MDS Foundation

You’re invited to connect with your MDS community in Phoenix, AZ. Our Patient & Family Forum is taking place November 14 from 8:00 AM–2:00 PM, bringing patients, caregivers, and loved ones together for a day of education, and support. Register today: bit.ly/4rQj0lY

We invite healthcare professionals to participate in our MDS Healthcare Professionals Survey. The insights you share will guide our programs, educational efforts, and initiatives. Take a few minutes to share your voice and help us move MDS care forward: bit.ly/4qLRgyz

Faron Pharmaceuticals is conducting a placebo-controlled trial of bexmarilimab (BEXERA) combined with standard of care azacitidine. Newly diagnosed patients 18 or older with higher-risk MDS may qualify. Learn more at bit.ly/bexera or email [email protected].

Today is MDS World Awareness Day. This year, YOU told us that Understanding Your Treatment Options is what our community wanted to see in the spotlight. Today, we are sharing this resource, created in response to what you told us matters most to you. bit.ly/4zwkKnh

Make the most of your ASH weekend by joining the MDS Foundation for our Friday Satellite Symposium, MDS In Practice: Navigating Complex Decisions Across the Disease Spectrum, on Friday, December 11, 2026, from 7:00–10:00 AM. Register today: bit.ly/4iQcw4l

At the MDS Foundation, we’re proud to stand alongside patients and families at every step, providing trusted education, meaningful support, and connections to a community that understands. Because no one should have to face MDS alone. 💙

More options are needed for MDS A clinical research study is now enrolling for MDS and MDS-related anemia To learn more and find out if you qualify visit bit.ly/ELRiSETakeda or contact: Lisa Liskey [email protected] (609) 298-1600 x.201

Thank you to everyone who came yesterday for the Boston Move for MDS Walk. Your enthusiasm, compassion, and commitment made the day truly unforgettable. Couldn’t join us in Boston? Register for our Virtual Move for MDS Walk and walk wherever you are: bit.ly/4dL9DhV

An early look at our new MDS resource, made possible by you! Hundreds of you voted to shine a spotlight on ‘Understanding Your Treatment Options’ as the focus of #MDSWorldAwarenessDay Live first on the MDS Exchange, ahead of its release on October 25: bit.ly/4zwkKnh

Join us April 14-16, 2027, for the 19th International Congress on Myelodysplastic Syndromes (MDS 2027). Connect with leading experts, discover the latest research and advances, and explore what’s next for MDS care. Register today: mds.kenes.com/ #MDSCommunity

The Boston Move for MDS Walk is happening THIS SUNDAY, October 18. Join us for a meaningful day of coming together to honor  those affected by MDS. Gather your family and friends, lace up your shoes, and get ready to #MoveForMDS Register today: bit.ly/4eCYlfe

Living with MDS and MDS-related anemia means constant blood transfusions, unpredictable fatigue, and shortness of breath. Consider participating in clinical research exploring potential options for adults with MDS and MDS-related anemia. Learn more: bit.ly/RENEWTakeda

One of the benefits of our Center of Excellence partnerships is the opportunity to connect more patients with specialized MDS care. We can connect patients with Centers of Excellence for second opinions, clinical trials, and specialized care. Learn more: bit.ly/3thyQMA

Join the MDS Foundation during your ASH weekend for our Friday Satellite Symposium, MDS In Practice: Navigating Complex Decisions Across the Disease Spectrum, taking place Friday, December 11, 2026, from 7:00–10:00 AM. Register today: bit.ly/4iQcw4l

Only 10 days to go. ⏰ Join us on October 18 as we come together with patients, caregivers, families, friends, and supporters to walk for the MDS community. Register today and join the movement: bit.ly/4eCYlfe

Connect, learn, and find support at our Patient & Family Forum in Kansas City, MO. Join us on October 24 from 9:00 AM–2:00 PM for a day dedicated to patients, caregivers, and loved ones in the MDS community. Register today: bit.ly/4xq33ox

Rigel Pharmaceuticals, Inc. Is conducting a study with R289 on patients who are relapsed/refractory/resistant to prior LR-MDS therapies. Every participant will receive R289. Determine eligibility at bit.ly/IRAKRigel or contact Lisa Liskey at [email protected]

You voted. We listened. 💙 This MDS World Awareness Day (Oct 25), we’re putting Understanding Your Treatment Options in the spotlight, the #1 topic chosen by our community. Join the conversation on the MDS Exchange: mds-foundation.org/support/v… #VoicesOfMDS #MDSWorldAwarenessDay

Join us on November 7 from 12:00–3:00 PM EDT for a global virtual event created for the MDS community. You’ll also have the opportunity to ask questions and find support. A Zoom link will be sent to your email after registration. Register today: bit.ly/4hRHhES

This Health Literacy Month, the MDS Foundation is highlighting the educational resources available to help people impacted by MDS better understand and make informed decisions about their care. Explore the MDS Foundation’s educational resources: mds-foundation.org/