Haemochromatosis Aus

The Australian Haemochromatosis Registry now has 2071 registrants. 🎉 Yet the registry is so much more than a number. Every participant helps build a stronger picture of haemochromatosis in Australia. If you have haemochromatosis, join the Registry: ow.ly/BUPC5101W0g

Hello from Auckland! HA committee member and Haemochromatosis International President Di Prince is representing us at #Blood2026, sharing our resources and raising awareness of the Australian Haemochromatosis Registry. Great feedback and interest from delegates!

Our Kiwi cousins at Beef + Lamb New Zealand have led World Iron Awareness Week for more than a decade, with an understandable focus on iron deficiency and iron-rich foods. From the haemochromatosis side of the Tasman, we would add just one thing: iron can also be too high!

This World Iron Awareness Week (12-18 Oct), there is one message we would love more Australians to understand: iron balance matters. Too little iron can be a problem. So can too much. Find out more: ow.ly/AQGE50ZWCy9 #WorldIronAwarenessWeek #Haemochromatosis #IronOverload

From today, 8 Oct '26, new Australian protections change how genetic information can be used when people apply for new life insurance products. If considering HFE genetic testing for hereditary haemochromatosis, this is an important change. For more: ow.ly/BI9750ZUjyC

Bringing iron levels under control does not always make established joint symptoms disappear. For some, joint pain or stiffness can continue and may need its own management and support. Find out more here: ow.ly/xelW50ZUb3O

It can be hard when family members do not understand haemochromatosis or are not ready to get tested. Start where you can. Our family letter can help. ow.ly/Ulpb50ZRYzH

For many with haemochromatosis, removing blood through venesection is part of managing iron levels. If eligible to donate via Lifeblood, you can join Haemochromatosis Australia’s Lifeblood Team and help your donations count towards our community impact.

Joint pain can be part of haemochromatosis. If you have joint pain or stiffness, speak with your GP or healthcare team. Haemochromatosis Australia also has information to help you understand haemochromatosis and haemochromatotic arthritis. haemochromatosis.org.au/haem…

The final day of Women’s Health Week focuses on the small steps we can take to connect, This Women’s Health Week, take one small step. Join Haemochromatosis Australia as a member, volunteer, or find support: ow.ly/fOCV50ZLL0o

Every haemochromatosis journey is different. Real stories help people feel less alone. They can also help someone recognise the signs, talk to their GP, speak with family or seek support. Willing to share part of your haemochromatosis journey? We would love to hear from you.

Hope all the dads have a great day today. If all else fails, remember, your blood is worth bottling :-) #haemochromatosis #blood donors

Haemochromatosis is one of Australia’s most common genetic conditions. It is inherited, so family history matters. It is treatable, especially when found early. If you have symptoms, high iron or a family history, ask your GP about testing. More here: ow.ly/rT8R50ZCWFx

It can be hard when family members do not understand haemochromatosis or are not ready to get tested. A simple message can be enough to start: “I’ve been diagnosed with haemochromatosis. It can run in families, so close relatives may need to speak with their GP about testing.”

Already 1471 of our members have made 1315 donations this year, potentially helping save up to 3945 lives! For many with haemochromatosis, regular blood removal is part of managing iron levels. If eligible, that blood may also help others. Join ow.ly/WLSg50ZxTx7

If haemochromatosis may be a possibility, your GP can arrange blood tests. Iron studies commonly include serum ferritin and transferrin saturation. If haemochromatosis runs in your family, it is worth having the conversation. Our family letter may help. ow.ly/GvIR50ZxQgP

We would love to hear from you if you're willing to share your experience of haemochromatosis. Your story may help someone recognise the signs, speak with their GP, talk to family, or seek support. You can either comment below or get in touch via mail [email protected]

The Australian Haemochromatosis Registry helps build a stronger picture of haemochromatosis in Australia. Every person who joins contributes to better understanding of diagnosis, treatment access, health outcomes and lived experience. Join the Registry: registry.haemochromatosis.or…

Fatigue and joint pain can have many causes. For some, they may be signs of haemochromatosis, especially when there is high iron or a family history. A simple blood test can help identify iron overload. Speak with your GP and ask whether iron studies are appropriate.

A haemochromatosis diagnosis can bring relief, confusion, frustration, or all three. Haemochromatosis Australia provides information and support for people affected by haemochromatosis. Call 1300 019 028 or visit ow.ly/PkFZ50ZuSUy