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NE PANS PANDAS Assoc

@NEPANSPANDAS

PANDAS & PANS is triggered by Strep & other infections. Symptoms can include OCD, Tics, Anorexia, ADHD, Anxiety, Regression, Behavioral & Neurological changes.

 New England
nepans.org
Joined June 2015
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Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)Photo by NE PANS PANDAS Assoc (@NEPANSPANDAS)
Are you a PANS/ PANDAS parent in Massachusetts? Come join New England Pandas this Thursday for a mix and mingle. (Adults only).
Image from NE PANS PANDAS Assoc (@NEPANSPANDAS)
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A worth while video to watch. Dr. Latimer is a pioneer for PANS/PANDAS and has over 20 years of experience in the field. linkedin.com/posts/the-alex-…
Dr. M. Elizabeth Latimer is a pioneer in the field of PANDAS and PANS, terms she would prefer to...

Dr. M. Elizabeth Latimer is a pioneer in the field of PANDAS and PANS, terms she would prefer to...

Dr. M. Elizabeth Latimer is a pioneer in the field of PANDAS and PANS, terms she would prefer to jettison in favor of basal ganglia encephalitis (although she said there is significant merit to using...

linkedin.com
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Tune in at noon time for a free webinar with MGH and the #internationalocdfoundation facebook.com/153834917994/po…
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My kid is not crazy on YouTube! Share to help get our kids awareness, research and help! Thank you @TimSorel youtu.be/WJQT9-cQwIw
My Kid is Not Crazy: a search for hope in the face of misdiagnosis-...

My Kid is Not Crazy: a search for hope in the face of misdiagnosis-...

My Kid is Not Crazy tracks the journey of six children and their fa...

youtube.com
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GREAT BENCHMARK IVIG Study. Paper not yet available but we will share ASAP when released by the JCAP. This study design will be used in part by future Octagam Study for PANDAS-PANS children. Link to the poster is here. Link to the study not available yet, pandasnetwork.org/2018/10/br…
Image from PANDAS Network - Official (@PANDASnetwork)
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This is the best tweet we’ve ever written!! Massachusetts has passed the PANS/PANDAS legislation! Thank you so much to these two ladies who worked so hard! This is the best gift of 2020!!
Image from NE PANS PANDAS Assoc (@NEPANSPANDAS)
Image from NE PANS PANDAS Assoc (@NEPANSPANDAS)
Image from NE PANS PANDAS Assoc (@NEPANSPANDAS)
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Steps in the right direction. This is beyond encouraging! Keep fighting for our kids.
PANDAS Network - Official (@PANDASnetwork) profile picturePANDAS Network - Official
@PANDASnetwork9 Nov 2020
WE HAVE A CDC LEGAL CODE for PANDAS! ICD 10 Code D89.89 This is important coding that PUSHES insurance companies to consider autoimmune treatment. We are making PROGRESS! This is A HUGE development and helps with legislation, insurance coverage, medical acceptance and more. 🔨
Image from PANDAS Network - Official (@PANDASnetwork)
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We are live now! Please join us in our virtual pandas awareness day broadcast! facebook.com/NEPANS/videos/1… #pandas #pandasawareness #nepans @ASPIREpans @IOCDF @NAMIMass @WCVB @NECN
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It’s PANS/PANDAS Awareness day! Check out our fb page for our live event today at 11am! facebook.com/572991909413490… #pandas #pandasawarenessday #nepandas #thisisouryear
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This is great news! A large audience to be exposed to PANS/PANDAS awareness!!
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We love her and this is so well deserved! Congratulations Dr. Frankovich! #pandas #pans
PANDAS PHYSICIANS NETWORK (@PANDASPPN) profile picturePANDAS PHYSICIANS NETWORK@PANDASPPN30 Jun 2020
Congratulations to Dr. Jenny Frankovich for winning Stanford's Clinical Science Research Award for her work with #PANS patients! #PANDAS #Stanford #Hero
Image from PANDAS PHYSICIANS NETWORK (@PANDASPPN)
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During this difficult time let’s show everyone the gifts & talents of our pans/pandas kids! Tweet your photos / videos using #wearemorethanpans so we can remember we are all connected. (Respect privacy please-for example show us the artwork not the artist)
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We are live with information on Coronavirus specifically related to our Pans/Pandas facebook.com/NEPANS/videos/6… @PandasPans @ASPIREpans @PANDASPPN @PANDASnetwork @MoleculeraLabs
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Got questions on Coronavirus and Pandas/Pans? NE Pandas Association is hosting a Q & A with C.N.S. Peggy Chapman tomorrow at 10:30 am. Submit your questions now or live. facebook.com/572991909413490… @PandasPans @PANDASnetwork #pandas @PANDASPPN @mdanubio4
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I just updated my website. nepans.org
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Interesting study done on the overlap between PANS and Autism jimmunol.org/content/200/1_S…
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Wonderful job in her testimony!! Thank you Amanda for being a voice for our children! youtu.be/TN22pUwrAII youtu.be/TN22pUwrAII
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Check this out tomorrow facebook.com/story.php?story…
facebook.com/story.php?story…
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