Standing Up to POTS (@POTSActivist) header
Standing Up to POTS (@POTSActivist) profile picture

SUTP works to improve quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.

Springfield, OH
Joined December 2014
Halloween is almost here! Do you have a favorite POTS-friendly costume you’re planning to wear? Share your tips and ideas for staying comfortable and festive! #POTS #potsawareness #chronicillness #dysautonomia #halloween
1
1
128
Invisible #symptoms are still real. Just because you can’t see it, doesn’t mean it isn’t there. Choose kindness, show understanding, and believe your loved ones when they share their struggles. #POTS #motivationalmonday #awareness
1
4
153
Listen on your favorite platform or at ThePOTScast.org
1
1
161
Time is running out! Don’t miss your chance to join our Annual #SUTP5K (in-person or virtual) and support life-changing #POTS research. Every step helps improve lives. Register by Oct 14th! 💙 standinguptopots.org/annual-…
1
1
221
Hey, just a gentle reminder: taking care of yourself, managing your symptoms, counts as being productive. Give yourself some credit. How did you take care of yourself today? #potsawareness #pots #spooniecommunity #motivationalmonday #chronicillness #selfcare
1
3
172
Time is running out! Don’t miss your chance to join our Annual #SUTP5K (in-person or virtual) and support life-changing #POTS research. Every step helps improve lives. Register by Oct 14th! 💙 standinguptopots.org/annual-…
1
2
216
We’re so grateful to Matt Buehrer and Thrivent for once again stepping up as Presenting Sponsor of our #SUTP5K! Their ongoing support helps us uplift and empower the #POTS community. Thank you for making a difference! 💙 connect.thrivent.com/matt-bu…
1
3
205
Listen on your favorite platform or at ThePOTScast.org
215
It’s okay if simple tasks feel like mountains. You’re not alone. #POTS #chronicillness
1
2
141
We’re thrilled to have #BUOY as our Gold Sponsor for the 13th Annual 5K/2K! Their support means a lot to the #POTS community. Proud to partner for our #SUTP5K! 💙 Learn more: justaddbuoy.com
2
4
242
We’re thrilled to have #Normalyte as our Presenting Sponsor for the #SUTP5K! Their support truly impacts the #POTS community. Proud to partner for our 13th Annual 5K/2K! 💙 Learn more: normalyte.com/
1
1
193
Dr. Groysman is back answering listener Q’s and discussing his new publication. Listen on your favorite platform or ThePOTScast.org
1
176
You don’t need to apologize for a flare or a difficult day. Be you - the world is a better place with you in it. #POTS #dysautonomia #flare #spoonie #chronicillness #motivationalmonday
1
2
205
Register today for the 13th Annual #SUTP 5K/2K! #POTS families join together to support one another and fundraise for POTS #research to improve quality of life. Cost is $30 for adults and $20 for those 22 and under and includes a tshirt. standinguptopots.org/annual-… #SUTP5K
1
4
230
Listen on your favorite platform or ThePOTScast.org.
3
4
218
Living with a chronic illness often comes with an unfair burden of guilt. A reminder: you don't owe anyone an apology for your symptoms, your limits, or the way your body handles the day. Never apologize for being yourself. #potsawareness #pots #motivationalmonday #dysautonomia
2
5
208
Register today for the 13th Annual #SUTP 5K/2K! #POTS families join together to support one another and fundraise for POTS #research to improve quality of life. Cost is $30 for adults and $20 for those 22 and under and includes a tshirt. standinguptopots.org/annual-… #SUTP5K
2
4
250
Listen on your favorite platform or at ThePOTScast.org
1
167