Previously Coordinated Ipswich & Colchester Support Group and now Ataxia UK Volunteer
Ipswich, Suffolk, UK
Joined September 2012
- Tweets11.9K
- Following696
- Followers760
- Likes18.8K
Patricia Riggs retweeted
Have you every experienced issues with travel due to disability? Tell us your experiences with taxis, buses, trains, ect. in the comments.
#Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Disability #Charity
GCSE results are just one moment in your journey – they don’t define you or your future.
If someone you know has received their results today, check in and see how they’re feeling. Your support could make a real difference 💙
Find out more ➡️ nhs.uk/mental-health/childre…
ALT Empty exam hall with rows of desks and chairs, overlaid with the message 'Exam results don’t define you' and NHS logo.
Patricia Riggs retweeted
IntraBio Inc. has announced a Phase III trial of N-acetyl-L-leucine for CACNA1A-related disorders, including SCA6 and EA2. The multinational study is not yet recruiting. Enrollment will focus on patients already receiving care at selected trial sites. ataxia.org/pharma
Patricia Riggs retweeted
Don't forget a layer if you're heading out tonight 🌙
Clear skies and cooler northerly air will bring a notably chilly night, especially in the north where temperatures may fall into the low single figures 🥶
Patricia Riggs retweeted
EXCLUSIVE:
Ataxia Aware chats to Dr Roy Sillitoe of the cerebellum science center
You can read our full chat here:
ataxia-aware.org/storiesande…
#Ataxia #Awareness #RareDisease #PatientsHelpingPatients #StrongerTogether #Disabled #Health
Patricia Riggs retweeted
🏴☀️ The King has arrived at Balmoral for the summer.
Welcomed by a Guard of Honour formed by The Royal Regiment of Scotland, His Majesty also met Corporal Cruachan IV, the Shetland Pony mascot of the Regiment.
Patricia Riggs retweeted
'We needed to bring to the attention of the public the kind of risks we are facing'
Phil Garrigan, chair of the National Fire Chief’s Council, told #BBCBreakfast why they wanted a national government alert warning people not to light anything that could spark a wildfire
bbc.co.uk/news/live/crjejgz5…
Prince William issues statement personally thanking firefighters and emergency responders battling wildfires
gbnews.com/royal/prince-will…
Patricia Riggs retweeted
During, this week, we support the #RareDisease #Dazzle4Rare community, at @Ataxia_aware #Ataxia #charity Wales
We are a #Patient focused #charity based in #Wales with a #Global impact
#Patients helping patients
#StrongerTogether
ataxia-aware.org
Patricia Riggs retweeted
Thank you very much to Kate for sharing your story. It is truly important to talk about the mental health side of having ataxia 💙
You can read Kate's story here:
ataxia-and-me.org/stories-at…
#Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients
Patricia Riggs retweeted
The latest satellite and radar shows the showery outbreaks of rain that are moving in across the UK from the north and west 🌧️
Patricia Riggs retweeted
Never forget just how brave you are, because you are extraordinary on this #Motivational_Monday 💙
#Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Disabled
Patricia Riggs retweeted
Please be aware of a significant wildfire that started on Dunwich Heath.
Local residents are advised to follow advice from @SuffolkFire to keep all doors & windows closed.
Please avoid the area to allow emergency services to carry out their essential work safely & effectively
Patricia Riggs retweeted
Diary marker
2nd week of August
We will be supporting the #RareDisease #Dazzle4Rare community at @Ataxia_aware #Ataxia #charity Wales
Are you aware ? that #DNA is the code for #Life
#StrongerTogether @Dazzle4Rare
Patricia Riggs retweeted
THANK YOU
Anonymous for booking your adventure via @GiveasyouLive Online and generating a free donation to us @ataxia-aware
💸 It's free
📱 There's a handy app
🛍️ There are over 6,000 stores!
> giveasyoulive.com/join/ataxi…
Patricia Riggs retweeted
A very happy happy 13th birthday to Prince George of Wales, horn this day 22 July 2013 🎂🎁
Patricia Riggs retweeted
We are looking in on the @euro_nmd / @ERN_RND webinar
outcome measures in #FSHD #ClinicalTrial
with Dr. Jose Manuel Sanz Mengibar, @ucl UK
& Dr. Channa Hewamadduma, #Sheffield
#Neurological
#MovementDisorder
#HSP
#SPG7 #Ataxia
Patricia Riggs retweeted
you don't spend decades paying national insurance just to be told your pension is a "benefit."
for millions of britons, it's deferred earnings, not charity.
do you agree? 👇🇬🇧
Readers added context they thought people might want to know
The UK State Pension is a contributory benefit. NI contributions fund current pensions on a pay-as-you-go basis, not a personal pot of deferred earnings.
gov.uk/hmrc-internal-…
commonslibrary.parliament.uk/research-brief…
Patricia Riggs retweeted
This is Jo's story 💙
We would like to thank Jo for sharing his story with us.
Jo's beautifully written full guest blog will be coming soon to
ataxia-aware.org/storiesande…
#Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Neuron
