SMND RAG (@SMNDRAG) profile picture

SMND RAG

@SMNDRAG

Sheffield Motor Neurone Disorders Research Advisory Group (SMND RAG) was set up to enhance patient and public involvement in motor neurone disorders research.

Joined July 2013
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Photo by SMND RAG (@SMNDRAG)Photo by SMND RAG (@SMNDRAG)Photo by SMND RAG (@SMNDRAG)Photo by SMND RAG (@SMNDRAG)
SMND RAG retweeted
Mo LeCule (@Mo_MND) profile picture
Mo LeCule@Mo_MND3 Jun 2016
Check out the latest #ShortenedStories installment from #SITraN's very own @DrEmilyG goo.gl/syAb11 #MNDAwareness #MND #ALS
Six Brits a day diagnosed with MND: The TRUTH behind the diagnosis

Six Brits a day diagnosed with MND: The TRUTH behind the diagnosis

A WOMAN whose father was diagnosed with motor neurone disease when she was just 13 years old has since become a research scientist - trying to find a cure for the disease which killed her father.

express.co.uk
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Job opportunity @sheffielduni #PPI Public Involvement Lead @ScHARRSheffield goo.gl/oibCo2 for details
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Replying to @Mo_MND
@Mo_MND you missed a game of chess in the park @neuroshef @LiseSproson @natwm10 #headupsupport
Image from Head Up Bruno (@HeadUp_Bruno)
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My daughter enjoying her first lab experience #SITraN @neuroshef Amazing Brain workshop, brains in jars a big hit!
Image from Emily Goodall (@DrEmilyG)
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Quarterly @SMNDRAG meeting today, busy agenda and looking forward to hearing about new #MND research projects #SITraN
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Off to the @SMNDRAG meeting today at #sitran Sheffield be lovely to catch up with @DrEmilyG @Mo_MND and hopefully meet @HeadUp_Bruno 👍
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Great guild on patient & public involvement #PPI for researchers @ParkinsonsUK @HeatherMortiboy @ParkinsonsWorm goo.gl/qaxYv8
"Communicate clearly what you are doing in science & who knows, you might end up understanding it yourself." Well said, #StephenHawking!
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Here is our appearance with @reallorraine Bucket pioneers receive British Citizen Award itv.com/lorraine/ice-bucket-… via @itvlorraine
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It's Young Carers Awareness Day - A day to identify & support young carers #YCAD #MissingOut thndr.me/qYvJZf 💙 #MND
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SMND RAG retweeted
Mo LeCule (@Mo_MND) profile picture
Mo LeCule@Mo_MND28 Jan 2016
New #SITraN blog: @natalierounding talks about #Outreach, #scicomm & inspiring young minds #MND @UniShefEngage goo.gl/MEPb6G
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Why involve patients/public in health research? Researchers share benefits they've experienced: youtu.be/xF-Lv5bv5JQ #ppi @NIHRINVOLVE
Why involve patients and the public in research?

Why involve patients and the public in research?

Researchers at the University of Oxford interviewed 35 people worki...

youtube.com
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@NIHR_PRAI Involvement in research has changed my life! @acgrundy shares experiences of #PPI - imhblog.wordpress.com/2016/0… … …

Andrew Grundy – Thoughts on Patient and Public Involvement (PPI): Involvement in research has...

A few years ago, if you had said to me that I would be celebrating the publication of an academic research paper, I would have laughed. In 2007, attempting my MPhil nearly broke me, and this, among…

imhblog.wordpress.com
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Public engagement with research in action #IgniteAcad15 #Sheffield
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Replying to @S4R4H999
@S4R4H999 @SMNDRAG It was nerve racking! #MND
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Lovely to hear about @DrEstherHobson latest projects at @SMNDRAG meeting today
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Great meeting, plenty to discuss & get our teeth into. Looking forward to seeing how the #SITraN #MND research projects develop @mndassoc
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Exciting update on HeadUp neck support for #MND #ALS clinical trial which will run in 10 centres across the country #SITraN
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Great to have @CSFenwick join us via Skype and #eyegaze technology #MND #ALS #PPI patient involvement in research
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Replying to @GregBroadhurst
@GregBroadhurst @SMNDRAG thanks Greg the biscuits are going down well 👍
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