PIPC is a coalition of health care stakeholders promoting comparative effectiveness research and patient engagement to improve health care quality.
Washington D.C.
Joined April 2013
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Gerry lives with PBC in Ireland. He struggles to access newer therapies available in the U.S. Why would the U.S. model European health care delays and denials? #MFNHurtsPatients #ValueOurHealth
The experiences of patients internationally speaks for itself. Reference to international prices has negative implications for access & disability discrimination. Learn more here. pipcpatients.org/uploads/1/2…
We convened @pipcpatients to center health care on achieving outcomes that matter to patients, people with disabilities and older adults in an evolving healthcare system. Learn more here. pipcpatients.org/uploads/1/2…
Partnership to Improve Patient Care (PIPC) retweeted
Evidence clear international drug pricing means delayed & denied access to care for rare disease patients. Read #ValueOurHealth paper providing policy lessons from UK’s System, alongside co-authors at United Liver, @speakfoundation & @CFRI_CureCF. cfri.org/wp-content/uploads/…
Partnership to Improve Patient Care (PIPC) retweeted
Glad to be at the @RareDiseases Summit for some Breaking News.This morning I attended the Rare Disease Regulatory Roundtable, moderated by @ComstockRi54463 Assoc. Director of the FDA rare disease hub. Guest speaker #karimMikhail made an announcement about individual gene therapy. He is Director of CBER. Watch it here! Very exciting! @FDA @DCOfficial #science #innovation
Having a patient “at the table” is not enough. Patient perspectives must meaningfully shape the evidence, deliberations and coverage decisions that determine whether people can access the care they need.
Partnership to Improve Patient Care (PIPC) retweeted
The GLOBE Model finalized today imports QALYs. Call it a benchmark or a threshold, a price or reimbursement, it’s still using the QALY-based values from other countries in Medicare. #ValueOurHealth #MFNHurtsPatients pipcpatients.org/news/pipc-s…
The GLOBE Model finalized today imports QALYs. Call it a benchmark or a threshold, a price or reimbursement, it’s still using the QALY-based values from other countries in Medicare. #ValueOurHealth #MFNHurtsPatients pipcpatients.org/news/pipc-s…
Adopting the values of other countries that routinely deny patients access to breakthrough treatments for serious and disabling conditions puts American patients at risk of the same outcome.
PIPC is deeply concerned about embedding in U.S. policy the use of cost-effectiveness standards like the quality-adjusted life year (QALY), which devalues the lives of people with disabilities and older patients.
PIPC issued the following statement in response to the Centers for Medicare and Medicaid Innovation (CMMI) finalized the Global Benchmark for Efficient Drug Pricing (GLOBE) model that would impose so-called “Most Favored Nation” drug pricing in Medicare Part B.
Partnership to Improve Patient Care (PIPC) retweeted
Join us for a webinar on 10/14 at 12:00 pm ET w/ @IFAiArthritis @AccessRare @PIPCpatients & @SafeMedicines to explore state Prescription Drug Affordability Boards (#PDABs) and how states, public programs, & health plans approach medication costs. Register: tinyurl.com/4pbz5a57
