ITP Research (@ITPResearch) header
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ITP Research

@ITPResearch

Focused on research and drug development for Immune Thrombocytopenia (ITP) so every patient has a treatment. Founder: @RareCandace #ITPAware

 United States
rarecandace.com
Joined May 2019
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  • Followers169
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Photo by ITP Research (@ITPResearch)Photo by ITP Research (@ITPResearch)Photo by ITP Research (@ITPResearch)Photo by ITP Research (@ITPResearch)Photo by ITP Research (@ITPResearch)Photo by ITP Research (@ITPResearch)
Ready to download FREE - The June 2023 edition of the Platelet is now available to download itpsupport.org.uk/index.php/… @mervyn_t_morgan @UKITPR @ITPResearch @itpcooperuk
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The ITP Support Association 2023 UK ITP Convention - The Conference Agenda is a Who's Who of International ITP Experts. A FEW TICKETS REMAIN AVAILABLE and may be reserved via the link below - To Book click here. eventbrite.co.uk/e/itp-suppo… #itpaware
Image from ITP Support Assoc (@ITPSupportAssoc)
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For Rare Disease Day 2023 here is my ITP story -SIXTEEN YEARS RARE AND STILL IN THE PURPLE  itpsupport.org.uk/index.php/… @rarediseaseuk @RareDiseasesDay @mervyn_t_morgan @RareRevolutionM @ITPResearch @UKITPR
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ITP Research retweeted
RPTH (@RPTHjournal) profile picture
RPTH@RPTHjournal10 Feb 2023
How frequent are serious bleeding events in #multiplemyeloma patients on #anticoagulation, and which risk factors and types of anticoagulants are associated with an increased bleeding? Find out in this new study by @diegoah66 and colleagues. #mmsm rpthjournal.org/article/S247…
Image from RPTH (@RPTHjournal)
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ITP Research retweeted
RPTH (@RPTHjournal) profile picture
RPTH@RPTHjournal6 Oct 2022
Do you treat adult patients with #ITP? This new #RPTH article reviews the treatment of over 300 adults in Australia. Treatment failure was common; over half of the cohort received one or more second-line treatments. Click here for all of the details: bit.ly/3rlhGsV
Image from RPTH (@RPTHjournal)
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As we come to the end of #ITPAwarenessWeek2022 what a bonus, £2,400 raised thanks to the efforts of friend of the ITPSA Rob Clarke who auctioned off a number of signed DVDs donated by Superstar Ryan Reynolds. #ITPAwareness #ITPSA #Global4ITP #ITPAware #ITPAwarenessWeek2022
Image from ITP Support Assoc (@ITPSupportAssoc)
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A Patient’s ITP experience which I am sure will resonate with so many of us ITP sufferers. #itpaware #itpawareness. ⁦@laurenjaynew⁩ ⁦@mervyn_t_morgan⁩ ⁦@PDSA_ITP⁩ ⁦@ITPResearch⁩ ⁦@UKITPR⁩ ⁦@Patch1Purple⁩ youtu.be/95Cnxf5awYg
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Coming Soon Global ITP Awareness Week @ITPSupportAssoc @PDSA_ITP @UKITPR @ITPResearch #itpaware #itpawareness
Image from MyPurplePatch 💙 (@Patch1Purple)
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You can register NOW for this year's ITP Supp Assoc annual convention being held via ZOOM on May 14th and 15th. The entire event is open to anyone with any interest in ITP and it is absolutely FREE - itpsupport.org.uk/index.php/… @mervyn_t_morgan @ITPSupportAssoc @ITPResearch @UKITPR
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September is ITP Awareness Month across the World. Full details of how to get involved are at globalITP.org ⁦@ITPSupportAssoc⁩ ⁦@ITPResearch⁩ #itpaware #itpawareness
Image from MyPurplePatch 💙 (@Patch1Purple)
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ITP September Awareness. Details of this annual, global campaign can be found at globalITP.org @rarediseaseuk @PDSA_ITP @ITPSupportAssoc @ITPResearch #goglobal4ITP
Image from MyPurplePatch 💙 (@Patch1Purple)
Image from MyPurplePatch 💙 (@Patch1Purple)
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Details of the Global ITP September Awareness campaign can be found at globalITP.org @ITPSupportAssoc @rarediseaseuk @ITPResearch @PDSA_ITP
Image from MyPurplePatch 💙 (@Patch1Purple)
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As an #ITPsurvivor I’m always passionate about finding new treatment methods and supporting research. @StuffThatWorks1 is currently searching for responses of those with ITP to contribute to a new report and to build a stronger community. stuff.health/s/pHan7i3N
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Another great article & terrific advice from a wonderful advocate for ITP our enigmatic illness -"You have to be a team with your doctors, and it has to be a community effort " Here's Candace’s Story -cdc.gov/ncbddd/blooddisorder… via @CDCgov @ITPSupportAssoc @PDSA_ITP @ITPResearch
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For anyone who hasn't seen it yet, here is PART TWO of a video explaining my 15 year ITP story to date. I hope it helps other people living with ITP to hear a little about my journey- youtu.be/z59X-Qge2Tg @ITPSupportAssoc @ITPResearch @UKITPR
Image from MyPurplePatch 💙 (@Patch1Purple)
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For anyone who hasn't seen it yet, here is PART ONE of a video explaining my ITP story to date - youtu.be/pIbCHke9oBI PART TWO follows tomorrow @ITPSupportAssoc @ITPResearch @UKITPR
Image from MyPurplePatch 💙 (@Patch1Purple)
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Interesting article in the New Scientist - AstraZeneca covid-19 vaccine may hinder blood clotting in rare cases | New Scientist ⁦@ITPSupportAssoc⁩ ⁦@ITPResearch⁩ ⁦@PDSA_ITP⁩ newscientist.com/article/228…

AstraZeneca covid-19 vaccine may hinder blood clotting in rare cases | New Scientist

Research suggests the Oxford/AstraZeneca coronavirus vaccine is associated with a slightly increased risk of some bleeding disorders, but its benefits continue to outweigh the risks

newscientist.com
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Very interesting article on the AstraZeneca vaccine: How do you weigh up the risks and benefits? - BBC News ⁦@ITPSupportAssoc⁩ bbc.co.uk/news/explainers-56…
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Thank you to everyone who has already sent in your films but if you haven't done so yet we still need your stories. Check out the following link to how to - Get your ITP videos in Promo youtu.be/ZzGLI4ll2g0 via @YouTube @ITPSupportAssoc
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ITP Research retweeted
Ben Killner (@BKillner) profile picture
Ben Killner@BKillner24 Mar 2021
I’ve sent my ITP story video to @mervyn_t_morgan & @ITPSupportAssoc, make sure you get your story in before 31st March! Send your ITP videos to [email protected]
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