@FairlieHall
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Wanting there to be more recognition for the impact ME/CFS has on peoples lives, hoping that better support will be provided.
Perth, Western Australia
Joined January 2016
- Tweets38.2K
- Following2.7K
- Followers1.4K
- Likes122K
Susan Fairlie Hall retweeted
ME/CFS ist eine schwere Erkrankung, die lange unterschätzt wurde. Viele Betroffene kämpfen um Anerkennung und medizinische Unterstützung. Wir nehmen ihre Anliegen ernst und handeln.
Susan Fairlie Hall retweeted
Compared to males, females report longer diagnostic delays, a higher number of healthcare visits prior to diagnosis, and more psychiatric and psychosomatic misdiagnoses.
thelancet.com/journals/eclin…
My parents are nearing 70—said with respect, not ageism. They continue to run our family business while facing health challenges of their own and the devastation ME/CFS has brought to half our family. Much of the next generation is prevented by the disease from sharing that responsibility.
Despite all that, today they are at two separate events in service of the cause: my father at Vienna City Hall with Mayor Michael Ludwig and WWTF President Michael Häupl, discussing research and care; my mother at CS Caritas Socialis’s first ME/CFS specialist conference at Schönbrunn.
Given everything they carry, the energy they devote to this cause is immense, almost worryingly so. I have enormous respect for their commitment and am deeply grateful. 💙🙏
Susan Fairlie Hall retweeted
This national #carersweek think about volunteering as a ‘healthy control’ for medical research studies, becoming an #AusMERegistry participant is the simplest way to get involved in #mecfs & #longcovid research!
Sign up today 👉 zurl.co/cWFHQ zurl.co/tg5vZ
ALT Square AusME and Emerge Australia promotional graphic featuring a smiling couple seated together indoors, with the man’s arm around the woman and a small bandage on his forearm suggesting a recent blood donation. Top left includes the AusME logo and text, “From one small act comes big hope.” A blue banner reads “Join the AusME today,” and the lower section says, “Your contribution could help unlock answers for millions worldwide who are still waiting for hope and healing,” alongside the Emerge Australia logo.
Susan Fairlie Hall retweeted
Abandonment issues often begin in childhood due to traumatic loss. It is not considered a mental health condition, but the resulting anxiety can ruin a person’s life and relationship.
This article focuses on abandonment and how to heal from its effects.
buff.ly/3cx0Jbh
Susan Fairlie Hall retweeted
#Water taken for granted today
but as our populations swell it increasingly becomes a scarce resource
which enables government & corporations to put a price on it
no longer a human right, it becomes a marketable commodity
do we really want that to happen?
#LiveWithinLimits
Susan Fairlie Hall retweeted
🚨 FIVE IPC MISTAKES. DEVASTATING CONSEQUENCES.
The UK Covid-19 Inquiry exposed serious failings in infection prevention and control (IPC) during the pandemic.
❌ Failure to apply the precautionary principle
❌ Misunderstanding how respiratory infections spread
❌ Inadequate respiratory protection
❌ Inconsistent and unclear guidance
❌ Failures in expertise, accountability and oversight
Healthcare workers paid a devastating price.
⚠️ Have we learnt the lessons?
Read the analysis by @EvonneTCurran and me:
shh-uk.org/five-ipc-mistakes…
#SafeAir4All #CovidInquiry #InfectionPrevention #LongCovid #HealthcareWorkers
This National Carer's Week, CHF aims to recognise and celebrate the contributions of over 3 million Australians who provide unpaid care to their loved ones, as well as highlight how the health system can better support them.
Learn more: carersweek.com.au/
Susan Fairlie Hall retweeted
Prime Minister Anthony Albanese’s office has been caught editing a letter to himself, which was supposed to be the result of the work of an independent parliamentary inquiry.
news24.com.au/politics/austr…
Susan Fairlie Hall retweeted
Every day 17 frail older people die waiting for help at home that doesn’t arrive. Every one of them had already been through the approval process (which is taking up to a year) & then died waiting. Labor aged care failure. @AlboMP @AustralianLabor
hellocare.com.au/6436-senior…
Susan Fairlie Hall retweeted
Japan just built a plastic that vanishes in the ocean within hours.
No slow crumble. It just goes, and it leaves zero microplastics behind.
The breakthrough came out of RIKEN and the University of Tokyo, where chemist Takuzo Aida led the team. Their material is strong enough to do the work of regular plastic, yet seawater pulls it apart in a matter of hours. The findings were published in Science.
Then it gets better. Bury it in soil and it breaks down in roughly ten days, releasing nitrogen and phosphorus the way fertilizer would.
Microplastics have already made it into the food on your plate.
This stuff would rather feed the ground than poison it.
Source: RIKEN Center for Emergent Matter Science press release; RIKEN, University of Tokyo, Science, Reuters
Susan Fairlie Hall retweeted
While Julia Gillard was giving her infamous “misogyny speech”, her government was removing the definition of the word “woman” in the only piece of legislation enacted in Australia to give women rights on the basis of being women, paving the way for men to be women in law.
Susan Fairlie Hall retweeted
Sall isn't giving up the fight, not even a little bit, but it's time for a change of tactics.
Sall Grover has been fighting not only for women's rights... but for all our rights, and well... it's been a tough fight.
The Legal pathways are now exhausted, but that's not the end of the fight, it's the start of a new phase, where the fight becomes political rather than legal.
Sall joins me on The Topher Project to bring me up to speed.
Follow Sall Grover on Twitter: @salltweets
Support my work as I support others, by buying me a coffee and checking out my books, DVDs, and all my merch at: store.topherfield.com/
Don't miss out on the BLACKOUT release, grab yours here: store.topherfield.com/collec…
Susan Fairlie Hall retweeted
There’s a Japanese saying that I love:
“If you feel like you’re losing everything, remember, trees lose their leaves every year, yet they still stand tall and wait for better days to come.”
🎉 Our research on frail, homebound and bedridden people has been accepted at ACSPRI–ASNAC 2026!
Using network analysis, we reveal how health, social and service challenges interconnect. Making the invisible visible!
conferences.acspri.org.au/20…
#FHBP #ASNAC2026 #ME_CFS
Susan Fairlie Hall retweeted
The Albanese Government is the most secretive federal government we've had in decades.
It protects lobbyists, keeps ministerial diaries closed, and has repeatedly made FoI requests more challenging and more expensive.
We need to put a stop to the bully boy tactics the Albanese Government is using in the courts, by threatening those seeking transparency with massive legal costs. We have to support those who are looking to hold the government to account for its spending and its decision-making.
theage.com.au/politics/feder…
Susan Fairlie Hall retweeted
me sitting in the kitchen in 1993, picture by my then flatmate michael. wearing a top i got in a thrift store on haight street, sf. song writing was a slow game then, everyday was glacial, forgettable, but eventually, formative.
Susan Fairlie Hall retweeted
Any problems linked to the end of mass immigration are trivial,
... in comparison to the problems linked to retaining it.
Let's get on with the challenge of running an economy & a nation, with a more or less stabilised population.
population.org.au/sign-the-s…
“The time in hospital was awful for her. She had a very severe crash and could not sit and because of that she was brought home lying down in an ambulance.”
9 year old Annabelle’s mum talking about her #MECFS which she developed following Covid. #LongCovid