MPN Voice supports people with rare blood cancers called myeloproliferative neoplasms (MPNs). We offer information, give emotional support and fund research.
Joined March 2011
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MPN Voice retweeted
A joy to walk with some of GSTT team MPN this morning to raise awareness of MPN and Blood Cancer! The weather was kind and after a total of 30 miles between us the coffee and croissant were welcome!! Great job team @MPNVoice @MPNSM @G_ICEMD @bloodcancer_uk
MPN Voice retweeted
@amyywoodruff striker great person (inspiring mother also jd model ) @shaunalegge captain always gives 110 percent @MPNVoice will pop the link below @bignorms @DWindass10
MPN Voice retweeted
NEW SHOW // ON SALE NOW! 🚨
@MPNVoice presents
Mile of Noise here at Polar Bear Music Club #Hull on Saturday 21st June 2025!
➳ 5PM DOORS // 14+
➳ £6.00 TICKETS bit.ly/4iWlV7b
A night of fundraising and music, featuring:
#FragileActs #Kreye #TheSoverigns + more
MPN Voice retweeted
Setting off from @VisitBrighouse to @officialgtfc #nofeartour29 raising awareness for @MPNVoice It’s absolutely Baltic but you have to show up in life even with an incurable blood cancer
MPN Voice retweeted
@officialgtfc thank your staff at the club shop for being absolutely super stars the passion the knowledge of the club shows #nofeartour29 raising awareness for @MPNVoice
MPN Voice retweeted
So excited to share these updates on #MyeloproliferativeNeoplasms from #ASH24 w/ good friends at @mpnadvocacy @LevineCancer @AtriumHealth @wakeforestmed @MPN_Hub @MPNVoice @MPN_RF @doctorpemm youtu.be/VE6TrdKYAoY
MPN Voice retweeted
@MPNVoice young patient network’s work on the impact on #AYA patients of having an #MPN diagnosis. Huge unmet needs. Swing by and say hi at #ASH24
@kingsmedicine
MPN Voice retweeted
@DrHelenOram with Alice Watson - Alice helped to develop resources for young patients with MPN in collaboration with @MPNVoice #mpn
MPN Voice retweeted
Fab little books for children to help parents talk to their kids about their MPN spotted at the @MPNVoice desk at the Myeloproliferative Neoplasms Advances Day today
MPN Voice retweeted
Busy news day for the @ASH_hematology 2024 abstracts publication, but just wanted to big up the work Alice from @MPNVoice and the MPN Young Person's Network have been up to this year
MPN Voice retweeted
Visit the new AR-enhanced art exhibition dedicated to #MPN10 and #BloodCancerAwareness, created by @MPNVoice & @NovartisUK. See it outside the ARC until September 22nd. #BloodCancerAwarenessMonth.
Find out more: novartis.com/uk-en/mpn10
MPN Voice retweeted
Very pleased to share our work on development of natural language processing pipeline to assess cardiovascular risk and thrombotic complications in MPN. Machine learning approach allowing assessment of health records of >900 patients and >23000 documents
onlinelibrary.wiley.com/doi/…
MPN Voice retweeted
#PolycythemiaVera (PV) is a rare disease that impacts a person's healthy red blood cells. In collaboration with @MPNVoice, we've created a coloring book that explains this disease and #GeneSilencing. Download to #ShareYourColors: bit.ly/3sy3MrL #SilenceIsGOLDen
MPN Voice retweeted
@MPNSM @MPNVoice critically important to highlight the needs of our young patients. This is an excellent paper happy to be a part of it! @doctorpemm and team @HannahGoulart @timetodiseasemodofyMPN
👉👉👉Just in time for #EHA24 ➡️ our new paper led by Dr @HannahGoulart & @doctorpemm on state-of-the-art review on MPN AYA field in @BrJHaem | #MPNSM #AYACSM | @MDmasarova @mpdrc @harrisoncn1 @jjkiladjian
MPN Voice retweeted
Excited to launch our updated "Share Your Colors" coloring book on #Polycythemiavera & #GeneSilencing for the PV community! Big thanks to our partner @MPNVoice for their collaboration. Get your copy: bit.ly/3sy3MrL #ShareYourColors #SilenceRareDisease
MPN Voice retweeted
Usual Monday plea!! Can you help share? Would be great to have more data from those with @WmukInfo,@MyelomaUK, those with Acute Leukaemias (on or off treatment) and those with an @MPNVoice! Thank you so much x
Link here 👉👉brookeshls.co1.qualtrics.com…
MPN Voice retweeted
@mpnvoice @mpmsm calling patients to think about signing up for MyMPNvoice and colleagues to recommend this to your patients
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