Empowering families. Fighting Duchenne muscular dystrophy.
Norwell, MA
Joined August 2013
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What is it like to have a sibling living with Duchenne?
In this episode of our podcast, Beyond the Diagnosis: Duchenne Perspectives, Luke Hains and Lydia Safford share their experience.
🎧 Listen to the new episode on Spotify and Apple Podcasts!
open.spotify.com/episode/2mT…
Jett Foundation congratulates the Webb/Draper family on receiving a new accessible van through our Accessible Vehicle Fund!
The family can now travel together more easily and spend less time worrying about transportation.
Congratulations!
Read more: jettfoundation.org/blog/webb…
Attention, families! There's just 1 day left until our NY Family Workshops!
Join us to hear from clinicians, pharmaceutical companies, and local experts as they discuss Duchenne care, clinical trials, and more.
For more information, visit our website: jettfoundation.org/family-wo…
It’s time to put your music knowledge to the test at tonight’s Singo Bingo! 🎶
Starting at 7PM ET, we’ll be playing throwbacks and current hits to see who can match them on their bingo card.
Register to play on our website: jettfoundation.org/event/cam…
Last Wednesday, @entradatx shared new updates on its ongoing clinical research for DMD, including studies evaluating potential treatments for ambulatory children and young adults who are eligible for exon 44 or exon 45 skipping.
Read more: jettfoundation.org/duchenne-…
Interested in applying for Jett Foundation’s Accessible Vehicle Fund?
Join us today at 1PM ET for our Community Webinar to learn how the fund helps eligible families affected by DMD access a vehicle that meets their needs.
Sign up here: jettfoundation.org/event/com…
Tonight, join us from 9-10:30PM ET for virtual Porch Nite, one of our family support groups for the Duchenne community.
Today’s session is geared toward caregivers of children under 7 and offers a chance to learn from others.
Register here: jettfoundation.org/event/por…
A new accessible van is opening up more possibilities for the Diemler family!
Through Jett Foundation's Accessible Vehicle Fund, Henry, 19, can bring his power wheelchair wherever he goes, giving him more independence and freedom.
Read their story: jettfoundation.org/blog/diem…
We’re just 1 week away from our NY Family Workshops in White Plains and Harlem, and there’s still time to register!
Join us on October 24th or 25th to connect with clinicians, researchers, and other families affected by DMD. Visit our website for details: jettfoundation.org/family-wo…
The Cambridge Half Marathon & 5K is almost here, and there’s still time to join Team Jett!
Skip the candy and spend your Halloween weekend raising awareness for DMD. 🏃♀️➡️🏃➡️
Spots are filling up quickly, so don’t wait! Visit our website to register: jettfoundation.org/cambridge…
Join Team Jett next month at the Charlotte Half Marathon & 5K on Saturday, November 14, to support individuals and families impacted by Duchenne muscular dystrophy.
Register today and make a difference.
For more information, visit our website: jettfoundation.org/team-jett…
Get ready for a spooky night of trivia at Camp Promise Game Night tonight at 7PM ET.
Join us for Halloween Jeopardy and put your knowledge to the test with questions about everything from scary movies to candy! 🍬👻
Visit our website to sign up: jettfoundation.org/event/cam…
Join us next Tuesday at 1PM ET for our Community Webinar: Navigating the AVF Application Process.
We’ll take you through the application process, explain eligibility requirements, and discuss how application decisions are made.
Register today: jettfoundation.org/event/com…
Navigating a new Duchenne diagnosis can feel overwhelming, and knowing where to turn for support isn’t always easy.
Our Welcome Packet is a great place to start, with helpful information and resources for you and your family.
Request your packet today: jettfoundation.org/diagnosis.
Applications are officially OPEN for our Accessible Vehicle Fund! Getting where you need to go shouldn't be a battle. Our program provides financial support to help Duchenne families secure accessible transportation. Apply here: jettfoundation.org/giving-fu…
Join us in NY for our Family Workshops supporting those with DMD.
Whether you’re looking for information, resources, or simply a chance to connect with others, we’d love to have you with us.
Travel assistance is available for those in need. Message us for a link to apply.
In July, Jaden Smith, a 16-year-old living with DMD, received a foldable power wheelchair thanks to our Equipment Assistance Fund.
The power chair has helped Jaden navigate around his house and travel more easily.
Learn more: jettfoundation.org/blog/jett…
Join us today at 11:30 AM ET for Carrier Conversations, a monthly virtual support group for female carriers of DMD.
Take some time to connect with others, share experiences, and find support in a welcoming environment.
For more information visit: jettfoundation.org/event/car…
On September 30th, @SatellosBio announced that enrollment is complete for BASECAMP, a Phase 2 clinical trial evaluating forazapadin in boys living with DMD.
The company expects to share trial data in the first quarter of 2027.
Read more: jettfoundation.org/duchenne-…
