Developing & supporting #Parkinsons clinical research across the UK & increasing research opportunities for people with Parkinson's. Funded by @CureParkinsonsT.
United Kingdom
Joined November 2021
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Involved in costing Parkinson's #ClinicalTrials?💸
We've produced a #Parkinsons specific guidance document to assist industry & sites to determine accurate timings & costings of study activity in commercial trials.
Find the document on our website: sites.google.com/sheffield.a…
The @UK_PD_CSG was launched on #WorldParkinsonsDay 2022
Over the last 3 years we have worked hard to grow our network and support #Parkinsons research across the UK
On #WorldParkinsonsDay2025 we are so happy to share our current progress as we look forward to the future
📣 Calling all members of the @UK_PD_CSG
🗓️ Our next meeting is 25 April 2025
⭐ We will highlight two key #Parkinsons studies, provide an update on EJS ACT-PD, and discuss how we collaborate with international partners
🔗 Want to join us? Sign up here: bit.ly/csg-new-member
Check out this new online course from @ParkinsonsUK for all healthcare professionals who interact with People with #Parkinsons
Gain insights and skills to effectively communicate with patients about taking part in #research
Sign up here ⬇️⬇️
parkinsons.org.uk/profession…
Did you know that women are drastically underrepresented in #Parkinsons research?
@CureParkinsonsT and @ParkinsonsUK are hosting a free webinar on March 6th to discuss the importance of considering this in your research
#InternationalWomensDay
Sign up ⬇️eventbrite.co.uk/e/webinar-a…
📢 Calling all members of the @UK_PD_CSG!
📅 Our next bi-monthly meeting is scheduled for the 24th February 2025
🌟 We will be discussing two key #Parkinsons studies and providing an update on the EJS ACT-PD initiative
🔗 Want to join us? Sign up here: bit.ly/csg-new-member
Are you a registered healthcare professional interested in formal #ClinicalResearch training?
A great opportunity for those new to #Parkinsons research to kick start their clinical research career!
🔗Find out more & attend an online info session: bit.ly/4hSqbnx
📢Are you interested in undertaking a #PhD in #Parkinsons?
@sheffielduni have two projects available focussed on the application of digital mobility outcomes (#DMOs)
📅Closing date: 29 January 2025
🔗Find out more & apply here:
bit.ly/4jtB2G8 & bit.ly/40IMera
💡 Day 12 #12DaysOfParkinsonsResearch
The #TOPHAT study has restarted! After a brief pause for data analysis, the team are back on track to test #ondansetron, a safe drug that could help people with #Parkinsons who have #hallucinations
🌐bit.ly/TOP-HAT
🖐️ Day 11 #12DaysOfParkinsonsResearch
Drooling is a common symptom of #Parkinsons. The Cue Band study explores whether a smartwatch could help by reminding participants to swallow more frequently. This study is now complete so the results will hopefully be shared soon!
💊 Day 10: #12DaysOfParkinsonsResearch
The @TheravanceBio CYPRESS study is investigating a new treatment, #ampreloxetine, for neurogenic orthostatic hypotension symptoms in Multiple System Atrophy. If successful, this treatment could improve quality of life for people with #MSA!
🧠 Day 9 #12DaysOfParkinsonsResearch
Impulse control issues, like gambling or binge eating, are common in #Parkinsons. The Impulse Control study seeks to understand the brain mechanisms behind these challenges, paving the way for better treatments.
nhs.uk/every-mind-matters
💊 Day 8 #12DaysOfParkinsonsResearch
The @NorapsTrial is testing whether #atomoxetine, a medication currently used to reduce ADHD symptoms, could be useful in treating Progressive Supranuclear Palsy (#PSP) symptoms by increasing #noradrenaline in the brain.
Find out more ⬇️
👟 Day 7 #12DaysOfParkinsonsResearch
The @getgaitQ study is looking at a wearable device designed to help people with movement disorders walk more effectively. It uses smart technology to monitor and improve gait, aiming to provide people with #Parkinsons a better quality of life
🧠 Day 6 #12DaysOfParkinsonsResearch
The @CANPDP_trial is researching whether #cannabidiol (#CBD) can provide relief for #Parkinsons Psychosis symptoms in a safe and well-tolerated way.
Read more below ⬇️
For more info:
📧 [email protected]
Day 4 #12DaysOfParkinsonsResearch
Today we share the innovative @EJS_ACT_PD trial, opening to recruitment in 2025!
Expertly designed by over 90 members, including people with Parkinson's, this initiative will revolutionise how #ParkinsonsResearch is conducted within the UK.
🎉 Day 1 #12DaysOfParkinsonsResearch
This year we hit a milestone! The @UK_PD_CSG reached over 100 members!
Since 2022, we’ve expanded across the UK, increasing capacity and making it possible for more people to take part in #ParkinsonsResearch
Here's to even more progress! 🙌
🧬 Day 5 #12DaysOfParkinsonsResearch
The @PDfrontline study is actively recruiting participants to look at genes associated with #Parkinsons
This study can be completed in your own home and you can self-refer by visiting: pdfrontline.com
#GetTrialReady
🙌 Day 3: Public and Patient Involvement (PPI)
The #PPI group of the @UK_PD_CSG has been invaluable to our progress. Their involvement is essential to ensure research meets the real needs of the #Parkinsons community
#12DaysOfParkinsonsResearch
@CureParkinsonsT
