Patients with Power (@PtsWithPower) header
Patients with Power (@PtsWithPower) profile picture

Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐

Joined November 2020
I have a disabling condition called #MECFS. In Australia, the treatment that is recommended for this condition - Graded Exercise Therapy - is something that is scientifically KNOWN to make the condition worse.
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Ask yourself "what is the doctor afraid of?" and you might see the deeper problem. What does a doctor - the one with all the power in the room - have to fear by stating in front of a patient, accurately and honestly "I don't know what's causing your symptoms"? #ChronicIllness
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I was just trying to survive. #NEISvoid
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WHY is this happening AGAIN? ⚡️ thecanary.co/uk/analysis/202… #NEISvoid #pwme #MECFS
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Doctors have power over their patients. Some are responsible with it, many abuse it. It's not just carelessness and being overworked. Let's be real for a second: There's nothing to stop people with high functioning #narcissism or psychopathy from becoming doctors. They're protected by the assumption that people become doctors because they want to help people. In my experience, I've found some to just like the power trip. ⚡#ChronicIllness #ChronicPain #DoNoHarm #spoonies
What have doctors done to retaliate against you, when you tried to correct them or advocate for yourself as a patient? I'll add some of mine below. ⚡#NEISvoid #heds #pots #pwme
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From the way she's arguing I thought "I bet she's selling something" and bam, there it is. The way she conflates terms (seems deliberate), the way she offers people "hope" (if they buy her book), and so many other things just scream "scammer" to me. These people infuriate me too.
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In almost every serious case of failure in patient safety, the patient and/or their families tried to raise concerns, over and over again, sometimes for years and at terrible human cost. ⚡️#NEISvoid #MedX bmj.com/content/390/bmj.r194…
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#MedicalGaslighting is like taking a cracked mirror to be repaired, and instead being told, “No, the glass is perfect. It’s your self-image that’s distorted.” Instead of looking for medical causes, the doctor flips reality, making the patient doubt their own perception. #NEISvoid
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Example: This doctor has no way of knowing how other docs have treated the patients who "believe doctors hate them", yet she assumes patients are wrong. Not only wrong, but their assumptions are "vile", as she blindly defends her colleagues. ⚡️nitter.cf/drplantel/status/19629… #NEISvoid
The number of people who believe doctors “hate” patients is heartbreaking. No one goes into medicine because they despise patients, what a vile assumption. Are doctors perfect? No. We are human. We make mistakes. Many of us are stretched thin. But at our core, many of us are here because we care, deeply. We know that many people have been failed by the healthcare system. We understand that frustration; many of us are patients too. But it is devastating to see that pain exploited by those selling grift, conspiracy, and false hope. I will never stop calling that out. If you’ve made up your mind that doctors don’t care, that truly saddens me. Because most of us are doing our very best to fight for our patients every single day.
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I love this poem. When my body fills with anger about the way patients are treated in healthcare, it makes the anger feel like love and care, which makes it easier to hold in my body. ⚡️#NEISvoid
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