Retired from MND Association
England, Wales and N. Ireland.
Joined October 2013
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Steve Bell retweeted
Carer resilience? Seriously?
How much more resilient can #UnpaidCarers get?
We’ve been left to get on with it for a whole year. Quietly just getting on with our caring roles with next to no support, nor thought for a whole year.
This is gaslighting.
Steve Bell retweeted
Good to see people enjoying the #ITV doc about @mndassoc Royal Patron #PrincessAnne 👑 HRH has been our Patron since 2008 - even longer for our friends at @MNDScotland - and in her 10th year alone she attended 7 events for us! #commitment
Stop press from my last post 😀 just heard from @SYMNDA Chairman where the branch Committee met today. I have been offered a place on the Branch Management Committee today which I immediately accepted. First Branch Committee meeting next Wednesday. Cure and Care people. Good news
Steve Bell retweeted
In these difficult times, we can’t hold each other’s hands, but we can be there for each other.
Offer a hand of support and more to someone special this #GlobalMNDAwarenessDay on June 21. Who will you extend a hand to?
Visit 👋 mndassociation.org/handof! #HandOf #CharityTuesday
Steve Bell retweeted
The MND Association is saddened to hear today’s news that Ian Pratt has died.
Ian was a tireless MND awareness raiser and fundraiser, raising thousands, for his own @IanPrattMNDF and the MND Association.
Our thoughts are with his family and friends.
Steve Bell retweeted
Thank you @benshephard, @mndassoc patron @CharlotteHawkns and @DrHilaryJones for highlighting to @MattHancock on @GMB this morning how people with #MND “must definitely” be on the list of people who are ‘extremely vulnerable’ to #coronavirus
Pls help ➡️ bit.ly/CovidEmailMP
Steve Bell retweeted
Training how to place NG tubes to enable us to introduce a community NG placement service for @SheffieldHosp during COVID 19 pandemic & beyond. Thanks to @LisaGreenDiet @CHFTNHS for allowing us to gate crash training provided by the brilliant nutrition nurse Jon. @Helenbeagan1
Steve Bell retweeted
It looks like #COVIDー19 can affect the brain as well as the lungs. For example, 40% of people lose their sense of smell, some have seizures, and headache is common. Sign up to help us understand why. Takes just 20 - 30 minutes every two weeks rampstudy.co.uk/
@rampstudy
Steve Bell retweeted
Please find our latest animation advice for people living with MND at youtu.be/-xtJYwKXLOQ @mndassoc @ALSMNDAlliance
Steve Bell retweeted
We are calling on the Government to define people with motor neurone disease as being extremely vulnerable as a matter of urgency.
For our latest advice on covid-19 for those with MND, please visit our website > mndassociation.org/coronavir….
[3/3] #MND #Coronavirus #COVID19
Steve Bell retweeted
The MND Association is extremely concerned to see that people with MND have not been included in the Government’s list of extremely vulnerable persons in their guidance on shielding and protecting vulnerable person’s from Covid-19.
[1/3] #MND #Coronavirus #COVID19
Steve Bell retweeted
Please do take a look 👀 👍
An opportunity has arisen to be involved in shaping the
@ALSMNDAlliance's work on an advisory council. Help the Alliance consider the opinions and ideas of those affected by #MND 👉 bit.ly/38MzGS5 .
The closing date for entries is Midnight on the 27th Feb.
Steve Bell retweeted
Looking forward to introducing @mndassoc volunteers & funders, people living with #MND and their families and fellow @Cumbrianeuro partners to our Royal Patron, HRH The Princess Royal, tomorrow alongside @sallylight17 and @SteveBellMND 👑
Steve Bell retweeted
Dr Vicki Flood: Extra Virgin Olive Oil and Exercises were the focus of her analysis and this slide explains why that was chosen.
Steve Bell retweeted
“Palliative care is not just about managing physical symptoms, a holistic approach is needed involving family, friends, neighbours and wider community services - it’s about adding life to days not just days to life” Luc Deliens (Belgium) #alsmndsymp @IMNDA
Steve Bell retweeted
What a great idea. @mndassoc would like people to donate their #walk2dfeet T-shirts to make a quilt. This will be raffled to support the #als fellows program. Hand shirts into rego desk if keen to contribute #ALSSymp #fundraising 🙌🙌🙌 – at Perth, Western Australia
Melinda Kavanaugh is explaining that children as young as 6 care caregivers for family members with ALSMND. These children receive very little support and are often socially isolated from their peers. #alsmndsymp and almost 60% receive no training for the care they provide.
Steve Bell retweeted
What a great event, really enjoyed it, and lots of awareness raised tonight, well done @MNDAWA and @mndaustralia 👍👍
