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Patients Association (@PatientsAssoc) profile picture

Patients Association

@PatientsAssoc

We are an independent charity campaigning for patient partnership. For our social media community guidelines, see: https://nitter.cf/t.co/pwOtv4gikz

 United Kingdom
patients-association.org.uk
Joined April 2009
  • Tweets24.3K
  • Following1.7K
  • Followers23K
4.8KMedia
Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)Photo by Patients Association (@PatientsAssoc)
Our Head of Partnerships and Involvement, @SarahTilsed is speaking at the IQVIA Annual Summit, Ready or Not: Delivering the Next Generation of Population Health, next week! Take a look at the agenda: buff.ly/O38wFlz
IQVIA Annual Summit, Ready or Not: Delivering the Next Generation of Population Health.

ALT IQVIA Annual Summit, Ready or Not: Delivering the Next Generation of Population Health.

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How do you feel about AI being used in the NHS? What do patients need to know, and what concerns do they have? We're partnering with Heidi to hear your views and help understand what matters to patients. Take the survey: buff.ly/mZO3hmh
Share your thoughts with us on the way AI tools are used in the NHS

ALT Share your thoughts with us on the way AI tools are used in the NHS

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Our free webinar on patient consent, supported by Radar Healthcare, is happening tomorrow at 4pm but there's still time to book your place! Take a look at what we'll be covering and sign up: buff.ly/MesJ5j8
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Patients Association retweeted
NHS (@NHSuk) profile picture
NHS
@NHSukOct 20
Flu can be serious. If you’re 65 or over, get your free NHS flu vaccine to help protect against serious illness and hospital treatment. It is important to get the flu vaccine every year. Book via your GP, pharmacy or the NHS App ➡️ nhs.uk/bookflu
NHS poster urging people aged 65 or over to get a free flu vaccine to protect against serious illness this winter.

ALT NHS poster urging people aged 65 or over to get a free flu vaccine to protect against serious illness this winter.

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Patients Association retweeted
Sarah Tilsed (@SarahTilsed) profile picture
Sarah Tilsed@SarahTilsedOct 20
A survey of 2,000 adults found that 86% had experienced uncertainty over where to seek help. The findings follow a report by @rcgp & @PatientsAssoc, which highlighted the strain that navigating disconnected services places on patients and GP teams. practicebusiness.co.uk/news-…

NEWS: NHS Confusion Leaves 47% of Patients Feeling Anxious | Practice Business

NEWS: NHS Confusion Leaves 47% of Patients Feeling Anxious As reported by the Royal College of General Practitioners, unclear referral processes and delays are leaving patients unsure where to turn...

practicebusiness.co.uk
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Patients Association retweeted
Healthwatch England (@HealthwatchE) profile picture
Healthwatch England@HealthwatchEOct 20
People waiting for an ADHD assessment can face long waits and difficulties getting the care they need. This ADHD Awareness Month, read Anita's experience of getting ADHD care: bit.ly/4ubyPUI
“Maybe life would have been easier if I’d been diagnosed and started treatment earlier. But we can’t look backwards and can only go forward.” — Anita on her experience of accessing ADHD treatment

ALT “Maybe life would have been easier if I’d been diagnosed and started treatment earlier. But we can’t look backwards and can only go forward.” — Anita on her experience of accessing ADHD treatment

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Our free webinar on Supporting conversations about bladder and bowel products and services with @Coloplast_UK is underway! If you're not able to make the session, we will be uploading a recording to our website in the next few days.
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We just shared our brand new animation, developed with Coloplast, that explains some of the key things to think about when making decisions about bladder and bowel products and talking to your healthcare professional youtu.be/07nHUM6ClxQ Let us know what you think!
Making decisions together: Supporting conversations about bladder and bowel products and services

Making decisions together: Supporting conversations about bladder and bowel products and services

Our short animation explains some of the key things to think about ...

