ME/CFS San Diego

ME/CFS Therapy and Patient Autonomy: Chronic Living Therapy challenges the BPS framing of PEM-related activity restriction as avoidance, and how therapists pressure patients to accept psychological explanations. chroniclivingtherapy.com/the…

Workwell Recruitment (PEM Concern): Women w/ ME/CFS or Healthy Controls Needed for Maximal 2-Day CPET Study: Developing a non-invasive method to measure blood flow to the head. conta.cc/4e40SQd

NZ ME/CFS/LC Insurance: Groups challenge mental-health clauses used to deny post-viral illness claims; @anzmes seeks member experiences. scoop.co.nz/stories/BU2610/S…

Disability Support Services: @AAPD Lilly Grossman makes the case for portable disability supports, so people don't lose access to essential care when crossing state lines. aapd.com/olmstead-what-comes…

Symptom Survey @MEResearchUK : Share anonymous quotes about your ME/CFS symptoms for use in public awareness, publications & internal education. tinyurl.com/senshypsurveyME

ME/CFS San Diego Joins National Advocacy Effort: Adding to the ME/CFS community's voice in fighting OMB research restrictions & urging policymakers to protect research, medical innovation, & public health. researchamerica.org/weekly-l…

ME/CFS Genetics and Post-COVID Recording: Professor Chris Ponting presents the latest research at the 2026 @RMEsverige Conference, October 27. youtube.com/watch?v=7JlfObRK…

U.S. Biomedical Research: NYT reports grant disruptions and political interference threatening science. nytimes.com/2026/10/31/scien… (Gift Article)

Submit public comment by Nov/2: Proposed 2030 Census changes exclude people from population counts & eliminate key demographic data used to identify health disparities & allocate resources. regulations.gov/commenton/US…

NIH Disability Health Research Priority: Seeks whole-person studies of factors shaping disabled people's health, with disabled people as research partners and tailored interventions. grants.nih.gov/funding/find-…

James Baraniuk Returns to @NCNEDResearch : His previous collaboration included research finding altered brain-network connectivity during cognitive exertion in LC, using 7T fMRI. nature.com/articles/s41598-0…

LC Cohort Eligibility Study: Different inclusion criteria can substantially change size, demographics & healthcare utilization of EHR-based LC cohorts. Routine eligibility requirements can introduce selection bias and limit how well findings generalize. link.springer.com/article/10…

ME/CFS Research Student Placements: @Invest_in_ME funded three undergraduates for 8 weeks at Quadram, gaining lab experience in microbiome and virus research linked to COMPASS-ME. Reflections and video: investinme.org/iimer-summer-…

LC Workplace Rights: HHS closed its LC office; Labor removed workplace guidance. Growing employer resistance to ADA accommodations reported. motherjones.com/politics/202…

NSF Research Funding Unspent: $1.4B, nearly 20% of its FY26 research budget, Rep. Lofgren seeks answers about possible diversion to White House priorities (incl. AI & quantum computing). thehill.com/policy/energy-en…

Voting Resources @MEActNet : Early voting remains available in some states. State-specific guidance to help people w/ ME/CFS/LC make a voting plan: ow.ly/yRZ15102CvG

Reminder @PlzSolveCFS SIGNAL Study Webinar, Nov 10, 3 pm PST: @RenegadeRes discusses Catalyst Award-winning project w/ home-based device lending library & longitudinal patient data to evaluate potential ME/CFS/LC treatments. solvecfs.org/event/the-signa…

ME/CFS/LC and School: Recorded @EmergeAus Q&A w/ @missing_school on reasonable adjustments & maintaining students' connection to learning during prolonged illness absences. emerge.org.au/news/navigatin…

Beth Dobbin's Parents' Message: A personal account of Beth's severe ME/CFS & its impact on their family.

ME Doctors Global Directory: Free, Volunteer-run Patient-recommended doctors & clinics in 19 countries, w/ 654 listings created by patients, no ads or revenue. medoctors.org/