The International Alliance of Dermatology Patient Organizations is a global voice for skin patient-centred research, advocacy & support.
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Joined October 2015
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Skin patients living with a chronic itch, help shape a clear definition of your condition by taking part in this global study!
Living with chronic itch? IDEOM & @ILDSDerm are recruiting patients to help define 5 pruritus-related conditions.
Email [email protected] with proof of diagnosis by Nov 1.
Physicians, please share! 🤝
#ChronicItch #PatientResearch
#GlobalSkin CEO Jennifer Austin attended the Galien Patient Summit today in NYC. Our #PRIDD measure was also among the nominees for the Prix Galien Patient First Award in the Patient-Led Initiatives category. We thank The #GalienFoundation for nominating PRIDD.
Huge congratulations to all #GlobalSkin Patient Expert Scholarship recipients who were part of Cohort 9 that graduated today from the #EUPATI Patient Expert Training Programme! We're proud to have supported them every step of the way & look forward to seeing the impact they make!
💜 This #WorldPsoriasisDay, look beyond the skin! 💙 Amplify youth voices, challenge stigma, and celebrate life beyond psoriasis. 🔗 Learn more and get involved: ifpa-pso.com/global-actions-… #LookBeyondMySkin #PsoriasisAwareness
ifpa-pso.com/global-actions-…
👕 Turn your clothes #InsideOut this #EBAwarenessWeek (Oct 25-31)!
Join @InterDEBRA & GlobalSkin to raise awareness of #EB - a painful, incurable condition - and support those living with it. 🦋
👉 Learn more & get free resources: debra-international.org/insi…
The October #MembersMatter #Bulletin is now available! Members, check your inbox for the full bulletin and discover opportunities to learn, connect and amplify your impact! Not yet a #GlobalSkin Member? Apply to become one at globalskin.org/member-commun….
#Dermatology
🌍 GlobalSkin at #ISAD2026 in Beijing! From sharing PRIDD research to strengthening patient partnerships with GADA, we’re amplifying the voices of people living with #AtopicEczema worldwide. Together, we’re driving collaboration and better care! 🤝 #GlobalSkin
💜 Oct 20 is Mastocytosis & Mast Cell Diseases Awareness Day!
MCAS and mastocytosis may be invisible, but their impact is real. Everyone deserves to be heard, believed & supported. 💜
📣 Make the invisible visible! 🌐 mastocytosis-mcas.org
#MCAS #Mastocytosis
🌟 #FollowFriday Spotlight: APPEAP supports people with #psoriasis and autoimmune skin diseases in #Paraguay through education, advocacy & community! 🌐 appeap.com #GlobalSkinMembers
📣 Attn GlobalSkin Latin America members!
🎥 Missed our webinar? The replay is here!
Explore “Skin & Mental Health: What We Don't Always See,” featuring expert insights and patient experiences on the link between skin and #mentalhealth.
📩 Inbox for the replay link!
#GlobalSkin Members, the second #webinar in our #ResearchReadiness Program is taking place November 24, 2026, 9:00–10:00 AM ET | 3:00–4:00 PM CET.
Check your email for the registration link. We look forward to seeing you there!
#Webinar #PatientLedResearch #Dermatology
GlobalSkin retweeted
📣 New publication! How can young people with rare diseases become meaningful research partners?
An IRDiRC perspective offers practical guidance for developmentally appropriate, ethical engagement.
🔗frontiersin.org/journals/ped…
🧠 Today is #WorldMentalHealthDay!
Let’s move from listening to action. People with lived experience deserve a voice in shaping mental health services, policies and decisions.
💬 Lived experience is expertise.
🤝 Nothing about us without us.
🔗 who.int/campaigns/world-ment…
🌟 #FollowFriday: @Pachyonychia supports patients, advances research & advocates for better treatments for rare genetic skin disorders. 🌍💙 pachyonychia.org
New Members, join us on October 21, 2026, at 9:00 am EDT | 1:00 pm UTC for an online gathering to help you settle into our global community. Check your email for the registration link.
#GlobalSkin #CoffeeChat #NewMembers #Dermatology #Welcome
We’re proud to see our Member Noel Mudibo from IPPF Kenya featured in The Independent, where he shared his lived experience in an article published as part of the recent launch of the ILDS Skin Observatory study. Read the interview: bit.ly/47B41Dd
@healourskin @ILDSDerm
Today at #EADV2026, #GlobalSkin co-hosted “Invisible burden, visible impact: Improving mental health outcomes in dermatology” with the EADV Advocacy Task Force, as part of the event's scientific program. Thank you to all the speakers, the Task Force and everyone who attended.
🌟 #FollowFriday Spotlight 🌟
Meet FUNAPAPSO, supporting people living with #psoriasis through education, advocacy & community support.
💬 Raising awareness. Empowering patients. Improving care.
🌐 funapapso.org
#GlobalSkinMembers #Psoriasis
Attending the EADV Congress in Vienna? Don't forget to stop by the #GlobalSkin booth in the Patient Organisations Area & #PRIDD Booth X321 in the Exhibition Hall. We look forward to connecting with you!
#EADV2026 #TogetherForBetter #Booth #Dermatology #EADVCongress
#GlobalSkin marked the opening day of the EADV Congress today with its Skin Matters Reception in Vienna, bringing together Members, partners and key stakeholders. We are grateful to everyone who joined us!
#EADV2026 #TogetherForBetter #SkinMatters #Reception #Dermatology