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You can find more information on our new patient information page: patients-association.org.uk/…
Bladder and bowel products: your rights and how to decide

Bladder and bowel products: your rights and how to decide

If you are struggling, feeling overwhelmed or have concerns about managing your bladder or bowel condition, you do not have to manage everything on your own.

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Today, the Health Bill reaches its Second Reading in the House of Lords. Our new report sets out 7 principles to protect independent patient voice, give patients real influence over decisions and ensure decision-makers act on what they hear. Read more: patients-association.org.uk/…
Image from Patients Association (@PatientsAssoc)
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What makes social prescribing work for patients? Our research, commissioned by @NASPtweets found that patients valued the time, listening and individual support they received from Social Prescribing Link Workers.
More than three-quarters of patients (76%) reported they felt like an equal partner in decisions about their care made with their link worker.

ALT More than three-quarters of patients (76%) reported they felt like an equal partner in decisions about their care made with their link worker.

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📊 76% felt like an equal partner in decisions ⏱️ 76% felt they had enough time 💬 85% felt comfortable speaking to their link worker 🔗 90%+ were connected to services they didn’t previously know about Read the reports: buff.ly/TUbfYmo
Patients’ experiences of social prescribing

Patients’ experiences of social prescribing

Our research, commissioned by the NASP, found that patients valued the time, listening and individual support they received from Social Prescribing Link Workers.

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Decisions about bladder and bowel care should put patients’ individual needs first. Our free webinar on Wednesday with Coloplast UK to hear about patients’ experiences and the importance of shared decision-making 📅 Book your place: buff.ly/CMZeXiq
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How we can move away from consent being treated as a form or tick-box exercise and towards a culture where patients feel able to speak up and healthcare professionals genuinely listen? Join our free webinar, in partnership with Radar Healthcare: buff.ly/l8JGXxf
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⭐ Social prescribing can make a significant difference to people’s health and wellbeing.
It's just better than anything else as it is personal and not self serving. If the NHS put folk like my social prescriber in charge you'll have a NHS to be proud of.

ALT It's just better than anything else as it is personal and not self serving. If the NHS put folk like my social prescriber in charge you'll have a NHS to be proud of.

Genuinely the best interaction within the NHS in my life. (My link worker) is fantastic and changed my experience completely around for the best

ALT Genuinely the best interaction within the NHS in my life. (My link worker) is fantastic and changed my experience completely around for the best

I recommend social prescribing to anyone I meet who is struggling, typically those who are sole unpaid carers for family members.

ALT I recommend social prescribing to anyone I meet who is struggling, typically those who are sole unpaid carers for family members.

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As social prescribing develops, patients' experiences should remain central to decisions about how it is delivered. That means listening to what patients say works, understanding where there are barriers, and making sure the model reflects the needs and preferences of patients
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Read the reports here: patients-association.org.uk/…
Patients’ experiences of social prescribing

Patients’ experiences of social prescribing

Our research, commissioned by the NASP, found that patients valued the time, listening and individual support they received from Social Prescribing Link Workers.

patients-association.org.uk
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Are you getting the bladder and bowel care that’s right for you? Join our free webinar to hear patients’ experiences of accessing products and services, explore the importance of shared decision-making and find out how new resources can help you buff.ly/CMZeXiq
Image from Patients Association (@PatientsAssoc)
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Yesterday our Head of Partnerships and Involvement @SarahTilsed shared at this session at the @Conservatives Party Conference about putting patient experience at the heart of delivering the National Cancer Plan
Total Politics (@TotalPolitics) profile pictureTotal Politics@TotalPoliticsOct 5
With plans published, focus turns to delivery at #HandCF26 for 'The National Cancer Plan: Delivering on Ambition'. Chaired by @zoenora6 of @PoliticsHome @TheHouseMag with @drcarolinej MP, Daiichi Sankyo, @CRUKresearch, @PatientsAssoc & @TheKingsFund. #CPC26 @Conservatives
Image from Total Politics (@TotalPolitics)
Image from Total Politics (@TotalPolitics)
Image from Total Politics (@TotalPolitics)
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