
#MEAction UK focuses on campaigning and advocacy in the UK a part of the charity MEAction UK.
United Kingdom
Joined June 2016
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It was a busy day on Thursday at the @rcgp conference. Volunteers such as Pam, joined by Avril from Action for ME, engaged with more than 130 doctors from all over the UK, handed out many more leaflets & quite a few chocolates!
#MyalgicEncephalomyelitis #pwME #RCGPAC26
We had a busy day on Thursday at the @rcgp conference. Volunteers such as Pam, joined by Avril from Action for ME, engaged with more than 130 doctors from all over the UK, handed out many more leaflets & quite a few chocolates!
#MyalgicEncephalomyelitis #pwME #RCGPAC26
MEAction UK were pleased to meet a representative of the Lyme Resource Centre - Scotland at the #RCGPAC26 The MEAction UK & Action for ME stand has been busy with our volunteers working hard to answer questions & hand out information.
#MyalgicEncephalomyelitis
MEAction UK are attending the #RCGP conference in Glasgow with Action for ME.
We’re here to tell delegates about #LearnAboutME & how to support #pwme. We’ve already engaged with GPs, registrars, medical students & pharmacists with positive reactions.
#MyalgicEncephalomyelitis
Did you know that MEAction UK has its own mailing list? Sign up for a closer look at our work in England, Scotland and Wales, including campaigns, updates and information. meaction.org.uk/sign-up
#MECFS #LongCovid #MillionsMissing
Our thanks go out to @BethDobbin for speaking about her illness to raise awareness, even at the cost of her own health and for describing the impact of ME so vividly. Beth is bed bound for 22 hours a day.
We know how isolating this is so want her to know that she is not alone.
bbc.co.uk/sport/athletics/ar…
#MyalgicEncephalomyelitis #VerySevereME
The producers of a new documentary on ME/CFS and Long COVID, 'What Doesn't Kill You', are looking for people's experiences of living with these illnesses.
whatdoesntkillyou.movie/#pro…
Through an online video interview, people answer questions about their lives and experiences in their own words, from home. Clips from these interviews are woven into the documentary to show what living with these illnesses is really like.
If you are interesting in taking part follow the ink below. Please bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME
Clips from these interviews are woven into the documentary to show what living with these illnesses is really like.
If you are interesting in taking part follow the ink below.
Please bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME
Watch David Tuller's interview with George Monbiot using the link below.
youtu.be/MaaeQ7crLz4?si=8R-f…
#SevereME #pwME
George Monbiot writes about the 'astonishing, ongoing mistreatment of people with #ME/CFS.' Share it - let's help it go viral!
shorturl.at/YSKvx
#MyalgicEncephalomyelitis
theguardian.com/commentisfre…
George Monbiot has sent out a call asking 'Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email [email protected]
#pwME #VerySevereME
Please read this petition update about Karen Gordon and sign if you haven't already. Be aware that Karen is still very ill and having a hard time in hospital, so read with caution.
change.org/p/save-karen-gord…
#VerySevereME
The #MEAction Network Severe ME Artists Project has many wonderful pieces of art to share with you. Please share some love with the artists.
nitter.cf/MEActNet/status/208607…
#SevereMEWeek2026
In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026! Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork.
meaction.net/post/honoring-s…
#SevereME
The most severely ill people with ME have nowhere to go, no treatment, no ward, no NHS service. They need a specialised service and virtual wards to be commissioned now! Your MP can help by lobbying Yvette Cooper, the new Secretary of State for Health and Social Care.
Use our advocacy guides to contact your MP.
meaction.org.uk/news/2026/08…
#VerySevereME #SevereME #SevereMEWeek2026 #SevereMEAwareness












