International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
Global, based in Amsterdam
Joined June 2014
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IKCC Kidney Cancer retweeted
Call to #kidneycancer patients and carers, if you have not already done so, please help us and patients globally by completing the @IKCCorg patient survey on kidney cancer.
Grab a hot drink, settle in and help make a difference. actionkidneycancer.org/.../t…
#bypatientsforpatients
IKCC Kidney Cancer retweeted
The study “Developing a core outcome set for pharmacist interventions in chronic kidney disease: A Delphi study” presents a standardised framework to help researchers evaluate pharmacist interventions in chronic kidney disease (CKD).
🔗 Read the paper: academic.oup.com/joneph/arti…
IKCC Kidney Cancer retweeted
EKPF participated in the European Kidney Forum 2026 🇪🇺 at the European Parliament to address the gender gap in kidney health and advocate for equitable, patient-centred care across Europe. 💙
Read more: ekpf.eu/ekpf-participates-in…
IKCC Kidney Cancer retweeted
The EKPF Annual Summit 2026 video is here!
Rewatch our time in Krakow, celebrating collaboration and our European kidney community. 💙
Thank you to everyone who made it special! We hope you enjoy it and we hope to see you next year! 🤝
youtube.com/watch?v=Dbw90WyZ…
IKCC Kidney Cancer retweeted
Our colleague @Pointonsupport has released the latest episode of the Living with and beyond Cancer podcast.
This weeks guest is Jemma Falloon, who was diagnosed with #KidneyCancer & Thyroid Cancer on the same day.
Listen to Jemma's inspirational story:
actionkidneycancer.org/.../p…
IKCC Kidney Cancer retweeted
CANADA, LET'S MOVE.
September 25–27, Canada's kidney cancer community is MOVING.
Wherever you are and however you MOVE:
📸 Take a photo or video
💚 Tell us who you're MOVING for
🏷 Tag Kidney Cancer Canada
Let’s MOVE together! kidneycancercanada.akaraisin…
IKCC Kidney Cancer retweeted
The 5th @IKCCorg Global Patient Survey on #KidneyCancer is now open!
Your lived experience matters, please share your voice take the 15minute survey and help shape the future of kidney cancer care.
For info and to take the survey:
actionkidneycancer.org/.../t…
#GlobalPatientSurvey
IKCC Kidney Cancer retweeted
Today on World Cancer Research Day, EKPF and @IKCCorg launch the 2026-2027 Global Patient Survey on Kidney Cancer.
Patients, survivors & carers: share your experience and help shape future education, support and advocacy.
bit.ly/IKCC_Kidney_Cancer_Gl…
IKCC Kidney Cancer retweeted
Curious what a full day of kidney cancer education looks like? Here's a peek at what's on the agenda for our 2026 Virtual Patient Symposium happening September 26 11am-4pm ET! 👩💻
Built for patients, caregivers, & anyone touched by kidney cancer. 🫶
bit.ly/4bsGKpw
IKCC Kidney Cancer retweeted
I MOVE FOR THE FIGHTERS & SURVIVORS.
Everyone has a reason to MOVE.
For some, it's celebrating how far they've come. For others, it's supporting someone they love or remembering someone they miss.
Who will you MOVE for?
Join us! kidneycancercanada.akaraisin…
IKCC Kidney Cancer retweeted
Supportive care isn’t just end-of-life care — it’s about living better today. 🧡 Our Patient Education Series features expert-led videos on this topic:
@NorthwesternU: youtu.be/aOB0wqav6e0
@OhioState: youtu.be/9a9zPBgiuVo
@UNC_Lineberger: youtu.be/9Ah5zQ1U4to
IKCC Kidney Cancer retweeted
Clinical trials can offer access to new approaches to treatment while helping researchers answer important questions about #KidneyCancer care. But finding a trial and understanding whether it might be right for you can feel complicated.
Talking with your care team is an important place to start. The questions in this post can help you begin that conversation and better understand your options.
