🦋 username https://nitter.cf/t.co/PK27uj0pVX Carer for a lovely ME/CFS hEDS POTS wife.
Sydney, Australia
Joined January 2011
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🦋 WOPR SysProg Headly Earnest Bellringer, 6EQUJ5 retweeted
Please RT or send this photo. We need this trending today. Fly high Janey. #Trumpisacunt @JaneyGodley
🦋 WOPR SysProg Headly Earnest Bellringer, 6EQUJ5 retweeted
Thought I'd see what video is just bubbling under our target number and it was this one. RECURRING DREAM, live. 2007. We just need 16 more views, so if you are feeling generous. Thanks. x. youtube.com/watch?v=4T3abIQG…
Love. A sense of duty. Being a human. Compassion. Empathy.
Counter-balanced by the deep, deep ambiguous grief with no "closure" (whatever that is) and loss of what can no longer be.
🦋 WOPR SysProg Headly Earnest Bellringer, 6EQUJ5 retweeted
So true. No holidays. No happy retirement. No social life. Future plans on hold. Everything focused on protecting your pwME from harm or further decline. Living under the radar. Love is what keeps us going.
Caring for #VerySevereME means not being able to go anywhere, ever, for decades. As @CGATist says, it's a form of exile. Banishment from all forms of public life, work, education, leisure, friendship. No exaggeration @steve_race @GwynneMP Loss of all but love for each other.
🦋 WOPR SysProg Headly Earnest Bellringer, 6EQUJ5 retweeted
Caring for #VerySevereME means not being able to go anywhere, ever, for decades. As @CGATist says, it's a form of exile. Banishment from all forms of public life, work, education, leisure, friendship. No exaggeration @steve_race @GwynneMP Loss of all but love for each other.
Ambiguous Loss hitting hard this week. Thanks for your words and work. caregiverwisdom.net/
@BatemanHorne youtube.com/watch?v=IakuKzKE…
So what should you do if you are a carer?
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🦋 WOPR SysProg Headly Earnest Bellringer, 6EQUJ5 retweeted
(🧵NO ONE COULD HAVE PREDICTED THIS): To answer the question "What does the future hold for 𝑆𝐀𝑅𝑆-𝐂𝑂𝑉-𝟐?" it's worth examining how predictable its evolutionary trajectory has been so far. Evolution is stochastic, but stochastic processes can still yield predictions. (1/)
🦋 WOPR SysProg Headly Earnest Bellringer, 6EQUJ5 retweeted
Who really wins when you argue on the internet? #comedyconnects
