Passionate about research, health infrastructures, data & personalized medicine to improve patient outcomes
Ireland
Joined May 2022
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Great to see a plan published to improve the lives of the 300,000+ people that are living with a rare disease ! Research is central to this @hrbireland have invested €18.8 million to support rare disease research hence a dedicated research chapter is welcome 👏🏻
HRB welcomes the launch of @roinnslainte's new Rare Disease Strategy - a framework to improve diagnosis, treatment and support for people living with a rare disease.
Read more➡️hrb.ie/news-stories/hrb-welc…
Read the strategy: gov.ie/en/department-of-heal…
Gavin Lawler retweeted
Don't miss this engaging & insightful interview with Gavin Lawler, HRB Programme Manager with our #Research and Innovation Infrastructures Unit where he discusses his role as Ireland's Rare Diseases National Mirror Group Co-ordinator.
➡️erdera.org/news/gavin-lawler…
#ERDERA @GavinLawl
“There’s a lot of value in connecting with other countries.” 💬
Ireland’s National Mirror Group unites policy, clinicians, researchers & patients to drive the new rare-disease strategy with #ERDERA.
🔗Full interview loom.ly/HSj6TtY
@hrbireland @RareDiseasesIE @GavinLawl
Delighted to attend this and meet with colleagues across the EU & beyond focusing on rare disease plans and research👏🏻
🌍 Delegates from 23 countries met in Riga for #ERDERA’s workshop to boost rare disease plans & research across Europe & beyond.
🤝 National Mirror Groups are key—linking ministries, researchers & patients. Target: 37 groups active by next year.
📲 More: loom.ly/CggG1mc
Gavin Lawler retweeted
Our Head of Research and Innovation Infrastructures, Oonagh Ward and Prof Fidelma Dunne, Director of @DiabetesCTN at ECRIN’s International Clinical Trials Day in Madrid. The event focuses on the importance of embracing diversity, equity & inclusion in clinical research #ICTD2025
Gavin Lawler retweeted
#InternationalClinicalTrialsDay celebrates the many benefits of high-quality clinical trials. The HRB is proud to lead their development in Ireland and we have invested close to €50 million in investigator-led trials to date.
Gavin Lawler retweeted
🔬 EP PerMed – Unlocking Biobanks for Personalised Medicine: Today’s special parallel session, hosted by the European Partnership for Personalised Medicine, put the spotlight on the critical role of #biobanking in advancing #PersonalisedMedicine.
💡 Stay tuned for more updates
Great to meet 🇮🇪researchers from Galway & colleagues from the European Partnership on Personalised Medicine in Bologna for @EBWCongress this week
Gavin Lawler retweeted
The National Rare Diseases Office has launched new Rare Diseases Education Programme which is now available on HSELand for all healthcare professionals.
To enroll in the programme, log in to HSELand and search ‘Rare Diseases Education Programme’: hseland.ie/
Gavin Lawler retweeted
📆Join us on May 15 @ 12 noon for "Successes and Opportunities" - an EU Cancer Mission webinar on upcoming @HorizonEU funding. Hosted by the HRB, @AlCRIproject and @hseNCCP
Registration & more info👇
us02web.zoom.us/webinar/regi…
#EUcancermission
Gavin Lawler retweeted
Free event with HRB, Dep of Health and UL experts discussing the HRB/TCD study, Growing Up in Ireland – Substance Use & Childhood Adversity.
📅13 May, 11am
Register: bit.ly/4kaZvQi
More: bit.ly/44oT2wr
@GrowingUpIre @tcddublin @UL @dcediy #evidenceforpolicy
Gavin Lawler retweeted
ERDERA is seeking Irish experts to join a pool of specialists to participate in ERDERA #raredisease research activities, panels & networking opportunities. Don’t miss this opportunity to connect, contribute, and grow with a dynamic international community.
forms.office.com/pages/respo…
Gavin Lawler retweeted
Call to action...!
EU Parliament "health" committee is gathering feedback on priorities of #RareDisease community. We need more coordination, collaboration & standardisation across EU e.g. cross border care, access to medicines, expanded screening, etc.
ec.europa.eu/eusurvey/runner…
The @Europarl_EN SANT Committee consultation on rare diseases is a key moment to highlight the things that matter to our community!
With coordination and unity, we can amplify our collective voice. 📣 Tips on how to maximise your input: go.eurordis.org/cozprt
Gavin Lawler retweeted
Today is #RareDiseaseDay. Discover 4 facts you should know about rare diseases and EU-funded research, and check our dedicated factsheet for more ⤵️
Gavin Lawler retweeted
✨ Today is #RareDiseaseDay! ✨
Shining a light on the 300 million people worldwide living with a rare disease. We raise awareness of their challenges and advocate for more research, care, and better policies. 🔬💪 Join us in spreading the word! 💫🗣️ #StrongerTogether
ALT Rare Disease Day ERDERA
Gavin Lawler retweeted
You can now download the new HSE Health App. With a verified MyGovID, you can safely and securely store your self-declared medication details in the app. Expectant mothers can also see their upcoming maternity appointments. More features will be added in the future. Find out more: hse.ie/health-app
ALT Close-up of a woman’s phone in her hand. The HSE Health App is open. The text says ‘The HSE Health App puts your health in your hands. Download the HSE Health App today’.
Gavin Lawler retweeted
#RareDiseaseDay | Rare Disease Community 🗣 Dorica Dan, rare disease carer and @EURORDIS Vice-Director, highlights the profound importance of early diagnosis for people living with a rare disease and their families – even when no treatment is available🔍👇
Delighted to share registration details for our HRB Secondary Data Analysis Projects Seminar 2025 on 26 March hosted at @hrbireland
eventbrite.ie/e/hrb-secondar…..
Excellent presentation from Laura on the HRB funded Genomic Data Infrastructure & Genome of Ireland! Delighted to work with the team as great things to come 👏🏻
Early-career researcher Dr Laura Whelan from @FutureNeuro outlines exciting times for Ireland, joining the dots and building infrastructure and European links for genetic studies that can improve diagnoses for patients. #HRBGHConf2025
Exciting couple of days ahead focusing on what’s around the corner. Looking forward to engaging on our next strategy with researchers @hrbireland #HRBGHConf25
