Working to raise awareness and to support those affected by Motor Neurone Disease in the Mid Kent area
South East, England
Joined October 2015
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Huge thanks to the Garden of England Crematorium for their very generous donation to Branch funds. This will make a massive difference to the work we do to support local people living with MND and their families 🧡.
Mid Kent Branch MNDA retweeted
As we head into winter, it's worth checking the latest guidance on flu and COVID-19 vaccinations if you're affected by MND.
Find out more. 🔗mndassociation.org/support-a…
Mid Kent Branch MNDA retweeted
Today, we attended a National Institute for Health and Care Excellence (NICE) committee appraisal listening to the evidence for making tofersen available on the NHS people with SOD1 MND.
Here, Professor Al-Chalabi, from @KingsCollegeLon gives us a recap of how the meeting went, and we'll keep you updated as things progress.
Mid Kent Branch MNDA retweeted
Congratulations, Sir Kev. 👏
Fresh off raising a further £1.6 million for MND charities, Sir Kevin Sinfield was officially invested today at Windsor Castle.
Mid Kent Branch MNDA retweeted
Together with @NeuroAlliance, we’re calling on the Government to commit to a national plan for neurological conditions by introducing a Modern Service Framework for neurological conditions.
Together, we can improve access to services, reduce emergency admissions, and reduce health complications.
Add your voice and sign the open letter now: campaigns.mssociety.org.uk/p…
Mid Kent Branch MNDA retweeted
£1 MILLION 🤩
Sir Kevin Sinfield’s final 7 in 7 challenge has hit £1,000,000 in money raised for MND charities.
No words…other than thank you. 🧡 This money is so vital in bringing us closer to a world free from MND.
As we head into day 6, you can donate here. 🔗 mndassoc.org/7in7grandfinale
#7IN7 #7IN7GrandFinale
Mid Kent Branch MNDA retweeted
What a day for the Burrows family.
Rob Burrows son Jackson Burrow scores the winner for team Burrow 🥹
We'll be manning our tombola stand at Doddington Village Fete tomorrow. If you're in the area, why not pop along?
Mid Kent Branch MNDA retweeted
Understanding the causes of MND is key to finding treatments. That's why we're investing millions of pounds into research.
A mixture of genetic, environmental and lifestyle factors are thought to contribute to the development of MND. Together these 'risk factors' may contribute to the development of MND, but they may not be enough to cause MND on their own.
You can read more about what we know so far here. 🔗mndassoc.org/whatcausesmnd
Mid Kent Branch MNDA retweeted
As reported in the Sunday Times, pharmaceutical company Trace Neuroscience has begun an early-stage clinical trial of TRCN-1023, a potential treatment that could benefit the 97% of people with MND who have sporadic (non-inherited) disease.
Our Chief Scientist, Dr Brian Dickie, said:
"Although this is an early-stage trial, it represents an important step in the search for new, effective treatments for the majority of people with MND."
The MND Association is proud to have jointly funded, with the Medical Research Council, the fundamental research that helped identify this new therapeutic target and support its journey from the laboratory to clinical trial.
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#MND #ALS #MNDAssociation #MNDresearch
Big thanks to the Garden of England Crematorium at Bobbing, near Sittingbourne, for inviting us to their Open Day. Several people took leaflets and asked questions about MND and the Association. Ellie's delicious cupcakes were very popular too!
Great article from @friendsofwisdom about our regular Support Group meetings. They've been described by many as a lifeline and we're delighted to be able to fund them.
Big thanks to @TheShaunWallace for hosting our annual quiz again. A great night as usual, with over £1800 raised to support local people living with MND.
Mid Kent Branch MNDA retweeted
On average, it takes 12 months for vital home adaptations. This is unacceptable, people with #MND don’t have time to wait.
Contact your local councillor and ask them to speed up the DFG process 👇
act.mndassociation.org/2025-…
Mid Kent Branch MNDA retweeted
Today on Mother's Day, we are remembering all the mother's who we have lost to motor neurone disease.
And we are sending so much support to all the mother's with or affected by MND. We won't rest until there's a cure.
We are sending lots of love. 🧡
Mid Kent Branch MNDA retweeted
We’ve been looking urgently into how we can help improve access to tofersen for people living with SOD1-MND in the UK. Too many are still prevented from accessing this life-extending treatment, and that must change.
Read what we’re doing to help fix this: myname5doddie.co.uk/whats-on…
