Lupus Puerto Rico 🇵🇷 (@LupusPR) header
Lupus Puerto Rico 🇵🇷 (@LupusPR) profile picture

Red de apoyo a pacientes de #lupus en Puerto Rico. #LupusPR

San Juan, PR
Joined December 2013
Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)
Lupus Puerto Rico 🇵🇷 retweeted
Let's make lupus visible. ACR is putting on purple to raise awareness on World Lupus Day. ACR Fights Lupus! #ACRFightsLupus #MakeLupusVisible #WorldLupusDay #PutOnPurple
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Lupus Awareness Month starts today! Get ready to support millions impacted by lupus on #WorldLupusDay, May 10! Wear purple, share facts, and more. Learn more ways to get involved on World Lupus Day: worldlupusfederation.org/202…
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Lupus Puerto Rico 🇵🇷 retweeted
Today marks the first day of #LupusAwarenessMonth! This month celebrates the #lupuscommunity and progress being made in #lupusclinicalresearch.  Today’s discussions at the #LupusTherapeutics #LuCINCommunity Meeting, centered on the theme Integrating Clinical Trials into Day-to-Day Clinical Care, provide hope for the future of #lupus treatment and clinical research. Participation in clinical research and increasing access to clinical trials are critical to the development of more effective therapies in #lupus. Learn more at: bit.ly/4sH9H7J #HopeInActionTheFutureOfLupus
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Lupus Puerto Rico 🇵🇷 retweeted
It’s happening! 🎇 The #ACR26 Call for Abstracts opens TOMORROW, April 14. Submit your best #rheum research for peer review—are you ready to share your science? Details → acr.tw/3C3kv7B
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Lupus Puerto Rico 🇵🇷 retweeted
Do you know a community #rheum who has significantly advanced the practice of #rheum w/innovations that improve the care of patients w/#rheum disease? ⚕️ If yes, consider nominating them for the ACR Innovation in Clinical Care Award by April 1. Details → acr.tw/3S9pQTS
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Lupus Puerto Rico 🇵🇷 retweeted
Increasing diversity in #lupus research is key to advancing clinical trials. At #ACR25, LFA shared new Research Accelerated by You (RAY) Registry findings on boosting participation & outreach—especially in Black/African American communities. Read more: buff.ly/AEvlrq8
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Lupus Puerto Rico 🇵🇷 retweeted
One of the most awaited sessions at #ACR25 ! 💜 Dr. Lisa Sammaritano unveiled key #Lupus updates 👇 ✨ HCQ for all 💪 Taper steroids early 🧠 Early IS — control inflammation, minimize GC toxicity 🤝 Shared decisions matter #ACRambassador @ACRheum
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Lupus Puerto Rico 🇵🇷 retweeted
Patients’ voices matter in #lupus drug development. On 10/26 at 10:30 AM CT in the Poster Hall, learn how the Lupus Accelerating Breakthroughs Consortium (#Lupus ABC)—a public-private partnership convened by the Lupus Research Alliance with the FDA and the lupus community— explored better integration of patient-reported outcomes (PROs) in clinical trials to ensure perspectives of people with lupus are fully reflected. #ACR25 #LupusResearch
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Lupus Puerto Rico 🇵🇷 retweeted
Honoured to share our progress and next steps for the revised organ damage index (SDI) for #lupus at the 2025 Autumn #SLICC group meeting during @ACR2025
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Lupus Puerto Rico 🇵🇷 retweeted
Walking through a patient case to discuss the ACR Lupus Nephritis guidelines.. including what to consider for complete or partial renal response! #ACR25 #ACRAmbassador #rheumx
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Lupus Puerto Rico 🇵🇷 retweeted
Panelists will share data from preliminary studies of CAR-T-cell therapy treatment for lupus and review potential future therapies on Sunday afternoon at #ACR25. 🔗 Learn more → acr.tw/47Ee8rH
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Lupus Puerto Rico 🇵🇷 retweeted
Excelente resumen de @DrGomezPuerta de los casos publicados hasta la fecha de enfermedades reumatológicas tratadas con CAR-T 🔬🧫🧬 #ACR25
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Lupus Puerto Rico 🇵🇷 retweeted
👏 Congrats to Simone Stein, winner of the Alpha Science Case Report Award for her report on a novel SLE treatment using SERMs in naturopathic care! Thank you @AlphaScienceLabs for your support! #CCNM #AlphaScienceLabs #NaturopathicMedicine #SLE #CaseReport #StudentSuccess
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Lupus Puerto Rico 🇵🇷 retweeted
🏆 We’re thrilled to announce that #LupusGPT has won the @PFMDwithPatient #MadeWithPatients Award 2025! 🌍A huge moment for Lupus Europe & the #lupus community — proving what’s possible through true patient collaboration.  😃Celebrating at #EULAR2025! Come join us at booth O15!
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Lupus Puerto Rico 🇵🇷 retweeted
Full house and really impressive results with CAR-T cell therapy in now 27 patients with refractory #Lupus (92% remission). Hopefully these extraordinary results can be reproduced in a larger trial. #EULAR2025 #Rheumatology #RheumTwitter
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Lupus Puerto Rico 🇵🇷 retweeted
We are at EULAR 2025 in Barcelona! Come meet us at the SLEuro booth O10 in the glass walkway (floor 1) at Fira de Barcelona #EULAR2025 #SLEuroSociety
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Lupus Puerto Rico 🇵🇷 retweeted
🎙️ We caught up with Lupus Steering Committee member Dr. Guillermo Pons-Estel at #LUPUS2025, shortly after his insightful fishbowl session: "What to Do When HCQ Needs to Be Stopped Due to Toxicity." Watch the video for his key takeaways from the discussion!
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Lupus Puerto Rico 🇵🇷 retweeted
💜 Today is #WorldLupusDay, and we are sending love and support to the worldwide lupus community. May is also #MentalHealthMonth, and we know the toll living with lupus can take on mental health. We’re partnering with our long-time friend and lupus advocate @selenagomez who shares a personal message to show you that you’re not alone. ✨ Learn how you can get involved with the Lupus Research Alliance at LupusResearch.org
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It’s #WorldLupusDay! Today, we unite to raise our voices and bring attention to the impact of lupus worldwide. Put on your purple, share our awareness shareables and discover how you can help #MakeLupusVisible: worldlupusday.org/tool-kit/
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Lupus Puerto Rico 🇵🇷 retweeted
Let’s put on purple to raise awareness on World Lupus Day. ACR fights lupus! 💜 #ACRFightsLupus #POP #PutOnPurple #WorldLupusDay #MakeLupusVisible @LupusInitiative
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