Epilepsy Advocate. 29 years experience of living w seizures. Epilepsy Awareness professional. PPI for #ExeterNurse MSci Course. Views my own.
Exeter, Devon
Joined November 2010
- Tweets2.4K
- Following562
- Followers958
- Likes2.3K
There are moments at work that genuinely stop you in your tracks.
I’m incredibly proud to say I recently delivered awareness training for @ChelseaFC - first @premierleague club to be epilepsy aware - trailblazers!
#EpilepsyAwareness #Epilepsy
chelseafc.com/en/news/articl…
The @epilepsyaction @DoodleDay auction is now live! From a portrait of Sir David Attenborough to cute pics of animals, an Ab Fab Doodle from Joanna Lumley, and cartoons by RW Alley (Paddington) and Staz Johnson (Marvel), there’s something for everyone!
ebay.us/m/uxf5u3
It’s been too long. Successive Governments have failed to act on the findings of the report, leaving affected families without the redress they need. It’s time for @wesstreeting to step up and deliver for those affected by Foetal Valproate Syndrome.
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If you follow me, you know I have epilepsy. But what if someone else you know has epilepsy but hasn’t felt confident enough to share it? How would you react?
#Epilepsy #EpilepsyAwareness #ChangeTheNarrative #EndTheStigma
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Delighted to see @neuronostics shortlisted for a SPARKies People’s Choice Award.
Use the link below to vote and make sure epilepsy tech is recognised!
share.hsforms.com/1HDhtDrXyT…
Living with uncontrolled epilepsy in the midlands area? @SMQB_UoB at Birmingham are looking for volunteers for a really interesting study into the effects of stress hormone cortisol on seizures. Email [email protected] for more info or to volunteer!
For any of my network in or around Bath who might be interested.
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I’ve signed. If you’re affected by epilepsy in any way, I would encourage you to do so too. If you aren’t affected by epilepsy, but care about the effects on those valproate has harmed, sign. If you don’t care, well, that’s on you.
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For those in my network who may be interested in contributing to research in Exeter. If you’re over 18, have been living with epilepsy for over ten years, and would be willing to take part in an interview via Teams, Anika (@study25924) wants to hear from you!
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Simon Privett retweeted
Got 60 secs to support 630,000 people?
Creativity has the power to make a difference. We’re calling on all creative minds. Your entry must be viewed by the judges in 60 secs or less, showing why you think YOU have what it takes to create change for @epilepsyaction
Link in bio
