Sherryl Chatfield retweeted
We’re grateful to our panel of experts for recording our latest webinar – an update on treatment for adults who have SMA. Watch this and other videos on our YouTube channel: bit.ly/3Qmv65k
If you have any questions after watching, please email: [email protected]
Sherryl Chatfield retweeted
For more info read @SMA_UK_ blog
smauk.org.uk/blog/informatio…
Sherryl Chatfield retweeted
Please kindly support and cascade this study by our wonderful @PamAppletonNMC exploring the the quality of life among SMA patients receiving disease-modifying therapies. @2tbueser @pablogarciareit @EmmaM_Channels @nn_neuro
A postgraduate Masters student at the University of Plymouth is exploring the impact of disease-modifying therapies on quality of life and daily activities in adults who have SMA. Find out more about the study & how to get involved 👉 rb.gy/pqxm6
@PamAppletonNMC
Sherryl Chatfield retweeted
Sherryl doing a great job at #FSHD IRC 2023 presenting the new therapy led service for patients with FSHD at St Georges @NeurobalanceP @StGeorgesTrust @PamAppletonNMC
Sherryl Chatfield retweeted
Looking forward to supporting this webinar next month! Sign-up online: us06web.zoom.us/webinar/regi…
The new fatigue management guidelines are now live on the Muscular Dystrophy UK website musculardystrophyuk.org/get-…
They are a fantastic resource. Led by @PamAppletonNMC and the working party.
@MDUK_News
Sherryl Chatfield retweeted
Calling all #AHPs working with people with #neuromusculardisease Join us for the first of our webinar series supported by @MDUK_News.
Register here us06web.zoom.us/meeting/regi…
@UCL_QS_CNMD @gitaramdharry @ACPIN_UK @RCSLT @theRCOT @JodiAllenSLT
Sherryl Chatfield retweeted
The successful candidate will work closely with our fantastic and friendly specialist multidisciplinary team at the Atkinson Morley Neuromuscular Centre, and with local community services.
Contact me or @PamAppletonNMC, our care advisor for Surrey, if you want to know more.
Thanks for having Jo and I @SouthEastACPIN 😊
Thank you so so much to Neuromuscular Condition expert physios Jo Reffin and @NeurobalanceP for such an informative talk exploring exercise in this client group with lots of condition specific tips. Take home messages:
This is tonight! Jo Reffin and I will be talking about neuromuscular diseases.
Just one more day to go!! ⏰ Our evening lecture tomorrow: Exercise and neuromuscular disease 💪 135 already signed up! Book now to avoid disappointment🕺🏽acpin.net/events/neuromuscul…
A programme packed full of information for International Myotonic Dystrophy Day today. Well done @EmmaM_Channels for organising it!
Had our first patient and family day for International Myotonic Dystrophy Awareness Day today. Sherryl had some great tips! Thanks to our supporters @mdsguk @MDUK @StGeorgesTrust #myotonicdystrophy
Sherryl Chatfield retweeted
We are looking for a neuro physio to join our FND clinical & research team! This is a new 3-year, fixed term, full-time research role.
jobs.sgul.ac.uk/Vacancy.aspx…
Sherryl Chatfield retweeted
SMA service at St George’s Hospital run by Dr Clare Galtrey is now providing Nusinersen and Risdiplam for eligible patients. Amazing to see such innovative gene therapy in clinical practice! @StGeorgesTrust
Sherryl Chatfield retweeted
Our transition service for young people with a neuromuscular condition living in London and the South East is open. Interested in joining our group forum? - please get in touch: musculardystrophyuk.org/blog…
@StGeorgesTrust @NeurologyStg
Fantastic talks from @GussieGrips and Rhiannon Griffiths at #TherapyLive Pelvic Health this morning. So much to think about!
Sherryl Chatfield retweeted
Skeletal muscle channelopathies: a guide to diagnosis and management pn.bmj.com/content/early/202…
Great to see this out and we really hope it is a useful guide for clinicians to this group of rare but treatable conditions.
Our paper on the 12 minute walk test in McArdle disease. Great work Jatin and team! @UCL_QS_CNMD