When you're ready to explore available trials, the KidneyCAN Clinical Trial Navigator, powered by Almara, can help. The platform connects to ClinicalTrials.gov and the National Cancer Institute's clinical trial database and uses AI to interpret complex eligibility criteria and highlight trials that may be relevant based on the information you provide.
Explore the Clinical Trial Navigator and learn more: kidneycancertrials.org/
#AcceleratingCures
IKCC Kidney Cancer retweeted
𝗟𝗔𝗦 𝗡𝗨𝗘𝗩𝗔𝗦 𝗚𝗨Í𝗔𝗦 𝗘𝗦𝗖 𝗥𝗘𝗖𝗢𝗠𝗜𝗘𝗡𝗗𝗔𝗡 𝗖𝗥𝗜𝗕𝗔𝗥 𝗟𝗔 𝗘𝗡𝗙𝗘𝗥𝗠𝗘𝗗𝗔𝗗 𝗥𝗘𝗡𝗔𝗟 𝗖𝗥Ó𝗡𝗜𝗖𝗔 𝗘𝗡 𝗧𝗢𝗗𝗢𝗦 𝗟𝗢𝗦 𝗣𝗔𝗖𝗜𝗘𝗡𝗧𝗘𝗦 𝗖𝗢𝗡 𝗘𝗡𝗙𝗘𝗥𝗠𝗘𝗗𝗔𝗗 𝗖𝗔𝗥𝗗𝗜𝗢𝗩𝗔𝗦𝗖𝗨𝗟𝗔𝗥
La ESC pide mayor coordinación entre cardiología y nefrología para garantizar una atención precoz en pacientes con riesgo cardiovascular y renal.
Impulsar la decisión compartida y la prevención es clave para mejorar la calidad de vida de los pacientes.
🔗Noticia completa: alcer.org/2026/09/03/las-nue…
@escardio @ERAkidney @kevin_damman
IKCC Kidney Cancer retweeted
WE MOVE BETTER TOGETHER.
Bring your family, friends, neighbours or coworkers together for MOVE to Beat Cancer.
Let’s MOVE together!
kidneycancercanada.akaraisin…
IKCC Kidney Cancer retweeted
There's no wrong way to MOVE.
MOVE by yourself, with family and friends, or create a team.
Your MOVE. Your Way. Your Reason.
Join Us! kidneycancercanada.akaraisin…
IKCC Kidney Cancer retweeted
A targeted therapy called tivozanib helped some patients with advanced #kidneycancer keep their cancer from getting worse for several months when used after earlier treatments had stopped working.
Read more about the study: actionkidneycancer.org/long-…
IKCC Kidney Cancer retweeted
Come & Join The MOVE!
Kidney Cancer Canada's Move to beat Cancer is live & welcoming participants, teams & donations, to make an impact on kidney cancer! You can join via our website by clicking the banner or scanning this QR Code!
All 'movement' is welcome!
What's your move!?
IKCC Kidney Cancer retweeted
How could artificial intelligence change the future of #KidneyCancer care?
@arihakimi @MSKCancerCenter shares which AI innovations have the greatest potential to improve patient care and highlights the area of kidney cancer research from #KCRS26 that he's most excited about.
Watch the full interview to hear how technology and scientific discovery are shaping the future of kidney cancer research.
#AcceleratingCures
IKCC Kidney Cancer retweeted
What if you could spend one day learning directly from kidney cancer experts and people who have walked this path too?
Join us on 9/26 for our Virtual Patient Symposium, featuring leading experts, education & inspiring stories. 🧡
Registration is FREE: kidneycancer.org/event/virtu…
IKCC Kidney Cancer retweeted
Scans such as CT, MRI & ultrasound are being used more often, many #kidneycancers are now found when being scanned for another reason.
This is good progress because it means some cancers are found earlier. It also raises important questions?
Read more:
actionkidneycancer.org/over-…
