
Patient advocate with nursing background. I'm collecting accounts from pts/family members re: #SuicideDue2Pain & adverse events associated w/ opioid tapering.
Birmingham, AL
Joined September 2016
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Thanks for a really neat opportunity @jennyrogersDC, @washingtonpost, & @maiasz!
washingtonpost.com/outlook/t…
Want to know more about what's happening with CSI:OPOIDs? Please make sure you check out our most recent newsletter.
csiopioids.org/2026/09/23/cs…
Do you remember when you joined X? I do! #MyXAnniversary
Hard to believe it's been ten whole years!
"Descend at puppies discretion..."
The ears on those sweet little puppies no doubt appreciated the slow descent:).
facebook.com/share/r/1BtX2kX…
Anne Fuqua retweeted
A friend in our community recently left the hospital AMA after going back sick and vulnerable following surgery.
And it made me think about how casually medicine treats those three letters:
AMA. Against medical advice.
People see AMA and think: difficult patient.
But I think clinicians should sometimes ask a harder question:
What happened before the patient decided leaving felt safer than staying?
How many of us in chronic pain or chronic illness have lived this?
I’ll raise my hand.
You press the call button.
You wait.
You ask when the specialist is coming.
“They’ll round today.”
Morning becomes afternoon.
Afternoon becomes tomorrow.
Nobody tells you why.
A resident comes in without answers.
The nurse is waiting on orders.
The attending is somewhere else.
And somehow the person lying in the bed knows the least about what is happening.
Then there’s inpatient life itself.
Hospital gown.
Peripheral IV taped into your arm.
Tubing, alarms, monitors.
You finally fall asleep and here comes phlebotomy at 2 a.m.
The vampires.
Then vitals.
Then another blood draw.
Then housekeeping rustling a trash bag at 3:30 in the morning.
Then someone asks later, “Did you sleep okay?”
No.
You’re sick, hurting, exhausted, overstimulated, half-dressed, tethered to equipment and still expected to be endlessly patient and pleasant.
Then communication disappears.
Pain becomes a number.
Fear becomes “anxiety.”
Symptoms get minimized.
Questions feel like an inconvenience.
And eventually the patient starts asking:
“Am I actually safer staying here?”
Yes, some people leave AMA for reasons no clinician can control.
But when someone leaves because they feel ignored, undertreated, disbelieved, or abandoned, that should not be shrugged off as “noncompliance.”
That should bother us.
Because AMA tells you how the patient left.
It does not always tell you why.
Sometimes the fuller story is:
The patient left because they had already lost confidence that the hospital was going to help them.
Anne Fuqua retweeted
A thread in which a doctor speaks about her cancer patients in pain cannot get their prescriptions filled! All based on the OUTRAGEOUSLY false claims about "prescription opioid medications" coming from inside the health agencies and their Advisory Committees!
1/ Patient & sociologist Dr. Elizabeth @JoniakGrant was on committee & spoke several times during the day.
Here she talked about:
a. Avoiding further harm in pts w/ pain
b. Pts have been forced to taper, are unable to find prescribers, or struggle to get Rx filled
Anne Fuqua retweeted
Why does it have to be framed as “non-opioid?” It’s not like that’s a magic phrase that means it’s a better drug. Just say “a new therapy for acute pain,” instead of the constant virtue-signaling. 🙄
A potential new non-opioid therapy for acute pain is moving forward. The FDA has granted IND status to MAX-001, paving the way for a U.S. phase 2 clinical trial.
🔗 painmedicinenews.com/a/0jwBA… #painmedicine
1/ Even though I knew this day would come, still so very sad that Dr. Tennant has passed away. There are so many patients who wouldn't be here today were it not for him.
12/ By encouraging his pts to get to know one another and work together on advocacy projects, he helped us to see we were not alone & through this support system, I made friends who have become family.







