We talk about Primary Ciliary Dyskinesia (PCD) as widely as possible, and champion research to improve its diagnosis, management and treatment.
UK
Joined March 2012
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Congratulations!
A huge congratulations to Miss McEwan & Miss Threadgold who did the @thekiltwalk today for @PCD_UK and @SmileCounsel. We are very proud of them! #CalderwoodChampions
PCD Support UK retweeted
#EBROW25
🌐 Registration is now open!
👉 Visit our website and set up your profile today: bronchiectasis-eu.org/2025/?…
#RespiratoryMedicine #Bronchiectasis
We look forward to welcoming you soon!
📅20-22 February 2025
📍Paris, France
PCD Support UK retweeted
Priorities and Barriers for Research Related to Primary Ciliary Dyskinesia
@mgoutaki @ERSpublications
openres.ersjournals.com/cont…
PCD Support UK retweeted
Great interaction at the #cilia2024 welcome reception in #UCD Dublin.
PCD Support UK retweeted
Following #WorldCleanAirDay and #HealthyLungsforLife in Vienna, @DrMariaNeira - Director of Public Health, Environment and Social Determinants of Health at the @WHO - talks about ensuring patients are empowered and informed on key risk factors!
#ERSCongress @eurorespsoc
This week, our Chair Katie is chatting all about PCD to scientists, clinicians, and other patient support groups at #Cilia24
@EuroCilia2024 @UKCiliaNetwork @CiliaAlliance
Love your t-shirt! #PCD
🏃♂️ Proud to #TakeTheActiveOption at #ERSCongress! Alongside 500+ delegates, we’re advocating for lung health 🫁
Led by @EuropeanLung & @EuroRespSoc, this initiative raises awareness and encourages action.
We proudly support #HealthyLungsForLife
More info: ersnet.org/congress-and-even…
PCD Support UK retweeted
Let’s make #WorldCleanAirDay every day.
Patients have a special voice in demanding action on air pollution & climate change. Invest in #CleanAirNow
#BreatheLife #WorldCleanAirDay @fenaer2 @Longfonds @apepoc_es @empowersankar @EfaPatients @EuroRespSoc
@EuroRespSoc @ELF @WHO
PCD Support UK retweeted
Come to PS-20 for @Leonie_Schreck results on exacerbations in #PCD #ERSCongress @ClaudiaKuehni @mgoutaki
Latest data on exacerbations in #PCD presented brilliantly by @Leonie_Schreck @beatpcd @mgoutaki #BeatPCD2024
PCD Support UK retweeted
Many thanks to everyone who attended the ELF Patient Organisation Networking Day in Vienna, and those who joined us online. It has been another fantastic event, and we cannot wait to see what else the #ERSCongress brings!
#PatOrgDay2024
We're incredibly proud of our treasurer Abdullah, who has done an excellent job chairing the afternoon sessions of @EuropeanLung's #PatOrgDay2024
@EuroRespSoc #PCD #PCDSupportUK @A_ihsan99
PCD Support UK retweeted
We are starting our inflammation in PCD session with our own @Shoemelia talking about neutrophilic inflammation #beatpcd2024
PCD Support UK retweeted
The team are at the #HealthyLungsForLife press conference in Vienna, raising the profile of lung health!
Here, speakers are presenting new data to show that air pollution impacts lung health.
Learn more about #HealthyLungsForLife here: europeanlung.org/en/projects…
PCD Support UK retweeted
A few papers coming out this week for #ERS2024 😀
Starting with A systematic literature review of the clinical and socioeconomic burden of bronchiectasis
Bronchiectasis imposes a massive burden on patients, families and healthcare. New therapies needed!
err.ersjournals.com/content/…
PCD Support UK retweeted
For people watching the 1annual research meeting feed online, feel free to MP your questions to this account and they will be relayed to the speakers #beatpcd2024
PCD Support UK retweeted
In case you missed the brilliant @pcdmum and Emilie Wattellier watch the recording here beat-pcd.squarespace.com/tra…
Patient perspective: What’s needed for multidisciplinary PCD care? 📣
We’ll be hearing from Emilie Wattellier (has PCD) and @pcdmum (mum to 2 with PCD)!
Join us on Zoom, June 3rd at 17:30 PM CEST.
Register here: beat-pcd.squarespace.com/eve…
@beatpcd @YinTing_Lam
PCD Support UK retweeted
Calling all adults with PCD in the UK we need your help: Can you spare a few minutes to take part in this research study? Link -> southampton.qualtrics.com/jf… or scan QR code #PCD #Primaryciliarydyskinesia
