NPN is a collaborative of NICU Support Organizations led by NICU Parent Professionals. We're the only professional association for NICU Parent Leaders in the US
Joined April 2012
- Tweets2.2K
- Following496
- Followers2.1K
- Likes1.1K
NICU Parent Network retweeted
The 2025 @iCANResearch Summit was our best one yet! Click below to read about how our organization gives kids with rare diseases & medical complications a platform to share their voices in clinical trail design and more.
#ICAN2025 #clinicalresearch
jenniferdegl.com/ican2025/
New Podcast Episode from @ParentsNicu! In this powerful episode, Dr. Melinda Elliott reveals how skin-to-skin care, informed nutrition choices, & parental involvement can directly impact outcomes for NICU infants. empoweringnicuparents.com/ep…
House Resolution 236 urges Congress to recognize the rights of NICU babies to receive family-centered, developmentally appropriate care.
📨 Send a letter to your representative now:
👉 infanthealth.org/support-h-r…
#FamiliesFirst #NICUBabysBillOfRights #HR236 #ActForNICUBabies
Parents in the NICU face isolation, confusion, and heartbreak—on top of caring for a critically ill baby. House Resolution 236 outlines basic protections every NICU baby & family deserves.
Use your voice. Send a letter today: infanthealth.org/support-h-r…
#NicuBabysBillOfRights
NICU Parent Network retweeted
Next #FCC webinar is this week!
Don't miss it!
And a reminder that we have webinars every other month. You can also check out previous webinars on our youtube!
youtube.com/channel/UCe8woe9…
Looking for trusted info on neonatal care? On Neopedia, you’ll find:
✔️ Expert-reviewed recommendations
✔️ Practical tips & explanations
✔️ Parent-to-parent advice
✔️ Downloadable resources
Visit neopedia.org 👈
#Neopedia #PreemieSupport #ParentSupport #NewbornHealth
NICU Parent Network retweeted
Common feelings in the aftermath of HIE are complex and deep.
#NeoTwitter #NeuroTwitter #PerinatalMentalHealth #NICU #PTSD #Anxiety #Depression
⏳ 1 week to go! Neopedia is for parents and caregivers of preterm or sick babies & HCPs looking for reliable, easy-to-understand neonatal care info.
📅 Launch: 21 May 2025
🔗 Sign up: neopedia.org
#Neopedia #PreemieSupport #ComingSoon @gfcni_newborn
🚀 The countdown is on! 4 weeks until Neopedia launches – a multilingual platform with reliable, easy-to-understand information on neonatal care, prematurity & post-discharge development.
📅 May 21, 2025
🔗 Sign up: neopedia.org
#Neopedia #ParentSupport #NICU
Today’s the final day to grab the early registration discount! Join us July 22–23 to amplify NICU parent voices and advocate for real change.
🎟️ $50 – NICU Parents & NPN Members
🎟️ $100 – Non-Members
Register here ➡️ nicuparentnetwork.org/hill-d…
#NpnHillDay #NICUAdvocacy
The @NECsociety, Cincinnati Children’s, & UNC Children’s are proud to open registration for the NEC Symposium in Chicago, September 7 – 10, 2025. The NEC Symposium is the world’s largest conference focused on necrotizing enterocolitis (NEC). NECsociety.org/NECsymposium #preventNEC
EARLY REGISTRATION DISCOUNT - EXTENDED through Friday, 4/18! Join us on Capitol Hill July 22-23 as NICU Parent Leaders and advocates from across the country come together to amplify the voices of NICU families ➡️bit.ly/NPNHillDay #NPNHillDay #advocacy #NicuBabysBillOfRights
Adult preemie Giorgia Giuliana Garola (@VivereOnlus1) remembers the power of kangaroo care with her mom. Her advice to parents: “Be as close as possible to your child. You are so important for them.” 💜 Neopedia launches May 2025🌟 #Neopedia bit.ly/neopedia
Thank you, @RepMcGarvey & @RepHouchin, for standing with NICU families and advocates by supporting the NICU Parent Network’s NICU Baby’s Bill of Rights! #NICUBabysBillofRights #NICUAdvocacy
My twins spent 99 days in the NICU — some of the most difficult days of our lives.
We learned that information is vital when you're fighting for your babies — every parent should have that.
That's why @RepHouchin and I introduced the NICU Baby Bill of Rights.
NPN applauds the introduction of the NICU Baby’s Bill of Rights (H. Res 236)! THANK YOU @RepHouchin & @RepMcGarvey for championing this resolution, ensuring parents have a voice in NICU care & decision-making. prn.to/4hHf8xg
#NICUBabysBillofRights #FamilyCenteredCare
Can joy exist despite the challenges of neonatal care? Bet Farga & Maria Valls from SomPrematurs know it’s possible. Small steps bring hope. 💜
From May 2025, Neopedia offers multilingual expert info & parent advice to empower families. 💌 Sign up now! bit.ly/neopedia
