Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.
California
Joined June 2013
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Our sincere gratitude to Acting FDA Director Kyle Diamantas & U.S. #FDA for convening the #HuntingtonsDisease roundtable. Collaboration like this ensures voices of #HDcommunity remain at the center of research, drug development, & regulatory decision-making.
Find community & support! Check out these opportunities to connect with people from the #HD/ #JHD community that just "get it"! #Help4HD #HuntingtonsDisease #Support
Details: help4hd.org/support-groups
Monday Mixer! Check your time zone & see if you can make this casual social with #HD community members on Zoom! Reach out to [email protected] for more details. #Help4HD #MondayMixer #HuntingtonsDisease
NOTE: Help4HD Virtual HIPE ~ November 7th, 2026💙💜💙Check back for #registration & #Help4HDSwag coming soon! #Help4HDHIPE2026 #Virtual #HuntingtonsDisease
"Help4HD provides the #Safety Planning Toolkit, a comprehensive resource aimed at enhancing safety & preparedness for individuals & families affected by #HuntingtonsDisease." ~Safety Planning Toolkit💙💜💙
#Resource Database: digitalgrowthfirm.adalo.com/…
Alorah Beers questions should she finish her PhD path while facing early onset #HD. Find out her perspective as she joins this episode of #Help4HDTV! #HuntingtonsDisease #GeneticTesting #HDAwareness
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⭐️TODAY⭐️ Get some #PandaExpress🐼 with Fundraiser Code 9017548 & a percentage of the funds will be donated to #Help4HD's Family Relief Fund to assist #HDFamilies in need! ~SHARE~
We are thankful to Tiana Gomez for organizing this fundraising event!
Tune in to #Help4HDTV as Alorah Beers comes on to talk about continuing to chase her dreams after an early diagnosis. Don't moss this discussion TOMORROW at 9am PST! #HuntingtonsDisease #GeneticTesting
facebook.com/help4hd/reels/
Have you heard about the #Help4HD Toolkit? Learn about this resource for #HDFamilies as they seek to prepare for the future. Tune into #Help4HDLive TOMORROW at 1pm PST to listen! #HuntingtonsDisease #EndofLifePlanning #resources
spreaker.com/podcast/help-4-…
🤩Follow us🤩 on social media to stay up to date on upcoming #HDevents, #HDResearch, and more! #HuntingtonsDisease #JHD
linktr.ee/help4hdi
#Help4HDTV ~ Fridays at 9am PST on Facebook/YouTube
#Help4HDLive podcast ~ Thursdays at 1pm PST on Spreaker
Exciting News! We are moving in the right direction!!
Skyhawk Therapeutics' Final 15-Month Results: Phase 1/2 #ClinicalTrial of SKY-0515 in #HD Patients
Full Press Release on the Huntington's Post: shorturl.at/h53rj
#Help4HD's Awards Gala after Symposium was so meaningful! We are so grateful for the #HDCommunity that is so willing to contribute to not only their families, but to support others in their journey as well! 💙💜💙#HD #JHD #TogetherWeAreStronger
Thank you to #Help4HDSympo2026 #sponsors! Your #support helps allow us to connect with amazing #HD families at this event & provide resources & encouragement as they face the many challenges of this #GeneticDisease. Once again, thank you! #DesMoinesIA
Congratulations to our Award winners from last night!!!
#Advocacy/The Voice Award ~ Erin Paterson
#Inspiration Award ~ Jessica Holken
#Caregiver Award ~ Crystal Holken
#HD Person of the Year ~ Kathy Cox
#Help4HDSympo2026 #DesMoinesIA #huntingtonsdisease
We are excited to LIVE Stream these #Help4HD Symposium Sessions from Iowa! Don't miss these special guests sharing #HD stories, #HDResearch updates, #healthcare knowledge, & more. #Help4HDSympo2026 #DesMoinesIA
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These sisters, Leah Wittsche & Courtney Barker, discuss the frustrations when "caretakers don’t want to care" on #Help4HDTV! Listen NOW! #HuntingtonsDisease #FamilyDisease #Caregivers
facebook.com/help4hd/reels/
Love to see everyone gathering and reconnecting with our #HDFamily!😍😍😍Looking forward to these Round tables beginning soon! #Help4HDSympo2026 #DesMoinesIA #huntingtonsdisease
If you were unable to join us in Iowa then remember to meet us online TOMORROW at 8:30am CST for the Main Room LIVE stream on Facebook!
Looking forward to #Help4HDSympo2026 Saturday! Attendees can join Breakout Room 2 to gain knowledge from professionals, tips from #caregivers , & insights from young people impacted by #HD ! See you in #DesMoinesIA!
Check out the special speakers joining us at #Help4HDSympo2026! We are excited to present #HD #Resources , lived experiences, #symptom management, & more in Breakout Room 1! Meet us in #DesMoinesIA to participate!
Schedule: facebook.com/share/p/1CGsisT…
These #Help4HD Symposium sessions begin at 8:30am CST Sept 12th! Find out about #HDResearch, collect #resources, ask #HDquestions, & more. Listen LIVE on Facebook! #Help4HDSympo2026 #DesMoinesIA #huntingtonsdisease
facebook.com/help4hd