES stands for Food Protein-Induced Enterocolitis Syndrome and is a type of delayed food allergy, symptoms can range from mild to severe, there are no tests and management is by introducing foods one at a time to find safe foods while eliminating foods that trigger a reaction.
An action plan can optimize care coordination and provide an important tool to help manage symptoms. The goal is to have a detailed plan of action to know what to do when symptoms are experienced. Find it in our toolbox page: fpiesfoundation.org/resource…
FPIES At a glance - great for social media shares, it shares quick and succinct information about FPIES for raising awareness.
Find this and many more on our Awareness Posters page: fpiesfoundation.org/posters-…
Living with FPIES means living with a type of allergy that is not your typical/familiar food allergy (IgE)
Find this advocacy card on our website: fpiesfoundation.org/foundati…
October is here which means Global FPIES Day is fast approaching! Established in 2014, a day set aside by to recognize FPIES while empowering those living with this diagnosis by providing tools, support and resources for every day.
Check out resources at: fpiesday.com/
Foundation volunteer and mom to children living with FPIES, Jillian represented the FPIES community in helping legislators understand how access to medical foods and formulas impacts people living with FPIES.
Add your voice, too!
nutritionequity.org/takeacti…
Happy Anniversary to us! 15 years ago today, supported by this very community, we launched the website with support, advocacy resources and awareness tools for individuals and families living with #FPIES. Thank you all for these 15 years. This community is truly unlike any other!
For families living with FPIES, the real challenges often appear in everyday settings — especially school. Guest Blog with Parent Teacher Path: A 3-part blog series- How Parent Teacher Path Supports Families. – The FPIES Foundation
"If you are early in your FPIES journey, know that combining trusted medical care with supportive resources can help you feel informed, empowered, and supported every step of the way".
fpiesfoundation.org/guest-bl…
Inspired by his son and the challenges families often face in everyday settings, including school, Ken created Parent Teacher Path, read more about it on our guest blog post:
fpiesfoundation.org/guest-po…
Find graphics for #RDD on National Organization for Rare Disorders, Inc. (NORD) website- Rare Disease Day (RDD) Resources (link in comments)
Specialized foods and formulas are essential to effective treatment. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed. Take Action Today! #MedicalNutrition nutritionequity.org/takeacti…
If you find a need of a feeding tube to support nutrition through your #FPIES diagnosis, know you are not alone. Feeding Tube Awareness Week: Tell Others - Oley Foundation. oley.org/page/FT_Awareness_W…
If you or someone you love relies on medical nutrition, your story matters. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed.
Take Action today! nutritionequity.org/
